TRIO National 
Member E-News  
March 2020
Inspiring transplant news for :  
            
A second chance!
If you didn't complete our 1 minute survey last month,
please take 60 seconds to do it now by clicking on this image:
 
 
 
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An inspiring thought for your day: 
 
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"So what are you DOING 'in love' this March?"  
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And in this issue . . . 
  • Grace, at 3 months, needed a new heart
  • Honor the Gift campaign exciting update (calling for your ACTION)
  • New on-line tool to help find a transplant center
  • Still time: UNOS public comment is open thru Mar 24th
    (click here to link to that UNOS page)
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Sincerely,  
TRIO president
      GleasonJim@aol.com
(609) 877-4493
Read her awesome story by clicking above
3 Month old Amazing Grace gets her new heart

Story: A new heart was needed

     Grace was on the ECMO machine for about six days. Her heart was not doing well. The doctors were trying to get the infection out of her body, but it had already done too much damage.

For the next two months, Grace would get better one day and then worse the next.

She had to be intubated numerous times.

"It was just a battle," said Brittany. "We so hoped her heart would get better.".

Learn her full story
"TRIO thanks CareDx for their years of supporting TRIO
both locally and at the national level
and
for their pioneering work for the transplant patient"

Click above to learn more . . .
TRIO is urging you to take ACTION . . .
 
 Exciting news!  
We received word from Sen. Cassidy's office that the Senate has introduced the Immuno Bill by Sens. Cassidy and Durbin as the lead sponsors, and Sens. Whitehouse(D-CT), Young (R-IN), Shaheen (D-NH), and Ernst (R-IA) joining as original co-sponsors. This is a great bipartisan group of Senators!
 
"The Comprehensive Immunosuppressive Drug Coverage for Kidney Patients Act has been introduced in  
both the  
House of Representatives and NOW the Senate!"

<<  click on the image above for more >>

Finally in 2020, it's time to ensure Medicare coverage of immunosuppressive drugs for kidney transplant patients beyond the current 36 month coverage.
ACT NOW!
YOU can join the fight by clicking on the image above to join CareDx and the coalition of groups and over 8,000 others who have signed the pledge to support their Honor the Gift campaign to gain passage of this important life saving and money saving legislation.

<<< Each year, approximately 375 Medicare patients needlessly lose their donated kidney due to a lack of immunosuppressive medication coverage. >>>
New online tool helps transplant candidates find center that best matches individual patient's criteria

<< click above image for more . . . >>
A new website developed by researchers at Hennepin Healthcare Research Institute (HHRI) and the University of Minnesota (UMN) is making it easier for organ transplant candidates to choose which transplant center is right for them.
The website, transplantcentersearch.org, was developed for candidates seeking kidney, liver, heart and lung transplants. Data for liver centers is currently live. Data for other organs will soon be available.
If you haven't already provided your feedback last month or at the top of this issue,please click here to help improve our communications - takes under a minute!
Stay Connected with TRIO on-line at http://TRIOweb.org or http://TRIOwebPTC.org and: