VOL.4. ___________________________________________________________________AUGUST ISSUE

A NEWSLETTER FROM OUR

SCMA FAMILY TO YOURS

Greetings Kind Reader,

Welcome to the latest edition of the Sickle Cell Medical Advocacy newsletter!

We are thrilled to share with you the remarkable progress and impactful initiatives that have transpired in the realm of Sickle Cell advocacy since our last communication.

At Sickle Cell Medical Advocacy, our mission remains steadfast: to foster a world where individuals affected by Sickle Cell disease receive the comprehensive care, support, and attention they deserve. With your invaluable support and unwavering dedication, we continue to advance towards this vision.

In this newsletter, we delve into the recent breakthroughs, collaborative efforts, and transformative stories that have shaped the landscape of sickle cell care. By uniting professionals, healthcare providers, and compassionate donors, we are amplifying our collective voice and working tirelessly to create lasting change.

UPCOMING: September 2023

ANNOUNCING: The Sickle Cell Health Excellence Learning Program

Empowering Patients, Transforming Lives

We are thrilled to introduce the Sickle Cell Health Excellence Learning Program, an invaluable opportunity exclusively tailored for individuals living with Sickle Cell disease. This 8-week program is designed to equip patients with the knowledge, tools, and resources needed to achieve optimal health and well-being.

Program Highlights:

Orientation: Join us on August 30th, 7 PM EST 2023, for an engaging orientation session that will provide an overview of the program's offerings and benefits.

Knowledge Enrichment: Gain insights from patients with Sickle Cell disease who are also medical doctors and experts by knowledge and experience! We will be covering a range of topics crucial to managing Sickle Cell disease effectively.

Empowerment Workshops: Participate in interactive workshops that provide patients with resources to help them establish relationships with primary care physicians and hematologists for better preventive health management.

Program Details:

Duration: Starting September 3rd, 2023

Availability: Exclusively for Sickle Cell disease patients

Location: Virtual attendance. Offer available within the USA.

Invest in Your Well-being:

This program is 100% free to eligible Sickle Cell disease patients. Patients, seize this opportunity to enhance your understanding of your condition and take proactive steps towards a healthier life.

Limited Spots - Register Now:

Spaces are limited, so ensure your participation by contacting us via our website registration. Visit www.sicklecellmedicaladvocacy.org. Don't miss this chance to embark on a journey towards Sickle Cell health excellence. Enroll today!

August 2023

July 2023

In a recent trip to Atlanta, our very own Dr. Simone Uwan, M.D., had the privilege of supporting the inspiring initiative, "Be The Match-Cheek Week."

The focus of this event was to amplify bone marrow donor participation, particularly from communities of color. As a medical doctor and a patient with a condition that currently finds its cure in bone marrow transplants, it was an honor for her to contribute to this important cause.

The event was a vibrant gathering of like-minded advocates, each driven by the shared goal of increasing diversity within the bone marrow donor pool. It was heartening to connect with fellow Sickle Cell advocates who live in Atlanta and were present for the event.

Among them, we had the privilege of meeting three medical advocates, all trained by Sickle Cell Medical Advocacy Inc. This convergence of medical professionals and passionate advocates truly emphasizes the impact of our collective efforts.

Some snaps from the event:

Elevate Your Impact: Join the Medical Advocacy Training Program!

Empowering Advocates, Transforming Lives

This month we started another cycle of our Medical Advocacy Training Program!

MAT started June 25th 6:30-8 PM EST. For those who agreed to stay with SCMA to advocate for patients enrolled with SCMA, the course was FREE to them.

For those training with SCMA on behalf of their organization the cost was $550 total-$500 for the class and $50 for their syllabus, uniform(T-shirt) and their certificates of completion.

Those who advocate for SCMA afterwards receive a $50 stipend or gift card for each advocacy event, as a thank you for their compassion and dedication to the patient in need.

June 2023

Celebrating World Sickle Cell Day in Nigeria, West Africa:

Promoting Global Health Equity in Sickle Disease

We are delighted to share that we had the privilege of participating as a speaker in a significant event commemorating World Sickle Cell Day in Nigeria, West Africa. The event was graciously hosted by Damilola Ajibade, the driving force behind the "Damilola Sickle Cell Foundation."

The gathering provided a remarkable platform for meaningful dialogue and enlightening discussions centered around the crucial theme of "Achieving Global Health Equity in Sickle Disease." Our engagement at the event was a testament to our commitment to advancing awareness, education, and collaborative efforts in addressing this pressing global health issue.

The insightful conversations and shared knowledge during the event highlighted the importance of concerted efforts in ensuring equitable access to healthcare resources and information for individuals affected by Sickle Cell disease, regardless of their geographical location. We were inspired by the dedication and passion exhibited by the attendees and fellow speakers in driving positive change in the field of Sickle Cell disease.

We extend our heartfelt gratitude to Damilola Ajibade and the entire team at the Damilola Sickle Cell Foundation for their exceptional work in raising awareness and fostering connections within the Sickle Community. It is through events like these that we can make meaningful strides towards achieving global health equity for individuals battling Sickle Cell disease.



As we reflect on our participation in this event, we are reminded of the power of collaboration and the impact that a united effort can have on improving the lives of those affected by this challenging condition. We look forward to continuing our engagement in initiatives that promote education, advocacy, and positive change in the realm of Sickle Cell disease.

A Little Laughter: Squeeze DSickle

Talent Show

It was a pleasure to support ALAAFIA organization for World Sickle Cell Day 2023 yesterday, by doing a 30-minute educational video of how far we have come with therapy options for Sickle Cell Disease. Click on the video below to know more.