We are one month away from our 21st annual Walk to Defeat ALS® and we can't do it without you. As the #1 funding source of local programs and services to the ALS community, The Walk to Defeat ALS® means the world to the families who rely on the critical services provided by The ALS Association Greater Sacramento Chapter.

By registering your team to Walk with us on October 10th at Elk Grove Regional Park, you are helping provide a lifeline to families who are impacted by ALS across 24 Northern California counties.

You are shining a light on this devastating disease and amplifying the voices of all those impacted, while helping us fulfill our vision of a world without ALS.

The ALS Association Greater Sacramento Chapter cannot provide equipment, support, multidisciplinary care, in-home evaluations, research funding, advocacy work, and much more for those we serve without you. Please help make this all possible by bringing together your family and friends for the 2021 Walk to Defeat ALS®.


Dr. Jeffrey Rothstein and Dr. Alyssa Coyne recently joined our hosts on Connecting ALS to discuss their recent publication of research identifying a cellular defect common in ALS and what it means for research into the disease going forward.
Making plans to deal with the physical impact of ALS can help ease the burdens faced by people living with the disease and their caregivers. From home modifications to assistive technology, there are more options than ever before to help you adapt your living environment to meet your changing needs.
Frontotemporal degeneration or frontotemporal dementia (FTD) refers to a group of disorders that causes progressive damage to the temporal and frontal lobes of the brain associated with personality, behavior, and language. Loss of function in this area of the brain can lead to impulsive behavior and speech difficulties. An ALS diagnosis is a devastating diagnosis in and of itself, but to learn your loved one has FTD as well can make it even more challenging to comprehend.
Recently, we caught up with Angel Preece, registered nurse and clinic coordinator at The Neuromuscular Center at Hospital for Special Care, ALS Center of Excellence, in New Britain, Connecticut and she shared what it is typically like to visit their clinic, interact with her team, and receive collaborative care from numerous clinicians during one appointment.
The physical impact of living with ALS presents multiple challenges for those diagnosed and their families as the disease progresses. With the help of innovative technologies, some facilities around the country are finding creative ways to do whatever it takes to make ALS a livable disease.

As we continue to do whatever it takes to make ALS a livable disease, we are sharing some of the many resources we have available for the ALS community to help educate, inform, and guide you through the ALS journey.
“How should I live my life?" Sadly, I don't have an answer to this question, only you can answer this question for your life, but I do have five points which may help you.
We recently spoke with Nishal to learn more about him and his unique project focused on providing an assistive communication device for people with severe speech and motor impairment due to ALS using an intracortical Brain Computer Interface (iBCI).
E-Newsletters For The ALS Community

The ALS community is always moving forward. Stay up-to-date with the latest research and care news by signing up for our NEW monthly e-newsletters, Research Matters and Care Matters.

ALS researchers around the world are working tirelessly in the search for treatments and a cure. Research Matters will include the latest updates.
The ALS Association works to empower those impacted by ALS to live their lives to the fullest. Stay up-to-date with the latest news and stories about ALS care by subscribing to Care Matters

PODCAST EPISODES

Identifying an Earlier Domino in Cellular Breakdown Connected to ALS
Recorded on August 26, 2021

Jessica and Jeremy are joined by Dr. Jeffrey Rothstein and Dr. Alyssa Coyne to discuss their recent publication of research identifying a cellular defect common in ALS and what it means for research into the disease going forward
Optimizing Care Through A New Partnership With VA
Recorded on August 19, 2021

Jessica and Jeremy are joined by Lori Banker-Horner to discuss a new partnership with the U.S. Department of Veterans Affairs to expand access to multidisciplinary care, and the work being done to optimize care.
Living With ALS When A Natural Disaster Hits [Replay]
Recorded on August 12, 2021

We are joined by Donnie Graham and Jan Steinbock, who tell us how they are facing wildfires and a global pandemic with ALS.
Taking the Fight Against ALS to the Halls of Congress
Recorded on August 5, 2021

Jeremy and Jessica are joined by Dr. Neil Thakur and Abram Bieliauskas to reflect on a recent congressional subcommittee hearing focused on advancing treatments and cures for neurodegenerative diseases and where the fight goes from here.
Learning Opportunities
Eligibility and Enrollment into Medicare, Medicaid, and other Insurance
Mon, Sept 20, 2021
2:00 p.m. EST