WHAT'S HAPPENING IN TEXAS |
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- Paws for a Cure - Online Pet Costume Contest
- Support Groups are online and available to everyone
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Remembering Edna Mackey, our Texas Office Manager
- Scleroderma Education - Virtual University Webinars
- Virtual Stepping Out through December
- Become a Member ($25 Annually) or a Sustaining Donor
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YOUR PET WANTS A CURE TOO |
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PAWS FOR A CURE
Online Pet Costume Photo Contest
Show off your Pet - Raise Awareness - FUNdraise!
As easy as 1, 2 ...
- Post a pic of your pet in costume (costume optional) for $5 registration by October 31
- Ask for VOTES (email, social media...) for $1 per vote. Voting ends November 10
$100 gift card for pet with the most votes!
Thank you to our angel donor for the gift card!
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GOT SCLERODERMA?
WE DO TOO!
YOU'RE NOT ALONE!
JOIN PATIENTS, FAMILIES, & FRIENDS ONLINE
AT ANY OF THESE GROUPS
Upcoming meetings on Zoom:
Wednesday, Nov 4, 6:30 pm CST (5:30 pm MST) - Texas Meet-up hosted by Houston social and discussion
Meeting ID: 898 8021 2045
Sunday, Nov 8, 2:00 pm CST - Hosted by DFW
Guest Lori Pierce leads a Show and Tell and invites all attendees to bring their favorite items they use to help adapt and assist with daily living
Meeting ID: 852 9633 5087. Passcode: 115636
Saturday, Dec 5, 10:30 am MST (11:30 am CST) - Hosted by El Paso
Virtual Year-End Holiday Meeting and discussion of next year's speakers, informal meetings, etc.
Zoom link to be announced
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We are remembering Edna Mackey, who served as our Texas Bluebonnet Chapter Office Manager from January 2019 through September 2020,
Edna was a faithful participant in the Houston Stepping Out events for many years in support of her sister, Peggy Brown. Edna is famous for the Banana Nut Bread that she made every year for the Houston Stepping Out events to donations to the Scleroderma Foundation.
Edna's sister Peggy is a scleroderma patient. Peggy served in many roles on the Texas Bluebonnet Chapter Board of Directors, including Chapter President. The same year Peggy retired from the board, Edna continued to show her support by becoming the TBC Office Manager.
Edna's HOPE RAISING page is a fitting memorial to her years of volunteering. Peggy and Edna's family requested any donatios be made on Edna's Hope Raising page to go the Scleroderma Foundation Texas Bluebonnet Chapter to support patient education, awareness of the disease and research into a cure.
As a special gift to donors from Edna's family, Edna very famous Banana Bread Recipe is posted on her HOPE RAISING page.
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SCLERODERMA VIRTUAL UNIVERSITY WEBINAR AND VIDEOS |
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Join Live Webinars Online
October 28, 3 - 4 p.m. Eastern (2 Central, 1 Mountain, 12 Pacific)
Making Decisions When It Matters Most: Conversations about Health Care Proxy, Five Wishes and More!
With Mary Crowe, L.I.C.S.W., A.C.H.P.-S.W., C.D.S., Care Dimensions
Join us for this program to discuss the importance of advance care planning and making one’s health care wishes known through use of "Five Wishes" and other planning tools.
Video Recordings of Past Webinars
Coping with Both a Pandemic and Scleroderma
by Lee Shapiro, M.D., Scleroderma Center at Albany Medical College; and Steffens Scleroderma Foundation. Originally presented October 21, Dr. Shapiro discusses the impact of COVID-19on your health and healthcare and the adjustments that you can make. Part of the Scleroderma Virtual University patient education fall series.
Learning to Love Our Friend—The Gut
by Lesley Ann Saketkoo, M.D., M.P.H., of Tulane University School of Medicine.
Gentle Yoga & Yogic Breathing for Scleroderma Symptom Management
by Sundar Balasubramanian, Ph.D., C.-I.A.Y.T., Medical University of South Carolina.
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VIRTUAL STEPPING OUT
OPEN THROUGH YEAR END
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Texas Stepping Out events, are usually in April through June, but since they are Virtual events this year anyone can participate, anywhere, any way and at anytime.
WALKING * RUNNING * SHOOTING BASKETS * VIDEO GAMING * HAVE FUN!
These events not only increase scleroderma awareness, they fund the chapter's programs and three-fold mission of support, education and research.
To register or donate, simply click on either Stepping Out event below, follow the steps for registration or make a donation, and then invite friends and family to join your virtual team (or invite others to donate), and continue to fundraise through December 31. It's all tax-deductible!
Register for either event and stay safe to FUNdraise!
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ANNUAL MEMBERSHIP
& DONATIONS
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We need your help to continue to offer patient support and education, awareness of the disease, and research.
Our Texas board of directors, support group leaders, and Stepping Out teams are all scleroderma patients and loved ones who volunteer their time.
We have small administrative expenses to run an office, send brochures, answer patient questions, raise awareness, advocate for patients, and provide education events, but most of all we want to cure this disease and research is the answer. Donations provide all for all these and research.
The Scleroderma Foundation was awarded the Guidestar Gold Seal of Transparency for 2020. Donations are tax-deductible.
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BOARD OF DIRECTORS & COMMITTEES |
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Executive Committee
- Diane Lee, Chapter President, Newsletter & Website & Education Chair
- Misti Chapman, Vice President, Social Media Chair and Support Group Co-chair
- Jason Delancy, Treasurer, Budget/Finance & Nominations/Elections Committee Chair
- Sarah Dodson, Secretary, Donor Development Committee Chair
Board Directors
- Jacob Davila, Awareness, Advocacy & Juvenile Committee Chair & Support Group Co-chair
- Amanda Cobb, Fundraising Chair (Term began July 2020)
- Stacy Graff, Fundraising and Juvenile (Term began July 2020)
Other Committee Chairs (non-board members)
- Emily Woods, Medical Advisory Board Chair
- Mandy Montane, Grants Committee Chair
Houston Office
- Open Position, Office Manager & Membership
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110 Cypress Station Drive, Suite 117
Houston, TX 77090
(281) 880-4992
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