February 2023 Special Connection

Dear Families and Friends,

We hope the new year is going well for you. Check out our newsletter with trainings and information we thought you might interest you. Please feel free to contact us if you need guidance or support.

Your friends at ASCF 973-728-8744

Join Our Book Discussion Group

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You are invited to join us on a Special Journey and exploration of a parent-friendly book called:   

"UNIQUELY HUMAN:

A DIFFERENT WAY OF SEEING AUTISM

 by Barry M. Prizant, PhD.

 This book is for parents and caregivers who have children with challenging behaviors. They will discuss a different perspective and approach to these behaviors.

Sunday, February 19, 6:30 pm

Tuesday, February 28, 10 AM

If you need assistance acquiring the book, please let us know. We look forward to hearing from you.

Please register either with Norma at 

norma@ascfamily.org or text to 9735341557;or Julie@ascfamily.org or call

973-728-8744.

SPAN'S VIRTUAL TRAININGS

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Basic Rights in Special Education

Wed, Feb 1, 2023   12 PM


Key Components of the IEP

Wed, Feb 8, 2023 12:00 PM


From Measurable Goals to Making Progress

Wed, Feb 15, 2023 12:00 PM


Assistive Technology for Math: Pre-K to 8th grade

Thu, Feb 16, 2023 12:00


Building Self-Advocacy and Self-Determination Skills

Wed, Feb 22, 2023 6:30 


To register go to https://www.eventbrite.com/o/span-parent-advocacy-network-313399547

MENTAL HEALTH

 How to Model Healthy Coping Skills

Helping kids learn strategies for handling big emotions

Tips:

Talk kids through how you cope

Show your feelings (even the painful ones)

Be kind to yourself

Painful feelings are unavoidable, but how we respond to them is a choice. And showing children how to cope effectively with uncomfortable emotions is one of the most important ways we can support their wellbeing and development.

Children pick up behavior patterns from adults, so one of the best ways to teach your kids good coping skills is to practice them yourself. Leading by example is also usually more effective than trying to tell kids what to do.

Writer: Rosa Klein-Baer   Clinical Expert: Grace Berman, LCSW      Childmind.org

Read full article   https://childmind.org/article/how-to-model-healthy-coping-skills/

PARENTING TIP

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 Good Job" We all say that to our kids to encourage them. But praise does not grow connection between you and your child. But what can we say instead? When you’re making a change it can be really hard to just stop so here are some suggestions.

 1.      “You did it!”

2.     “Thank you”

3.     “How do you feel?”

4.     “You worked it out!”

5.     “Tell me about it”

6.     “I love to watch you do x”

7.     “That was hard work, you kept trying”

8.    “You look excited!”

9.     “I appreciate your help”

10. Say nothing

These phrases show your interest, share your child’s excitement, prompt discussion, express genuine gratitude, and encourage them. Isn’t that just so much more meaningful and connecting than praise?

For complete article: https://happinessishereblog.com/10-things-to-say-instead-of-good-job/

ADVOCACY

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10 defusing phrases to use at IEP meetings   

 (from Understood.org)

 

1. “I may be misunderstanding.” If you disagree, defuse the situation by asking for a detailed interpretation of that law

2. “I can show you.” If someone tells you they’re not sure where your information is coming from, simply show them, that’s easy enough to defuse.

3. “How can we work together to make this happen?” It they tell you it doesn’t provide a certain service or have the staff to implement it, this statement shows your collaboration.

4. “May I see a copy of the written policy?” If they say “This is how we’ve always done something.” ask for  copy of written policy that outlines this procedure?”

5. “Let’s ask him to join us.” If they say “I’m not in a position to make that decision", instead of getting upset, have them join the meeting.

6. “I understand.”  Keep in mind it doesn’t mean the same thing as “I agree.” It just means you’re hearing what’s been said.

7. “I’ve noticed…” If you feel like your concerns aren’t being heard, take a breath and then calmly speak up. about what you know about and see in your child.

8. “How does that look in the classroom?” Conversation about accommodations, behavior plans, or instructional strategies can easily turn to talk about theories or ideas. Redirect by asking about how things will actually work.

9. “What alternatives do you suggest?” When you hear, “We don’t agree with that recommendation,” keep the dialogue going by asking alernatives to address the identified need.

10. “Let’s talk about what’s working.” Focusing on what’s working to help ways to address other issues.

This is a summary of an article of some suggested statements you can use to show your willingness to cooperate with the school while meeting your child's unique needs.

See complete article at https://www.understood.org/en/articles/10-defusing-phrases-to-use-at-iep-meetings

TRANSITION

For a Successful Transition To Adulthood

1.      Start planning as soon as possible. School systems like new Jersey typically begin planning for transition with families when the child turns 14. Many agencies and advisory groups recommend starting 4 or 5 years earlier.

2.     Focus on transition planning in IEPs. The goals and strengths of the individual should be identified and helping them reach those goals, whether with standard course work or more specialized training, should be the focus of the plan.

3.     Determine if guardianship is appropriate. Guardianship requires a court appointment once the individual has turned 18. Independence needs to be weighed against safety and security. Full or limited guardianship are both options, as are limited powers of attorney for health care and property matters.

4.     Find an attorney who specializes in special needs planning. Having a knowledgeable advocate to guide you through the issues and connect you to community resources can be invaluable.

5.     Evaluate post-secondary or vocational education opportunities. None of us stop learning when we move on from high school. Additional course work may improve employment opportunities and increase independence.

