Registration for our FREE virtual 2026 PKD Summit is now open!

2026 PKD Summit

November 4–5, 2026 | Free virtual learning event

If you've joined us for a webinar, roundtable or PKD Mind Matters conversation, you know how valuable it can be to hear from experts who understand PKD, and get answers to questions that matter in your everyday life.

This November, we're bringing together healthcare professionals, researchers and community organizations for seven free sessions that explore living with PKD today, and the possibilities ahead.

From new treatments being studied for ADPKD to practical nutrition advice, mental health, family planning, and preparing for dialysis or transplant, there's something for people at every stage of PKD.

Choose the sessions that matter to you! Register for one, several or all seven. Each session has its own registration link.

Wed 4 November

12pm Eastern Time

Learn about programs and financial assistance available to eligible Canadian and US families exploring ways to avoid passing PKD on to their children, including IVF with genetic testing (PGT-M).

Presenters: Kevin Schnurr and Melinna Sanchez from PKD-Free Alliance, plus a genetic counsellor

1pm Eastern Time

Waiting for a kidney transplant can bring fear, uncertainty and a sense of having little control.

Explore the emotional challenges of preparing for transplant, and ways to support your mental health through the process.

Presenter: Joy Friedman, Registered Psychotherapist

2pm Eastern Time

What new treatments might be on the horizon?

Learn about emerging therapies being studied beyond tolvaptan, and what these developments could mean for people living with ADPKD.

Presenter: Chris Chen, PhD, from the PKD Foundation (U.S.)

Thu 5 November

12pm Eastern Time

Does eating for kidney health really mean giving up all your favourite foods?

Learn what matters most for PKD nutrition, and how recommendations can change depending on your stage of kidney disease and lab results.

Presenter: Emily Campbell, Registered Dietitian and Certified Diabetes Educator

1pm Eastern Time

PKD affects more than your kidneys. Explore what research tells us about how chronic illness shapes emotional well-being, relationships, identity, and everyday life.

Presenter: Koen Luyckx, PhD

2pm Eastern Time

Not sure where to find the PKD information you need?

Take a "choose your own adventure" tour of our website, My PKD community, YouTube videos, and practical resources for every stage of PKD.

Presenter: Michelle Lynne Goodfellow, PKD Foundation of Canada

3pm Eastern Time

When should you begin planning for dialysis or transplant? What do your kidney function results mean?

Learn how your nephrologist approaches these decisions and what questions to ask as your PKD progresses.

Presenter: Dr. Mike Bevilacqua, nephrologist

If you appreciate free learning events like the PKD Summit, please consider making a donation today.

Working for a cure,

Your friends at the PKD Foundation of Canada

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