A Simple Thank You is Not Enough...
Dear friends and family, 
 
A simple thank you is not enough to express our gratitude. Your support has allowed research to move forward. We faced 2018 in fear and guarded hope. Now, we look forward to 2019 with clinical trials planned to allow Charleston and children like him a chance for a normal life. But our work is not done until every child receives a treatment and Batten disease is cured. 
 
We wish you a Merry Christmas and Holiday season. Thank you for your continued support. 
 
Mike, Jo, Maximillian, Charleston, Augustus, Leuthar and Henryk 
 
Thank you for making 2018 a year of HOPE!

Total Donations
$ 62,298
Our Story
"We thought nothing bad could ever happen to us again, simply because nothing is as heartbreaking as the death of one’s own child."

- Jo & Mike Klein, Parents
Six years after unexpectedly losing their three year old, Max, to an unrelated condition, Jo and Mike Klein learned the devastating news that their second oldest son, Charleston, has juvenile Batten disease. Learn more about the Klein family by visiting  bindupbatten.org or follow us social media.

Building Hope
When George Macsay, Charlie's great-grandpa, learned of his great-grandson's disease, he saw an opportunity to combine his two passions in life - supporting his family and building birdhouses. George, an avid birdhouse carpenter, regularly builds and sells one-of-kind birdhouses with all sales supporting Bind Up Batten and research into treatments and cures for Batten disease.
The Road to Success is Paved with Kindness
General Donations

Thank you to all those who supported our family and Bind Up Batten with your time, money, and love. A viable treatment is within grasp thanks to your efforts and generosity.
+ $27,871
"Jo you are an amazing mother and seeing all you do for your family is breathtaking. I will continue to donate as I can, keep posting and making everyone aware"

- Anne Bomkamp

"Supporting the Klein family - hoping to make a difference in finding a cure."

- Samantha Benson
Inspire 5K Run

The first annual Inspire Run 5K took place in Ann Arbor, MI with the goal of raising research funds to combat Batten disease. Thank you to all of the sponsors and runners (virutal and live) who participated to make this event a success.
+ $4,986
Batten Bazaar

Friends hosted a public fundraising bazaar in support of their buddy, Charleston Klein. Families were invited to Aaron's Reliable Art Gallery for food and drinks with music, face and body painting, raffles, and a silent auction.
+ $617
Batten Up!

Charleston Klein's great uncle was a member of the 1968 AA Championship baseball team at Wilson Freight in Cincinnati, OH. After hearing the Klein's story the team pooled together donations in support of Bind Up Batten!
+ $1,760
Cake Pop Fundraiser

Eight moms and one grandma worked to make over 700 cake pops and cake balls to support Charles! Thank you to everyone who visited us at Charle's school and Mike’s work to purchased a treat and show their support.
+ 1,755
Golf to Bind
Up Batten

The first annual Golf to Bind Up Batten took place this summer in Waterville, OH to further our mission of eradicating this devastating disease through research and awareness.
+ 10,045
Party with a Purpose

Friends of Bind Up Batten gathered in Seville, OH for a "Party with a Purpose". Family and friends participated in a fun-filled day of outdoor excitement including camping, hiking, and water activities.
+ $4,415
Firefighters Charity Golf Outing

Thank you to our brave Jackson, MI Firefighters, who not only work daily to save others, but who took the time to fundraise on behalf of Bind Up Batten.
+ $1,000
Ventura's Fundraiser

In support of Bind Up Batten, Ventura's Mexican Restaurant in Toledo, OH donated a portion of their food sales to support research. Thank you for for your support and generosity.
+ $1,363
St. Patrick's Church Lunch

Charleston's grandmother, Cathy Tippenhauer, hosted a church fundraiser at her local parish in Grand Rapids, OH. Thank you to our partners in Michigan and Ohio for your support.
+ $5,436
Bind Up Batten Birthday Bash

To celebrate their birthdays, Kate Votava and Craig Hamilton asked for donations in lieu of gifts to support ongoing Batten disease research. Thank you to our good friends from Chicago, IL!
+ $1,300
Boston Strong
for Batten

The Boston Marathon is one of the most highly anticipated running events in the world, and Adrienne Kersey braved the chilly and wet conditions earlier this month in honor of Charles. Thank you friend.
+ $1,750
"I am dedicating this race, the 2018 Indianapolis Marathon and future races to fighting Batten disease to inspire hope for Charleston, the Klein family and every family affected by this disease."

- Adrienne Kersey
Save the Date!
Batten Bash - March 1, 2019
Beat the winter blues and join us at Cascade Manor for a fun evening to Support Bind Up Batten. Enjoy hors d’oeuvres, dessert bar, dancing, silent auction, a raffle, cash bar, and fun!