6.     Ensure eligibility for government programs and benefits. At transition, all the programs that were delivered through the school system stop. Medicaid eligibility makes more programs available for young adults. Assume that applying for either SSI or SSDI will take longer than you expect.

7.     Be creative, be resourceful, and be realistic about employment. Most young adults with special needs are unable to find full-time paid employment. Targeting positions that utilize an individual’s strengths and interests will increase your chances for success as will identifying firms who have histories of hiring individuals with special needs.

8.    Seek opportunities for exercise and social interaction. Finding opportunities regardless of where you live is important for maintaining or improving physical and mental health.

9.     Locate appropriate housing. While independent living is often the goal, identifying and pursuing the optimal living arrangement for your young adult should be your priority. Start early as many preferred locations have long waiting lists.

10. Find time for respite. Transition takes its toll on the whole family. Often the adult family member with special needs requires more time and attention as an adult than he/she did while in school. It is important for everyone to get a break from the challenges of caring for a young adult.

https://oakwealth.com/top-ten-recommendations-for-special-needs-families/top-10-recommendations-for-a-successful-transition-to-adulthood/

SPAN' S TRANSITION TRAININGS

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Supported Decision-Making and Person-Centered Planning

Wednesday, February 1, 2023     6:30 - 7:30n

If you have a child with a disability between the ages of 18-21 years old who will need help to manage the responsibility of making important adult decisions, do you know about support options? This presentation will define supported decision-making and its principles and the power of person-centered planning. Parents will gain an understanding that guardianship is not absolute, there are other options.:30 PM

https://www.eventbrite.com/e/supported-decision-making-and-person-centered-planning-registration-492646467847

 

Look to the Future: Transition from School to Adult Life

Thursday, February 9, 2023      6:30 - 7:30 PM

Transition planning is crucial to increasing successful outcomes for life after high school. This workshop will discuss issues related to transitioning from school to adult life. Discussion to help identify interests and future plans will be included. Strategies for developing appropriate goals as part of the IEP process will be offered. Parents and students will be informed about resources in the community they can connect with to build linkages and ensure a dignified life as contribuiting and partcipating member of their community

https://www.eventbrite.com/e/look-to-the-future-transition-from-school-to-adult-life-registration-512126563337

Have you missed any of SPAN"S transition webinar? Go to:

https://www.youtube.com/watch?v=9ctB4ZApzUc&list=PLGXju3IK5UOUguqYwDNMQeHHcErGuWLtr

PARENT SUPPORT GROUPS

Mom Squad Virtual Support Group.

Join this parent group with ASCF and Family Partners on Thursdays, from 6-7:30 pm.

Contact Diane Varga

dvarga@familypartnersms.org  

or call her cell: 862-273-5046

The Family Support Organization of Passaic County offers support group sessions (virtual and in-person) on Tuesdays from 6:30- 8 pm

Contact Nina Reams nreams @fso-pc.org

973-979-0508.

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TEEN SUMMIT

NJCTS is happy to share that this year’s teen and parent summits will be held concurrently AND in person! 

Saturday, February 11 from 8:30 a.m. to 3 p.m.

NEW LOCATION: ENVIRONMENTAL EDUCATION CENTER, BASKING RIDGE

Targeted programming for both parents and teens will be offered, with breakout sessions for both groups.

Parents will have the opportunity to hear from and engage with other parents who have raised or are raising young adults with TS, talk to neurologists and psychologists who specialize in the treatment of TS, and chat with young adults in the workforce with TS to hear what was most valuable in helping them achieve success.

Teens will participate in activities to build confidence and form connections with their peers with TS, chat with young adults who recently graduated high school to hear what the transition to college or the workforce is like, and hear from other teens with experience in advocacy what it took to find their voice and advocate for themselves and others.

This event is completely free of charge, and lunch will be provided. Take advantage of the opportunity to actively participate in programming that supports parents AND teens and gives both groups the chance to come together in community!

https://njcts.org/event/teen-and-parent-summit/?event_date=2023-02-11e

RESOURCE

A Guide to Transition Planning for Post-high school for students and young adults with disabilities 

This go-at-your-own-pace guide is for you to learn about the education and civil rights laws that protect them in K-12, higher education, and workforce settings, how to be a strong self-advocate during transition planning, and various opportunities for additional support that may be available.

Go to https://ncld.org/transition

SCIENCE CLUB

SCIENCE CLUB FOR ALL KIDS

This is an in person activity at Highlands Family Success Center, 1801 Greenwood Lake Turnpike, Hewitt, NJ 07421. on Saturday February 11 at 10 AM. There will be a Surprise Topic Please call the Highlands Family Success Center at 973-506-6675.

THOUGHTS TO PONDER

An Idea for the New Year

Family dinners are important. Research shows that kids in families that frequently eat together tend to get better grades and are less likely to use alcohol, drugs and tobacco.

Gathering for a meal is more than just eating--it's a time when everyone can gather to talk about what's going on in their lives.

This Family Dinner Toolkit can help you make the time parents and kids spend together count!

For FREE Family Dinner Toolkit go to:

https://page.search-institute.org/KC-meal-planner-landing

 

Please think about supporting ASCF
DISCLAIMER:
The Association for Special Children and Families does not provide or give legal or medical advice.
DESCARGO DE RESPONSABILIDAD:
La Asociación para Niños y Familias Especiales no proporciona ni brinda asesoramiento legal o médico.
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