Easter is less than two weeks away! For the chocaholics out there, remember that it can sometimes affect an arrhythmia.
Our advice is enjoy your Easter eggs in moderation! (if you can!)
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Arrhythmia Alliance World Heart Rhythm Week
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Arrhythmia Alliance World Heart Rhythm Week will be held from 3 - 9 June. This year our focus will be
"We Hear(t) You"
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You Can Help To Develop Future Treatments
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If you have atrial fibrillation (AF) please ignore this section
We have been asked to share this survey which will be used by a company developing a potential treatment for a certain arrhythmia (not AF) and to understand the experience of people living with this condition. It is hoped with better understanding of life with this condition will help with development of new treatments.
The research is being conducted by an independent research company and Arrhythmia Alliance is highlighting this research but is not involved in the research of outcomes of this research.
All responses are entirely anonymous and confidential.
Your information will not be passed on to any third parties.
We recommend using Internet Explorer or Google Chrome for ease.
The survey should take no longer than
20 minutes
to complete.
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This Month's Fundraising Hero
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This month sees Ian from Scotland running the Virgin Money London Marathon to raise money and awareness for AF Association!
Ian has regularly been sharing his updates with us. You can read them and show him your support by visiting his page:
Thank you in advance for any support you can offer Ian.
If Ian has inspired you to run, hop, skip and jump to raise vital funds for STARS, Arrhythmia Alliance, or AF Association, please get in touch:
[email protected]
or call 01789 867517
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All three of our newsletters are now available to read online. We have also sent printed copies to those generous enough to make a donation.
For your copy, email, call 01789 867517
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Book Now For Patients Day | Sunday 6 October 2019
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Heart rhythm experts from around the world will be at The ICC, Birmingham, UK to share their knowledge and speak about up to date research.
Learn more about your condition, how you can better manage it and what treatment options are available to you at Patients Day 2019.
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STARS Patients Day 2019
In the PoTS meeting, we will be discussing popular topics such as sleep, nutrition and exercise. while in the RAS and Syncope meeting, you can hear about "managing your symptoms" and "the role of the pacemaker in syncope patients".
As always, there will also be the chance to put your questions to leading specialists and speak to other patients and share your experiences.
Dr Robert Sheldon
will be speaking in both STARS meetings. He is a Cardiac Arrhythmia Specialist and Professor of Cardiac Sciences, Medicine, and Medical Genetics at the University of Calgary. His research programme includes vasovagal syncope, aiming to understand the causes of syncope, and to develop simple, accessible, and effective approaches to its diagnosis, prognosis, and treatment.
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Arrhythmia Alliance Patients Day 2019
With four different breakout sessions, Arrhythmia Alliance Patients Day will have something for everyone! Whether you want to hear about ICDs, SVT, CPVT or you have general arrhythmia queries, this day is one not to be missed.
Each session will include an opportunity for discussion with the specialists and other patients to share your experiences and opinions.
Professor Faizel Osman
is a Consultant Cardiologist/Electrophysiologist at University Hospital Coventry and Warwickshire and has set up a fully comprehensive Arrhythmia Service, including all ablations and complex device implants/extractions. Current areas of research interest are sudden cardiac death risk assessment, AF, cardiac resynchronisation therapy (CRT) for heart failure and arrhythmias in obstructive sleep apnoea.
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AF Association Patients Day 2019
This year, you will hear discussions on topics such as heart failure, what to do when you are in permanent AF, new ablation technology, and Left Atrial Appendage Occlusion.
The specialists are looking forward to being challenged once again with your questions, and of course, you have the chance to meet other AF patients and share your experiences.
Dr Matthew Fay
is a General Practitioner from Westcliffe Medical Practice. The practice has developed into The Affinity Care, a 25 partner "superpractice" based in Bradford, providing care for a population of over 64,000. Matthew is the Chief Clinical Executive but still does regular GP sessions. He is currently a clinical advisor to STARS (the Syncope Trust), and a Trustee of the AF Association. But first and foremost, he is a family doctor.
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Read This Month's Featured Patient Story
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Last year, Gillian shared her AF journey with us. Recently, she has completed a triathlon as part of a team after recovering from an ablation, and has sent us an update!
You can read both of Gillian's stories in the links below:
If you think your story might help reassure others who are where you have been, please get in touch -
[email protected]
or call 01789 867517
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Arrhythmia Alliance
- Kings College ICD Support Group, London | 12 April
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Arrhythmia Alliance
- Gwent Defibbers Support group | 20 April
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Arrhythmia Alliance
- Medway Pacemaker Support Group | 27 April
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AF Association
- Liverpool AF Support Group | 27 April
To find out more information or to register to attend one of these groups, call
01789 867527
or email
[email protected]
HELP US TO HELP OTHERS!
If there are no support groups near you, would you consider setting one up?
We can provide all the help you need to run a successful support group.
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The Apple Watch 4 can now be used as an ECG monitor in the UK and Europe to detect atrial fibrillation by monitoring your heart rhythm.
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A smartphone device which can be used to detect serious heart conditions should be rolled out to A&E departments across the country, researchers say.
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Visit our websites to catch up on all the latest news and information!
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