TRIO E-News
November 25th, 2020
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Greetings!

While TRIO joins everyone else in wishing you and yours a very healthy and Happy Thanksgiving, we do so with a reminder to follow those pandemic guidelines. Most who have survived a transplant seem to have a deeper respect for life given they have been to the edge and lived to tell about it, now is no time to go lax and take risks. Listen to the science experts (and especially our transplant teams) in staying safe distant, wearing masks and only travel as necessary. We all need to live to see the day when those vaccines become available and we can enjoy our freedoms again in 2021. Meanwhile, please keep in prayer those who are fighting the virus and those families who have lost loved ones to that COVID19!
For more safety suggestions, TRIO Maryland chapter offers the following University of Maryland Medical System resource of (click on title) . . .
Note: Launch your own celebration event with a Facebook funding campaign for TRIO using this link:

Sincerely,
Jim Gleason
TRIO President
(609) 877-4493
Transplant Heart Survives Helicopter Crash
A pilot was slightly injured but a life was also saved in the aftermath of the crash of a helicopter on a rooftop hospital helipad carrying a human heart for transplant when it encountered trouble on landing at Keck Hospital of the University of Southern California in Los Angeles. The helicopter ended up on its side on the helipad and the pilot was hospitalized with minor injuries. The two people on the medical team accompanying the heart were not hurt at all and declined treatment. As for the heart, it’s unusual journey wasn’t quite over.

First responders managed to get at the organ in the wreck of the helicopter and deliver it to a member of the transplant team. That man tripped and fell while hurrying the organ to its new life. The heart hit the roof of the building before being scooped up and rushed to the operating room. Hospital spokeswoman Meg Aldrich said that despite the rough journey, the heart wasn’t hurt and was stitched into the recipient two hours after the crash and tumble. “It’s actually an amazing story,” she said.


In-home blood draw service offered by CareDx

    In response to the COVID-19 crisis, CareDx launched RemoTraC: Home-based blood draws for transplant patients. RemoTraC is available to all patients who want their transplant monitoring lab tests to be drawn from the comfort of their home by trained mobile phlebotomists. RemoTraC includes AlloSure and/or AlloMap, CareDx's surveillance tests, along with a panel of routine tests.

    Patients can sign up for RemoTraC through an easy to use webpage: www.caredx.com/remotrac.

    Once enrolled in RemoTraC, a CareDx Patient Care Manager will coordinate with your transplant center and contact you by phone to schedule an appointment. Prior to the appointment, we will mail you a test kit. A licensed mobile technician will then come to your home, take a blood sample, and deliver the sample to the lab for processing. CareDx will fully cover the cost of the mobile phlebotomist, and will ensure you pay no additional out-of-pocket expenses beyond what you typically pay for these tests.

TRIO thanks CareDx for the many ways they support our mission.
“Patient Assistance Programs vs Foundations”
Solving the Puzzle
By: Lorrinda Gray-Davis
TRIO Oklahoma President
& TRIO National Board member
January deductibles are approaching fast and many pre and post-transplant recipients go through obstacles obtaining medication at an affordable cost. This year I felt the need to go in depth and add clarification. So, let’s go.

What is the difference between Patient Assistance Programs and Foundations?

Patient Assistance Programs (PAPs are programs created by pharmaceutical and
medical supply manufacturers to help financially needy patients purchase necessary medications and supplies) Via these programs, prescription medications may be made available at no cost or at a minimal fee for individuals who do not have insurance or are under-insured. We need to redefine the definition that Patient Assistance Programs are for everyone that needs affordable medications. These are geared to help to the commercially insured.

Foundations were created to help address the needs of individuals who cannot
afford their prescription drug bills or medical costs. This includes expenses ranging
from insurance co-payments, coinsurance, premiums, or any of the various other out-of-pocket health care costs.

It is hard when you are trying to get through the matrix of insurance plans, what they cover, what they don’t cover, will they reconsider my medication to a lower tier? Wait, now I am on Medicare and I don’t have any resources! But, you do.
New website offers added decision support for kidney and liver transplant candidates searching for a transplant center

Minneapolis, Minn. – Transplant candidates face obstacles in finding a transplant program that transplants patients like them. A new online tool developed by researchers at Hennepin Healthcare Research Institute (HHRI) and the University of Minnesota (UMN) is helping to remove those barriers.

The website transplantcentersearch.org allows patients to conduct searches to find transplant centers that best match their individual criteria.
The site was developed for candidates seeking kidney, liver, heart and lung transplants. Data for liver and kidney transplant programs are currently live. Data for heart and lung transplant programs will be available in the future.

This personalized decision guide uses information about the patient’s donor type and medical profile to match factors important to the individual. It uses data from the Scientific Registry of Transplant Recipients (SRTR), a national transplant registry operated by HHRI under contract from the US Department of Health and Human Services.

$275 Research opportunity for kidney recipients



Flince Research + Design (www.flinceresearch.com) is looking for kidney transplant patients to take part in a market research project.

Participation will consist of two parts, a 45 minute worksheet and a 60 minute telephone interview. Qualifications for participation include: within 5 years since transplant and only have undergone 1 transplant in total. Participants will receive $275 upon completion of both parts of the project. Participation is strictly confidential and opinion based. No preparation is needed for the interview.
 
If you are interested in participating, contact Jason Turner at jturner@flinceresearch.com or +1 773 383 9090 and mention you saw this in the TRIO E-News. 
TRIO Advocacy
See the latest TRIO Public Policy committee report at:
TRIO Transplant Presentation Library
NEW programs added . . .



12 things UNOS is doing to get the right organ to the right patient at the right time

New technology, innovative data tools and collaborative research projects help drive continuous improvement.



Here’s how to make it even better.

(click title above to read Brian's blog post)

Another way to support TRIO: Amazon Smile!

Good news! AmazonSmile is now available in the Amazon Shopping app on iOS and Android mobile phones.
AmazonSmile customers can now support Transplant Recipients International Organization Inc in the Amazon shopping app on iOS and Android mobile phones! Simply follow these instructions to turn on AmazonSmile and start generating donations.
  1. Open the Amazon Shopping app on your device
  2. Go into the main menu of the Amazon Shopping app and tap into 'Settings'
  3. Tap 'AmazonSmile' and follow the on-screen instructions to complete the process selecting TRIO as your support organization