June 13, 2021 ASCF e-newsletter
Dear Friends,
Hope you all are doing well. Please check out our few announcements we thought you might be interested in, especially contacting Governor Murphy to sign S 3434. We have some information on being prepared for Hurricane season and wonderful news about the award of Diana Autin from SPAN. Check out the webinars and support groups.
Watch for information on Children's science activity on June 26 at 1 pm
co-sponsored by Highlands Family Success Center and ASCF.
Be well. Your ASCF staff 973-728-8744
chalkboard-rain-girl.jpg
 It's Hurricane Season: How to Plan for an Emergency When You Have a Disability - What to Include in Your Emergency Kits
2011 brought devastating floods to inland New Jersey with Hurricane Irene, only to be followed by Superstorm Sandy, the next year, the fourth-worst storm in U. S. history.  Though downgraded to a tropical storm when it made landfall, Sandy was more than 1000 miles wide, three times the size of a typical hurricane. Its destructive winds leveled many communities along the coastline as it hit during high tide and merged with high- and low-pressure systems both north and south of New Jersey, earning it the title of a “superstorm.”  
The severity and frequency of storms like Sandy and Irene will continue to increase as the Earth’s temperatures escalate, icebergs melt, and sea levels rise. New Jersey is especially vulnerable due to its low-lying coastline along the Atlantic Ocean. According to the American Meteorological Society, climate change will contribute to more hurricanes in general over the next 15 years, predicting 32 super-extreme storms with winds exceeding 190 miles per hour. As a result, residents of New Jersey, particularly the most vulnerable population, such as people with disabilities, need to be ready for what comes. 
 What makes a hurricane dangerous?
A hurricane is a storm with violent wind that forms in the tropical waters and can cause significant damage from heavy rains, violent wind, or life-threatening storm surge.  Due to the lethal nature of the storm, individuals may need to evacuate from their home.  Long-standing power outages following a hurricane may also require evacuation, as was prevalent following Superstorm Sandy. Individuals with disabilities, especially those with mobility limitations and those reliant on machines to power life-saving devices may have a more difficult time during evacuation, as seen in the recent Hurricane Uri that devastated  Texas and left the disability community without aid.  
Hurricane season is now upon us.  Because individuals with disabilities are especially vulnerable, and the impact of a hurricane can affect all areas of the state, it is especially important to make a plan for such an emergency and prepare an Emergency Kit in the event you must evacuate.   
How to Make an Emergency Plan
 ·        Sign up for emergency alerts on your phone.
·        Create a support network of friends, family and neighbors that can help you in the event of an emergency. Include your health providers, medical equipment and assistive technology providers in your plan. Let them know how you will need them. Keep your contact list in a watertight container in your emergency kit. Learn more at www.ready.gov/kit.
·        Inform your support network where your emergency supplies are kept. You may want to give someone in your support network a key to your house or apartment.
·        Contact your health provider to know the process for getting an extended supply or replacement supply of medication should you need it. 
·        Contact your local emergency management department and plan ahead for your individual needs. Learn about places to go in the event of evacuation and facilities with supplies you may need.  Work with service providers of public transportation or paratransit to identify local or private accessible transportation options. Know the location of shelters that allow service animals if that applies to you.
·        Know the location and availability of more than one facility for dialysis. If dialysis is part of a health maintenance plan or other life-sustaining treatment, know where multiple facilities are located.
·        Know how to use medical equipment if a power outage occurs.
·        Wear medical alert tags or bracelets.
·        Make note of the best way to communicate with you in an emergency. If you have a communication disability, determine the best way others can communicate with you and let them know.
·        Plan how to evacuate with assistive devices or how to replace equipment if it gets lost or destroyed. Keep model information secure and note who provided it such as Medicaid, Medicare or private insurance. Also note the vendor or dealer. 
For more information go to:
https://www.drnj-covid.org/valuable-resources
CONGRATULATIONS TO DIANA AUTIN
ASCF is extremely proud to share that SPAN's Executive Director, Diana Autin, has been selected as the 2021 Family Voices Health Equity Champion. This award is given annually to an individual who has demonstrated a longstanding commitment to health equity by Family Voices, a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities that connects a network of family organizations across the U.S. that provide support to families of CYSHCN. Diana will be presented with the award on June 15 during the 2021 Family Voices Leadership Conference. Our congratulations to Diana for a well-earned award.
dad_balloons.jpg
HERO HUDDLE: Chalk Talk & Social Time for Dads!
offered by Family Partners of Morris -Sussex Counties.
