It's Turner Syndrome Awareness Month and things are really hoppin' here at the Turner Syndrome Society of the United States (TSSUS)!
Cindy, Deborah, and I are excited to see how many of you are sharing our social media posts, submitting your TS Stories, and encouraging each other through shares and comments on our Facebook page and groups.
Did you know that TSSUS created and started Turner Syndrome Awareness Month? Back in 2010, Natalie Brobin, who recently passed away, led a marketing committee and suggested an official Turner Syndrome Awareness Month! Since then, it has become widely-accepted across the globe and adopted by most TS organizations in the world! This is also the committee that created the trademarked TSSUS butterfly icon and created the butterfly symbol as the symbol for those with Turner syndrome!
Have you checked out the TSSUS online store recently? We've added a full line of butterfly jewelry and apparel to help you show that TS spirit. there is so much to choose from - I encourage you to have a look.
As is our custom, we are offering the Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome booklet FREE OF CHARGE in honor of TS Awareness Month for the next two weeks! This 16-page booklet is the go-to for those with TS and their families, as well as for medical practitioners. Please, please, please order yours today and read it, follow it, and share it with your medical teams. Free Guidelines will be limited to one per household, and only available to those who have not ordered a free copy in the last year.
Please do your part this TS Awareness Month and share your story and the graphic here on social media, create a Facebook fundraiser, and wear your TSSUS Butterfly Gear!
As always, let us know how we can help you! We are available for one-on-one phone support at 800-365-9944 and on social media through messenger and comments. We are here to support you and the TS community, and we love hearing from you!
Kindly,
Becky Brown
National Director of Development & Communications
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Read
"My TS Stories"
on the official TSSUS Blog!
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We are featuring new "My TS Stories" on the official TSSUS Blog every day during TS Awareness Month. We have stories from people with TS, mothers, fathers, and siblings for you to read and share.
Every story has an impact, so be sure to Share Your Story with us today,
Some helpful tips on how to write and share your story:
- Make sure your story is more than just 2 or 3 sentences long.
- Be sure to include an UNFLITERED, appropriate photo. We don't want to see you in bunny ears or puppy noses, or see a photo that is Face-Tuned beyond recognition.
We can't wait to read all about you, what you love, what your struggles and triumphs are, and what your hopes for the future might be.
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TSSUS Turner Syndrome Awareness Month |
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We've got GREAT new items in the TSSUS online store, including the official TS Awareness Month shirt and a fabulous line of butterfly-themed, affordable jewelry! Don't miss out because this stuff is selling fast! Here are just a few of the new items we've listed. |
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Order your FREE copy of the Clinical Practice Guidelines for the Care of Girls and Women with Turner Syndrome f
or a very limited time!
One copy per household.
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TSSUS
Awareness Month Shirt
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Available in short and long sleeve, and youth sizes. |
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Our calendar has been overflowing with virtual events and opportunities to both learn and socialize, many of which are free! If you haven't participated in our virtual events, you're missing out on some great interactions!
We will also be adding to our social Zoom group meetings by adding generational groups - like 20-somethings, 30-somethings, and 40-somethings, in addition to our Golden Butterflies 55+ group. If you would like to participate in any of these groups, let us know and keep an eye on the TSSUS Events Calendar.
Here are our upcoming events you can participate in. Pre-registration is required for all virtual events.
Saturday, February 19, 2022
12:00pm-1:00pm CST
Virtual opportunity for those that want to connect with each other and walk away with lifelong friendships!
Saturday, February 19, 2022
2:00pm-3:00pm CST
We would love to see your pet(s). We can't wait to learn your pets name, where you got your pet from, and what is special about your pet. You can dress them up or keep them in their original birthday suit.
Sunday, February 20, 2022
2:00pm-3:00pm CST
This social group is for butterflies )those with TS) aged 55+. Get together via Zoom and make some new friends or connect with old (not that kind of old) ones.
Sunday, February 27, 2022
2:00pm-3:00pm CST
We hope you will join us! This is an opportunity for you to meet others in the local area. TSSUS board member Erica Melman is the local TSSUS Support Group leader and she would love to meet you or reconnect with you during this opportunity.
Saturday, March 12, 2022
2:00pm-3:00pm CST
Due to the ongoing Covid 19 Pandemic, so many of us are feeling isolated, anxious, scared and alone not being able to see family and friends as much as we would like to. Come join others during this social time of sharing how you are feeling during these time.
This is a 2 part virtual session with Mara Gittess. She will be listening in to hear these concerns and struggles to help offer support and guidance on the next call scheduled for 319.
Mara Gittess, LPC., is a woman with TS and has been in private counseling practice for more than fifteen years. She works with adults, children, adolescents, and families from diverse backgrounds. Her experience includes working with clients who have depression, anxiety, ADHD, bipolar disorder, and who have various behavior problems and learning disabilities, among other things. Mara enjoys using her professional skills at the National TSSUS Turner Syndrome Conferences, and communing with the TS community.
Saturday, March 19, 2022
2:00pm-3:00pm CST
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Create a Facebook Fundraiser for TS Awareness Month! |
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Did you know that you can set up a Facebook fundraiser to support the Turner Syndrome Society of the United States in just a few clicks? This is a great way to invite your family and online friends to support TSSUS with social fundraising.
Our goal is to have 200 people participate - will you be one of them?
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TSSUS TS Awareness Month Info-Graphics to Share |
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Please feel free to share these TSSUS info-graphics on your social media and with your friends and family.
Let's raise awareness of Turner syndrome in hopes that we may encourage testing and earlier diagnosis, as well as in increased understanding of the condition.
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Update Your Facebook Profile Cover Image |
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Read LOTS of TS Stories on our Facebook page, and stay up-to-the-minute on what's happening! |
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So far, TS Awareness Month at TSSUS has been a whirlwind of positive, uplifting interactions. Our hope is that you learn a little more about yourselves and each other by sharing your stories, and that all of our combined efforts help someone get the diagnosis they may need.
We are so grateful for each and every one of you! Thank you for everything you're doing to help.
Please take a moment to consider joining the TSSUS Butterfly Society as a monthly donor. Our work depends on the financial support of the very community we serve.
All the best!
Becky Brown, National Director of Development & Communications
Turner Syndrome Society of the United States
Toll Free: 800.365.9944 Mobile: 832.465.9388
Email: becky@turnersyndrome.org
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