Q: How can you drive research toward a cure for LGMD2A/R1?

A: Take the C3 LGMD Awareness Day Challenge!

September is Muscular Dystrophy Awareness Month, and the 10th Annual Global LGMD Awareness Day will be celebrated on Monday, September 30. Coalition to Cure Calpain 3 (C3) is challenging YOU to join us in driving research toward a cure for LGMD2A/R1 (Calpainopathy).


If you are reading this, chances are that you or someone you care about is living with this debilitating muscle disease. But we can't move toward a cure without your help. Between now and September 30, let's demonstrate to the scientific community that the Calpainopathy community is engaged and active!

We are often asked, "How can I help?" The C3 LGMD Awareness Day Challenge challenges you to take 1, 2, or 3 of the following steps - this month - to help drive research toward a cure:

1. Enroll in a Natural History/Clinical Endpoints Study

Clinical trials cannot move forward without the critical data gleaned from these types of studies. There are multiple studies to choose from, in numerous locations, and with various inclusion criteria (including some with space for non-ambulatory participants).

LEARN MORE

2. Join the LGMD2A/Calpainopathy Registry, a C3 initiative, and Commit to Updating Your Surveys Annually

The purpose of the LGMD2A/Calpainopathy Registry is to bring the Calpainopathy community together and collect patient data that is an essential requirement for policy makers, academic researchers, and therapeutics companies to advance treatments for the disease.

JOIN NOW

3. Donate

To be blunt, research is expensive. C3 has awarded over $2.5 million in grants to support high quality research focused solely on Calpainopathy. Help us continue our commitment to invest in the scientific community dedicated to our cause to drive research towards a cure. As a community working together, we are "overcoming weakness with strength."

GIVE NOW
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