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S
takeholders in
Treatment,
Advocacy,
Research and
Recovery
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This year we have seen stakeholders from across Sponsors, CRO's, Clinical Research Sites and Advocacy work together in ways never imagined. It takes progressive thinking and fearless collaboration to shape unbiased conversations. If you are reading this, you are one of those people. Let's take a look back over the last several months.
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J
oin us for our annual STARR Coalition Dinner and Meeting to be held Wednesday, November 15th from 5-9 pm at the Boca Raton Resort and Club the evening before the opening of the CNS Summit. Come casual and come prepared to lend your voice for change. It will be an exciting evening with a few suprises in store!
For more information, contact us
HERE
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Thank you to CNS Summit for opening your doors to the Coalition for the last 3 years. CNS Summit is a platform for change and a community passionate about shaping the future, with a focus on collaboration, innovation, and technology. To learn more, click
HERE
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Countdown to Launch of Project RockSTARR
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Project RockSTARR was born from discussions with many of you on ways we can empower volunteers in the clinical research process while connecting research sites with advocacy in the community. Verified Clinical Trials and Pillar Research stepped forward to help make this concept a reality. For more information press
HERE. If you are interested in participating, email
[email protected]
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The STARR Coalition recognizes a few STARR's within advocacy!
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left. Visionary CEO of Mental Health America, Paul Gionfriddo with United States Senator Al Frankin.
right. Former United States House of Representatives member, Patrick Kennedy, signs copies of his book "A Common Struggle".
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Virginia Senator and Vice Presidential candidate, Tim Kaine, speaks passionately about the impact of repealing the Affordable Care Act and ways we need to work together for mental health parity.
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The theme for this years Mental Health America's national conference was
Sex, Drugs and Rock and Roll!
Opening night, Maya Kuper & Paul McComas of the Dayna Clay Band performed words and music, taking us on a powerful journey of love, heartache and mental illness.
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STARR Coalition member, National Alliance on Mental Illness Board President and national advocate, Steve Pitman, JD, rallys NAMI supporters from around the country. This year NAMI held their convention in Washington, DC. Supporters spent time lobbying congressional members to keep focus on the policy needs for those living with mental illness.
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STARR Coalition member and NAMI National Board Secretary, Adrienne Kennedy, M.A., presents award to United States Senator John Cornyn of Texas.
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Just a few of the NAMI members meeting with congressional leaders in Washington, DC, during the NAMI National Convention in June.
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The STARR Coalition would like to congratulate one of our founders, Carlos Larrauri, R.N., B.S.N., for being elected to the NAMI National Board of Directors! You will make great change-
"Putting a face, name and personal story to serious mental illness such as Schizophrenia, humanizes and normalizes the experience for other individuals and families who live with psychosis. Sharing our stories and listening to others bring mental illness out of the darkness of shadows and into the light."
- from Carlos's nomination speech
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PharmaVOICE 100 celebrates Nikki Levy of Alkermes
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Vice President of Patient Engagement for Alkermes, Nikki Levy, was recognized for her outstanding work creating connections between her company and the community it serves.
Nikki draws on more than 20 years of experience building advocacy and patient engagement programs, creating strategic alliances, and fostering meaningful partnerships to support patients, their families, and society. She is deeply committed to making the patient engagement function impactful for the mental health and addiction community.
To read more about the many projects and initiatives she leads, check out the PharmaVOICE page
here.
Thank you, Nikki, for inspiring all of us to continue to make a difference in the lives we touch!
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SARDAA, Schizophrenia and Related Disorders Alliance of America, are leading the converstation within their area. If you are unaware with their program, it's time to familiarize yourself with the amazing work they are doing. Learn more about SARDAA
here and watch the flashmob video on Times Square below, incredible!
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Meet Hakeem Rahim. In 2012, Hakeem began speaking openly about his 17 year journey with mental illness. Since then he has testified in front of Senate, the House of Representatives, been featured in USA Today, and has shared his journey with over 50,000 college, high school, and middle school students. Through his work, he is committed to transform the stigma and shame around mental illness and to create communities of wellness, acceptance and joy. Learn more about Hakeem
here and his ground breaking college tours at
www.iamacceptance.org
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MIND GAME; The Unquiet Journey of Chamigue Holdsclaw
She was the greatest women’s basketball player the world had ever seen: seven consecutive championships from high school through college, moves and flair comparable to the best men’s players, the “female Michael Jordan.” But inside, something was not right.
Six years into her career as a pro with the Washington Mystics, Chamique Holdsclaw left the team under a cloud. She was, it turned out later, suffering from both clinical depression and the shame of her illness, hidden by a mask that she had worn for years. Two years later Holdsclaw attempted suicide by overdose. She had hit rock bottom.
Learn more about her incredible story of recovery and resilience
here.
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The STARR Coalition enjoyed spending time with friends and colleagues at the ASCP Annual Meeting in Miami!
Although the closest many of us got to the beach was the amazing view from our rooms, the time we spent discussing various projects within The STARR made our trip one to remember! Find out more information about ASCP
here.
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Did you miss the Webinars?
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STARR Coalition members partnered with Mental Health America to discuss ways to open dialogue between clinical research and advocacy. Watch the webinar below.
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Presenters:
- Sarah Schwartz, MSW, MBA, Executive Director,Mental Health America of Georgia
- Paul Jaquith, LCSW, CAP, President/CEO, Mental Health Association of Southeast Florida
- Luke Kramer, Executive Director, The STARR Coalition
- Rick Mofsen, DO, Chief Medical Officer, Evolution Research Group
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Clinedge reached out to fellow Coalition members to present on reasons research professionals must begin to reach beyond their walls to engage the community at all levels. Watch the webinar
here.
Presenters:
- Sarah Schwartz, Executive Director, Mental Health America of Georgia
- Heather Beitz, Owner, iResearch Atlanta
- Zach Mitchell, Recruitment Specialist, iResearch Atlanta
- Dondra Kinna, Recruitment Specialist, iResearch Atlanta
- Luke Kramer, Executive Director, The STARR Coalition
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HURRICANE HARVEY
HURRICANE IRMA
What can you do?
The American Red Cross has activated the Direct Deployment process to recruit new DMH and DHS volunteers who are not already Red Crossers. Volunteer recruitment information for health and mental health professionals can be found
HERE
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A big shout out to a few of our stakeholders for continuing to bring others into the fold, expanding our conversations, and being leaders within the Coalition. Thank you!
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Woody Woodaman, Synergy Research Centers
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Lori Wright,
Thievon-Wright Consulting Group
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Brian Craig, Pillar Research
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Rachel Ritchie, Young Adult Advisory Group, National Alliance for Mental Illness
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We want to say thank you to those who like and repost/retweet from our social media pages. Check out a few of our friends social media pages as well. Be sure to join and like our posts and we will highlight you here in the future!
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Woodland International Research Group NW
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National Alliance for Mental Illness New York
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Neuro-behavioral Clinical Research
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Connect with us on social media below!
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The STARR Coalition | phone: 501.944.8653 | fax: 501.224.1340 | www.thestarr.org
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