Dear TESS Supporters,
Welcome to our fashionably-late March Newsletter. I hope this update finds you doing well.
There is a book that I have read to my children a hundred times. It is called "We're going on a Bear Hunt". The family ventures into forests, rivers, and mud in search of a bear. They would prefer to go OVER the forest and UNDER the river, but in the end they have to go THROUGH it. The recurring line is:
"We can't go OVER it. We can't go UNDER it.
We've got to go THROUGH it!"
I think of these lines a lot. I wish I could somehow fly over the complications or tunnel under the sadness that SLC13A5 Epilepsy brings to my family's life. But in the end, I have to go THROUGH it. The saving grace is that I get to go through it with all of YOU! Thank you for staying with us and supporting us on our hunt for a brighter future for all families affected by SLC13A5 Epilepsy.
Read on for 5 ways to stay engaged, informed and inspired about the work TESS Research Foundation is doing.
Kim Lodato Nye
Founder, TESS Research Foundation