Welcome to the November 2019 edition of our nbmtLINK
We are so thankful for all of you.
We wish you a wonderful Thanksgiving. We also salute our caregivers this month. Where would we be without the incredible caregivers we all know and love?
And I thank again our esteemed Link Partners, listed at the bottom of this newsletter. Your annual, constant support makes an incredible difference in all we do. If your center is not listed below, please make sure they know who we are and what we do, and how to get more involved. It takes a village.
Need a gift idea? We have blank notecards and our tribute cards, available
for gift giving.

 Meet Amanda Ferraro, our Guest Blogger on
Cancer, Relapse and

Imagine putting your child to sleep with a smile on your face; but the reality is you are searching for a
breath of air.

That was me on May 16, 2017. It was the night I went to the emergency room thinking something was wrong with my heart, but in reality, I had cancer. With these three small words, my life literally changed. Me? Cancer? 

Cancer Fatigue:
Getting through the Holidays.

It's not too late to register for this popular, timely one.

Did you know that fatigue is the most common symptom associated with cancer survivorship?  Many patients do not feel comfortable bringing it up with their doctors. It is under-reported, under-diagnosed and under-treated, affecting quality of life. Tis’ the season to offer support and coping strategies. Our speaker, Christina Ferraro, MSN,CNP, BMTCN, of the Cleveland Clinic Blood & Marrow Transplant Program will offer her professional wisdom and offer her best tips for surviving the holidays. As well, Spin Zucker will share his wonderful patient perspective.

To register for this Lunch & Learn, please click below on the link. If you have any technical issues related to registering, please contact peggyburkhard@nbmtlink.org or call (248) 770-5172.The call in information is contained in the form you use to register. Note: YOU call in to participate. (We do not call you.)

Marrow Masters

We are hard at work on our next season called Busting Marrow Myths, to be launched early next week.
In the meantime, check out our recent inaugural podcast series focused on educating patients, caregivers and health care professionals regarding Chronic Graft Versus Host Disease (cGVHD).

cGVHD Series Sponsored by Incyte Corporation

Want to show your support of the nbmtLINK and get cozy in some great new apparel?
Wearables worth wearing!

Check out Cloz Talk!

A portion of all proceeds support nbmtLINK.

Do you Have an Upcoming
Birthday or
Transplant Anniversary?

Want to support our efforts to help other patients and caregivers navigate this journey?

Airbnb’s Open Homes Program

There is still time to check this out but the clock is ticking.

This unique program, offers medical patients and their caregivers free housing when they travel for treatment. Thanks to the generous community of Open Homes hosts, over 35,000 people have found temporary housing through this program.

Too often, the cost of travel and accommodations can be a barrier to receiving life-saving treatment. Recently, our friends at Bone Marrow & Cancer Foundation and Airbnb Open Homes partnered to help people traveling to their center for medical care. That’s why we’re reaching out. We wanted to know if you can offer a few nights of free housing to families and caregivers through the Open Homes platform.

“All I could do was cry tears of thankfulness! It took a lot of stress away from an already stressful situation. For my radiation treatment Open Homes was definitely a big part of my village, because it definitely took a village! My husband has used all of his time off for all of my surgeries and treatments, so having this financial burden lifted from us was amazing. I don’t know what we would have done if it wasn’t for this program. -BMCF guest

“I was anxious, because I’d never offered up a home to a stranger. But when I opened the door and saw Melissa, I knew in a second that I was absolutely doing the right thing.” -Open Homes host
How We Help Others!
We are a phone call away for patients and their loved ones. From one on one peer support to scheduled call series and webinars, we are ready to ease your burden.
Patients, caregivers and health care professionals are amongst those we aim to help through our valued resource books, programs and one on one calls.
We simply cannot do it without the support of corporations, foundations and individuals willing to make a difference in the lives of others.
We Invite You to Become an nbmtLINK Partner!
Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886. Want a free bookmark which lists our many Link Partners? Let us know and we will send you one!

American Society for Transplantation and Cellular Therapy (ASTCT)
Barbara Ann Karmanos Cancer Institute
Blood and Marrow Transplant Program at Northside Hospital
Blood & Marrow Transplant Program, The Sidney Kimmel Cancer Center at Thomas Jefferson University
Center for International Blood & Marrow Transplant Research (CIBMTR)
City of Hope 
Dana-Farber/Brigham and Women's Cancer Center
Duke Adult Blood & Marrow Transplant Program, Duke Cancer Institute
Froedtert & the Medical College of Wisconsin health network
Henry Ford Cancer Institute Stem Cell Transplant Program
Incyte Corporation
Memorial Sloan Kettering Cancer Center
Meredith A. Cowden Foundation
Nebraska Medicine
Oregon Health & Science University Knight Cancer Institute
Roswell Park Cancer Institute
Seattle Cancer Care Alliance
Siteman Cancer Center at Barnes-Jewish Hospital/Washington University
School of Medicine 
Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center
Spectrum Health Cancer Center
The Leukemia & Lymphoma Society
University Hospitals Seidman Cancer Center
UPMC Hillman Cancer Center
Vanderbilt Ingram Cancer Center
Thank your for being a friend of the nbmtLINK. We simply could not do this without you. If you can support our efforts at this time, we thank you in advance. Every dollar helps..

Peggy Burkhard
Peggy Burkhard
Executive Director
(248) 358-1886
National Bone Marrow Transplant Link