My next apprehension was when I was told I was in remission. My strong connection to my medical staff was now cut off. I felt abandoned. My hospital visits were now down to only once every three months and fear and loneliness set in. But what I discovered was that I had developed a strong bond with other patients who had the same fear and I knew that with their support I could get through anything.
This is what I get out of our Support Group(s); education, awareness, treatment alternatives, fighting for new treatments, moments of celebrations, information about doctors, nurses and hospitals, moments of sadness from the loss of patients, support time when we come out of remission, joining hand-in-hand with the community at our Multiple Myeloma Marches, helping me during my own palliative care and finally, great new friends who have become family!