Network News

November 2021
Spinal Network's mission is to support the employment and education of individuals with spinal cord injuries/diagnoses by providing the tools and community support to be successful in their work and personal lives.
Greetings!

I don't know about you, but I for the life of me can't figure out where the year has gone. It's November, how is that possible. Spinal Network is looking to finish the year off strong and our plans for 2022 are pretty cool. Some of the programs and resources that we will be introducing;
  • assistive technology loan closet
  • community outreach program with fun social events
  • adaptive sports and recreation day
  • new podcast series
  • a new way to list caregiver needs

I would be remiss if I didn't mention that we will be offering two webinars leading up to Giving Tuesday, a day so important in the life of a nonprofit organization such as ours. The webinars will be on Recruiting and Retaining Caregivers and the other on Able Accounts. Scroll down for more detail and a link to register.

Please consider making a donation to Spinal Network during our Giving Tuesday campaign, scroll down for more detail.

Sincerely,

Rick Hayden
Executive Director
Walk, Roll & Stroll at Mission Beach
What a great time walking, rolling and strolling along the bay at South Shores Park. We meet every other Saturday at 9:30 right near the boat launch and restrooms. November date is 20th. Come join us as we enjoy some fresh air, getting a little exercise (we travel at a slow pace) and great conversation.

This is open to everyone!

Hope to see you there on
November 20th
We're just three weeks away from the biggest day to give back in 2021....#Giving Tuesday. Last years #Giving Tuesday raised enough money which allowed us to expand the programs and resources offered. This year we increased our goal to have a greater impact on the paralysis community and the Spinal Network family. So save the dates for the two webinars, listen to our new podcast, if you are looking for a caregiver, try our new Caregiver Needed program, join with us on a Saturday Walk, Roll & Stroll, request a peer mentor if you would like or just hang out with us on one of our Monday Hang Out zoom groups. It's all there and waiting, if you have a need not listed in the newsletter or on our website, shoot me an email letting me know.

Please consider making a donation to support our efforts.

Rick
Giving Tuesday 2021 Events
Recruiting and Retaining Caregivers: November 23rd, 3pm - 4pm
Presenters: Rusty Krumm and Warren "Bill" White

The Benefits of an Able Account: November 30th, 12pm - 1pm
Presenter: TBD
Mobility Community Access Partners
MCAP
Spinal Network is proud to be a part of this new and exciting group. We held our first meeting via zoom last week and it was filled with such a creative buzz. Each of the fifteen groups listed below do great things in our community individually, now try to imagine what we can do collectively.
Spinal Network's New Podcast Series
A new podcast the 5th and 20th of each month
Our first podcast became available November 5th. here is the link:

Our first guest was Jamil DeCarli who is the Workability III coordinator for the San Diego Community College District. See the full episode with video below.
Assistive Technology Loan Closet
We've begun to schedule assessments for assistive technology, this equipment is a game changer for so many. Here is a link that will show the equipment we have in our inventory as well as additional information on the program https://www.spinal-network.org/assistive-technology-loan-closet/.
You can also email Rick Hayden by clicking the button below.
United Spinal Association is celebrating their 75th Anniversary and Doing It in a Big Way
United Spinal’s year-long celebration of our 75th Anniversary will highlight compelling stories of dedicated members, advocates and disability trailblazers that have supported our vision of building an inclusive world that welcomes wheelchair users and all people with disabilities.

United Spinal Association is pleased to announce that we will be hosting our virtual 75th Anniversary Gala on November 10, 2021 at 6pm EST and we invite you to be our guest as we celebrate Building an Inclusive World!

Registration is free! Please click on the Eventbrite link here to register: https://unitedspinal75thanniversarygala.eventbrite.com

Be sure to visit our Member Prize Zone and enter to win great prizes!
Caregiver Needed, Let Us Know
We are going to try and help with this, we are launching a page on our website where you can list your need for a caregiver. We will let the career center at the various colleges/universities in the county about the page. It is our hope that the page gets noticed and that your particular needs will be met. Here is a link to the page.
It was a beautiful Saturday in May. Reilly is making silly faces while mommy wipes his green crayon suns off the walls. After his favorite lunch of hot dogs and pickles, it’s off to the store to buy a gift for an upcoming birthday party. It would be a trip that would change their lives forever.

In an instant, Reilly suffered a severe spinal cord injury, unimaginably rendering him unable to move from the shoulders down. He has currently gone from five weeks in the pediatrics ICU to the pulmonary ward to undergo extensive testing. Reilly is on a respirator, as his diaphragm will not function on its own. He is just starting to speak softly again. He can’t hug his mom, dad, and fox baby or play with his monster trucks and excavators. He celebrated his second birthday in the hospital.

It is often said that life can change in the blink of an eye. For Reilly and his parents, it certainly has.

Since we are not physicians or medical researchers, we do what we can to help address The Problem: we provide financial support to individuals and families affected by spinal cord injuries through our Rally4Reilly & Friends Wellness Grant Program.

OUR SIMPLE MISSION
To fundraise and provide support for individuals and families whose lives have been affected by a spinal cord injury, with helping hands and open hearts.