Wednesdays, June 16, 23, 30 from 7-8 PM
This group will discuss the challenges and triumphs of being a father during a pandemic in a supportive judgment-free environment. Today's world calls for a whole new playbook. Teamwork is the best way to 
meet challenges, celebrate triumphs and set goals. Participants will find a supportive, judgment-free zone.
home_keys_planning.jpg
TAKE ACTION
New Jersey Governor Phil Murphy has not yet signed S-3434. Please support it by contacting the Governor to sign S-3434. He can be reached the following ways:
Send a message through the Governor’s website: https://nj.gov/governor/contact/all/
Tweet the Governor: https://twitter.com/GovMurphy
Contact the Governor on Facebook :https://www.facebook.com/governorphilmurphy
S3434 requires New Jersey boards of education to provide special education and related services to certain students exceeding the age of eligibility for special education and related services. The bill recognizes that students with disabilities have had major interruptions in services caused by the pandemic. Thanks for your support and share the message.
graduate_student_girl.jpg
FILING DUE PROCESS AND INVOKING STAY-PUT WHEN YOU DISAGREE WITH YOUR CHILD’S GRADUATION
June 15, 2021 10:00 AM EST
 This Webinar is for parents who want to know how to prepare and file a due process petition because they disagree with their child’s graduation and believe their child with a disability needs additional or compensatory special education and related services, including transition services. Experienced panelists will provide a brief overview of federal and state regulations setting the framework for due process and will address:
• Filing on behalf of a student aged 18 and over.
• Due process petition format and information that must be included.
• Tips in describing the nature of the problem and related facts.
• Tips in describing the proposed resolution.
• How to file the due process petition and who must be copied.
• When a school district is obligated to maintain the status quo during due process.
• What to expect after filing for due process.
Register
https://us02web.zoom.us/webinar/register/WN_k53HQwDpR8aeLoW7saDOuA\
ARC of New Jersey Upcoming Virtual Events!
Webinars to help individuals with I/DD and their families during this difficult time.
Register today and be sure to check out their calendar for other upcoming events.  https://www.arcnj.org/news_events/calendar.html
June 22 at 6 pm: ABLE Act
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
Stay Healthy at Home - a webinar series hosted by the NJ Self-Advocacy Project - every Tuesday at 2 PM on GoToWebinar
The webinar series covers a variety of topics related to advocacy, life skills, employment, and civic engagement. Sessions are designed to be accessible to self-advocates, parents, and support staff. Live viewers can share comments, ask questions, and access resources.
studying_online.jpg
SPAN Trainings
Health Advocacy - 6/14
For more information or to register go to
https://www.eventbrite.com/o/span-parent-advocacy-network-313399547
school_supplies_desk.jpg
Book of Interest
What to Do When You Worry Too Much: A Kid’s Guide to Overcoming Anxiety
Written by Dawn Huebner
Designed for kids and parents to read together, this nine-chapter behavior therapy workbook covers topics like “How Do Worries Get Started?” and “Keeping Worries Away.” Suggestions include relaxation exercises and setting up a designated “Worry Time.” Several pages encourage kids to draw or write about their worries. The brilliant final page requests that kids draw a picture of themselves without worries. Ages 6-12.
Published by Magination Press.
For information on 44 Children's Books on mental Health go to
https://childmind.org/article/best-childrens-books-about-mental-health/
Parent Support Group
Join Mom Squad!
Thursdays, June 3, 10 17, and 24, from 6 - 7 PM
Don't miss getting to know this amazing group of parents who share the joys and challenges of raising a child or children with special needs. This is a positive, supportive environment focused around your concerns. Julie from ASCF and Diana Varga, from Family Partners facilitate the group.
news_tablet.jpg
Support Group
Join other parents at our
FSO of Passaic County and ASCF
Support Group
Tuesdays, June 15, 22, 29   6:30-8 pm
ALL WELCOME.
Register with Nina 973-979-0508
Empowering Women in Community Leadership for Healthier Families Virtual two-day Summit
June 23 & June 24
10 am -12:00
For more information contact Nicole Pratt, Project Director
973-642-8100 x 197
DISCLAIMER: The Association for Special Children and Families does not provide or give Legal or Medical advice.
DESCARGO DE RESPONSABILIDAD: La Asociación para Niños y Familias Especiales no proporciona ni brinda asesoramiento legal o médico.