September 18-19, 2013

Your hopes for FH in 5 years...
Wish Tree Messages:
"My wish is that every patient with FH be diagnosed and treated! In 5 years, with this Foundation, I believe we can move from our current level to 60%" 

"More than 5000 patients in the FH Registry" 

"Standard genetic screening that is reimbursed via ICD-10 for all teens 16 and older" 

"25 manuscripts published from the CASCADE FH Registry within next 3-8 years"

"FH becomes a household name, like cancer, so that more people can be aware, get screened, and help their families"

"Comprehensive interdisciplinary research program aimed to improve the lives of those with FH"

"Routine family screening for FH in patients with hypercholesterolemia"

"I hope for a time (soon) when patients can be assured early diagnosis despite their age/gender and have access to several good treatment options"

"Patients are assured early diagnosis despite their age and gender"
"Pediatricians ask for a Cardiovascular family  history at child's 10 year old well visit"

Familial Hypercholesterolemia Summit 2013
Awareness to Action

Dear FH Summit Participant,


We want to thank you for being an integral part of the first-ever global Familial Hypercholesterolemia Summit. Each of you were invited because of your ability to greatly impact how FH is diagnosed and treated here in the United States and across the world.   


We at the FH Foundation hope that this exciting event will serve as a catalyst for the work that lies ahead in addressing the current gaps in care for those living with familial hypercholesterolemia. We have begun drafting the white paper that will be published from this incredible gathering of thought leaders. We will be circulating this document early next year.


For those of you in the United States, we hope you will encourage your patients to join the CASCADE FH Registry at


For further information on the CASCADE FH Registry, please click here to download a brief excerpt of Dr. Josh Knowles' slides for your reference.


This is truly an exciting time for those committed to the management of FH and for those of us living with FH. Thank you again for your invaluable expertise and support.






Join our 
FH Specialist Referral Network
Do you treat patients with 
Familial Hypercholesterolemia?

The FH Foundation website has 3,000+ visitors every month.  We receive multiple calls and emails on a weekly basis requesting assistance in finding the right medical team for those with FH. 


There is no cost associated with joining our FH Specialist Referral Network.  Simply click on the link below to complete a provider profile and authorize permission to post your practice information.  Since this will be a resource for patients, we ask that only those who are actively treating patients sign up.



Sign up to be an FH Specialist on our FH Specialist Referral Network!


The patient portal of the

is live!

Please encourage your patients to join today and become part of the solution. 
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