Hi Cure,

We’re just two days away from the 15th Annual Global Science Summit & Gala! Whether you’re joining us in Miami or tuning into the livestream (register virtually here if you haven’t), we know you’ll really enjoy what we have planned.

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

SysNav is organizing interviews with caregivers of individuals with Angelman syndrome at the 2022 Global Science Summit & Gala to better understand mobility. The objective is to help them develop reliable digital sensors to measure mobility in individuals with Angelman syndrome in real life.

If you are a caregiver and will be at the FAST Science Summit & Gala in Miami, you can schedule a 30 minute interview with SysNav researchers:

The interview will be held in a meeting room near the main event. Thank you for the help you can provide SysNav. See you in Miami!

Because of your responsibilities caring for a person with Angelman syndrome, have you EVER experienced one of the following work-related situations?

→ Been unable to get a promotion

→ Reduced or increased work hours

→ Had to delay retirement

Please answer this question and many more on the Caregiver Impact Survey; this important survey will aid access to drugs for our community.  The survey is now live on the Global Angelman Syndrome Registry (GASR) website!

US Residents, gather your GASR log in, your medical expenses analysis, and get started:

FAST LatAm was formed in May 2020 and is led by chairperson Stephanie Azout-Chaki. Their main project is the Observational Cross Section Study in the region to further their main goal of laying the groundwork for future clinical trials in Latin America. This group of parents and volunteers is driven by a passion of making a positive change in Latin America. 

Click here to read more about FAST LatAm:

A party with a purpose! Autumn’s Angels Frozen Turkey Bowling Classic took place in Milwaukee, Wisconsin on November 20th in honor of Autumn, 11 years old, who lives with Angelman syndrome!

Anthony and Michelle hosted this event to help raise funds for a cure, to advocate, and bring synergy and awareness to the Milwaukee area about Angelman syndrome. The community gathered to compete in frozen turkey bowling. This unique event raised $12,238 for FAST.

Check out more photos (and local news coverage) from this successful event:

Keder Solutions is our Premium Platinum Sponsor of the 2022 Global Science Summit & Gala. We are grateful you care as much about the FAST community as you do your customers. Your willingness to be a repeat sponsor of this wonderful event is appreciated by FAST and the entire community. 

Learn more about Keder Solutions on their website.

You are truly a gem, Quincy’s Quest Foundation. We want to thank you for being our Diamond Sponsor of the 2022 Global Science Summit & Gala! Your continued sponsorship is very much appreciated and FAST is truly grateful for your support of the AS Community. 

Learn more about Quincy's Quest on their website.

Two days away, Cure... We can’t wait to welcome you for the Global Science Summit & Gala on the livestream or in Miami.



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