OUR GREATER VISION
To inspire fellow do-gooders and together facilitate help and hope for individuals and families affected by spinal cord injuries.

OUR CORE VALUES
Passion - The seedling of motivation that’s necessary to spread goodness.
Perseverance - The willingness to move forward against all challenges.
Comfort - The state-of-being and belonging we all deserve - especially children.
Pasadena Adaptive Sports Festival
November 20, 2021
Brookside Park
Pasadena, CA
Saturday, November 20, 2021
9 AM - 4 PM RESERVE YOUR FREE SPOT TODAY
Join us at our Adaptive Sports Festival!

This FREE, all-inclusive multi-sport event will introduce adaptive sports to the community.

Featuring Wheelchair Basketball, Quad Rugby, Handcycling, Basketball, Archery, Power Soccer, Pickle Ball, Tennis, Beep Baseball, Boxing, Boccia, Art, and a Resource Fair.

We'll have equipment for you to use, plus coaches and instructors to teach you how to play. Just register and show up!

FUN for your whole family! 

Grassroots Advocacy
Throughout this year, United Spinal's advocacy team has been pushing to increase engagement and participation in advocacy efforts from our community. Our 2021 Roll on Capitol Hill had a record number of advocates participate, we've launched new advocacy programming, and we now have more than 1,100 registered advocates across all 50 states.
 
As we enter the fourth quarter of 2021, we want to make sure that we're finishing strong with our 75th Anniversary Advocacy Challenges. These year-long challenges for our chapters and advocates feature great prizes which will be awarded in December. If you haven't participated yet, you're in luck — there's plenty of time for you to enter and win.
 
Our 75th Anniversary Advocacy Challenge is aimed at encouraging as many people as possible to sign up as a United Spinal registered advocate and to send our action alerts to their members of Congress. The categories for prizes are as follows:
  • Chapter Prize: Most Advocate Registrations by Chapter Area
  • Chapter Prize: Most Action Alerts Sent by Advocates in Chapter Area
  • Advocate Prize: Random Drawing of Registered Advocate
  • Advocate Prize: Most Action Alerts Sent by Advocate

We also have our 75th Anniversary Recognition Challenge, where we are encouraging our chapters and individual advocates to reach out to your state and local officials to ask them to formally recognize United Spinal's 75th anniversary through a resolution or proclamation. United Spinal did this at the federal level this year through a bipartisan resolution that passed in the U.S. Senate in June. So far this year, chapters and advocates in six states — Georgia, Louisiana, New Jersey, New York, Pennsylvania, and Tennessee — have done the same at the state level. We have a template for advocates to use for this purpose. The categories for prizes are as follows:
  • Chapter/Advocate Prize: State-level resolution or proclamation (state legislature or governor)
  • Chapter/Advocate Prize: Local-level resolution or proclamation (city/county government or mayor)
Let's finish this year strong as we celebrate 75 years of United Spinal! The quickest ways to participate in these challenges are to register as an advocate (if you haven't already) and to visit our Action Center to send in our action alerts.
 
Thanks for all you do,
 
Steve Lieberman
Peer Mentor Training and Program Update
from United Spinal
We will host a virtual peer mentor training in collaboration with United Spinal's Lindsey Elliott. This training will be held in either December or January depending on her availability. It will be in two parts, the first is an online course that should take about 1 hour. The second part will be live on zoom and run approximately 3 - 3.5 hours. This will not only be a valuable resource for new mentors but a great refresher course for those of us that have been trained in the past. Check future newsletters for the date and time.

United Spinal will be introducing a peer mentor newsletter in the upcoming months, if interested and you would like to be on the list to receive it, shoot me an email.
Looking for a Peer Mentor?
Do You Want to Become a Peer Mentor?
Spinal Network has eleven certified peer mentors available to meet, listen, share their experiences as well as sharing resources and services. Whether your newly injured/diagnosed or you've been wheeling this earth for a while, or maybe your a friend, family member or rehab professional, reach out, we're here for you.

Get Your Free Paralysis Resource Guide
The Paralysis Resource Guide is a one-stop handbook to help people with paralysis and their families or caregivers navigate the world of paralysis. The book is written for consumers. The topics covered include the various causes of paralysis (stroke, spinal cord injury, spina bifida, etc.) as well as various secondary conditions caused by paralysis (pain, spasticity, bladder management, etc.). Other chapters cover topics that help one live successfully with paralysis including travel, recreation and sports, home modification, signing up for federal benefits, and wheelchair selection. There are also chapters on resources for children living with paralysis, disabled veterans and caregivers.
Cure Medical Donates 10% of Sales to SCI Research
me+™ from ConvaTec Continence Care is a support program designed to help you navigate life using intermittent catheters. As a member of me+™, you have full access to several benefits:
• A team of WOC nurses and product specialists available by phone or email to answer questions and offer advice.
• Personalized product sampling helping to ensure you are using the best product for you and your cathing needs.
• The GentleCath™ Video Trainer, create your own personalized video guide with tips and advice tailored to your approach to cathing.
• me+ answers, an in-depth online resource for all your cathing questions.
• me+ community, highlighting real stories and experiences from intermittent catheter users.

Spinal Network
a chapter of United Spinal Association
 
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