Dear TESS Supporters,
There has been an exciting flurry of activity lately at TESS Research Foundation—new families diagnosed, new grants awarded, several conferences on the horizon, and clinical trials imminent.
When my son Colton was born 8 years ago and it was clear that he had SLC13A5 Epilepsy, my brain unwittingly started creating a list of all the things that he would NEVER do: never graduate from high school, never live independently, never even dress himself, and never speak the words 'I love you mom'. The NEVERs list was long and depressing. But the impact TESS Research Foundation is making and the tangible hope we are creating is undeniable. The next mom who has a child born with SLC13A5 Epilepsy will have a shorter list of NEVERs...and a longer list of "can-do's."
I hope you will take the time to read our impact report. We are certainly grateful for all the families, donors, doctors and researchers who make our work possible. Together we are unstoppable.
Kim Lodato Nye
Founder, TESS Research Foundation