Program DraftProgram Draft
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Tim Hornbecker
Interim Executive Director, The Arc California |
THE WEEK AHEAD
Update on the Executive Director Search
The Arc California Search Committee received applicants for the Executive Director position from not only the Eastern and Midwestern states, but also the UK. The top 5 very qualified candidates were interviewed, and a second interview is taking place this week. As I've previously mentioned, the Search Committee consists of Board Executive Committee members from Northern and Southern California, a local chapter Executive Director, a self-advocate, sibling and family members, while making sure diversity is represented. We hope to announce a new Executive Director by the end of the week to tentatively start March 1st or March 15th. So stay tuned!
A reminder of the tribute to Tony Anderson and a farewell from The Arc California and UCP will be held the Monday evening of the Public Policy Conference, March 27, from 6:00 - 10:00 PM.
Capitol Briefing Day
Senator Jim Beall hosted an overview of California's developmental disabilities service system last Wednesday at the Capitol. The sponsors were Association of Regional Center Agencies, The Arc and United Cerebral Palsy of California, California Disability Services Association, People First California, the State Council of Developmental Disabilities, Disability Rights California, California Disability Community Action Network, and the Department of Developmental Services. Over 30 representatives from legislator's offices attended. Newly elected Senator Josh Newman representing the 29th District shared his questions and showed his very genuine concern. Senator Jim Beall graciously acknowledged last year's increase of 500 million new dollars (including the Federal match) in funding, but explained that over 1 Billion dollars had been cut from the DD system over the last 10 years. The situation was so serious this last year people with disabilities threatened to tie themselves to the Bear in front of the Governor's office. This year is just as serious said Beall, "people with developmental disabilities are going to die!" I emphasized that same very point in my presentation. One of our very incredible clients from a local chapter of The Arc really needed 1 to 1 staff support. We were only able to provide a 1:3 ratio in our licensed program. No 1:1 supports were approved and she died at home 2 weeks later. That should never happen again, and legislators listened intently. The Arc California's board president elect Betsy Katz shared her perspectives
as a parent of an adult son with developmental disabilities.
Public Policy Conference March 26-28, 2017
REGISTER NOW! The Arc/UCP CaliforniaCollaboration presents
10th Annual Developmental Disabilities Public Policy Conference March 26-28th.
This is the premiere Annual Public Policy Conference for California focusing on all things impacting the developmental disabilities community. Each year we work hard to bring diverse relevant topics that have current or future public policy implications for our community. Examples of topics include:
Lanterman Act and how to navigate the IPP process, California developmental services budget policy issues, federal policy issues with a NEW Congress & under a NEW Administration, SSI & affordable and accessible housing, In Home Support Services (IHSS), Supported Decision-Making, ABLE ACT Implementation, addressing DIVERSITY and Building Community, health advocacy, managed care, direct support professionals, RATE RESTRUCTURING, The CA Blueprint on Employment, employment supports and services, LGBTQ disability community challenges, California's Self-Determination Program, the Home and Community Based Services new rules, and so much more.
It's an important event for self-advocates, family members, community service providers, direct support professionals, regional center professionals, and policymakers from all levels of decision-making.
Here's a link to our program draft:
Program Draft
DEADLINE FOR DISCOUNT HOTEL RATE is FEBRUARY 24, 2017
Here is your booking link for The Holiday Inn, Sacramento for March 23-28, 2017:
10th Annual Developmental Disabilities Conference
For anyone that prefers to call in to
(
916)446-0100
, the group code is simply A10. On-line bookers should use the calendar icon to select Check In and Check Out dates before clicking on Check Availability to select available accommodations.
Calendar:
Monday February 6, 2017
Impact the Engagement of Individuals with Intellectual and Developmental Disabilities
Speakers: Denyse Curtright, Work Services Section, Chief, Department of Developmental Services and Amy Westling, Associate Director, Association of Regional Center Agencies
The Tarjan Center at UCLA invites you to attend this webinar, 2:00-3:30 PM PT
Local Self-Determination Advisory Committee, SCDD
RCEB Concord Office, 1230 Willow Pass Road, Suite 300, Concord, CA
7:00 PM to 8:30 PM
Strategies to Protect Children from Sexual Abuse
1625 West Texas Street, Suite 165, Fairfield, CA
6:30 PM to 8:30 PM
Tuesday February 7, 2017
IEP Complaints and Due Process
Selma Olinder Elementary School, 8900 East William Street, San Jose, CA
2:00 PM to 3:00 PM
Wednesday February 8, 2017
Local Self-Determination Advisory Committee, SCDD
HRC, 21231 Hawthorne Blvd., Torrance, CA
6:00 PM to 8:00 PM
A Rational Approach to Use of Psychotropic Medications for Persons with IDD
10:00-11:00 PM PST
Stephen Ruedrich, MD
ANCOR/NADD Webinar
Thursday February 9, 2017
Equity On The Mall 10:00 AM - 2:00 PM
Speak Up! The Valley Needs Your Voice!
Expenditure Data Stakeholder Meeting
Exceptional Parents Unlimited
4440 N. First Street, Fresno, CA
9:00 AM to 12:00 PM
Friday February 10, 2017
Lanterman Coalition Meeting 1:00 - 3:00 PM
The Arc of California
1225 8th Street, Sacramento, CA
Saturday February 11, 2017
Special Olympics 2017 Sacramento Polar Plunge
Sacramento State Aquatic Center
10 AM - Registration Opens, food is available and pre-Plunge games start
11:15 AM - Opening Ceremonies and Fundraising Awards
Noon - Polar Plunge
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THE ARC UNITED CEREBRAL PALSY CALIFORNIA COLLABORATION: Public Policy Reports
We and the other developmental disability groups started our Capitol advocacy last week for the 2017-18 State Budget.
Our big success last year is proving an obstacle of sorts this year, with many legislators and staff thinking they took care of all our budget problems already. We are reminding them that our community-based services took more than $1 billion in cuts in the prior 10 years, while last year's increases made up only about half of that - and some of that increases was eaten up with increased state and local government-mandated costs.
The coming year's right state budget, too, is an obstacle to re-investing in our system. So we are concentrating on items that will preserve current funding that is threatened to be lost, increase federal funding and, in some cases, actually save the state some money.
Specifically, we are asking for:
- Prevent the loss of federal funds that would result from noncompliance with the new Home and Community Based Services rules.
- Restructure state and community-based agency responsibilities by"
(a) expeditiously completing the closure of the developmental centers, and thus also recapturing federal funding currently suspended due to the inadequacy of the DCs;
(b) providing timely and sufficient funds to assure community services are available to consumers moving out of the DCs' and
(c) retaining state funds and assets currently devoted to the DCs and utilizing them
for the community-based system.
- Guarantee funding requires compliance with federal, state and local mandates.
- Save community-based services that otherwise would close and would cost the state more to replace
- Assure that the state selects a consultant for the 2019 rate methodology study who will incorporate the actual costs for delivering quality community services.
Greg deGiere, Public Policy Director
2017 TENTATIVE LEGISLATIVE CALENDAR FIRST YEAR OF BIENNIUM CALIFORNIA STATE ASSEMBLY 2017-18 REGULAR CALENDAR 2017
Feb. 17
- Last day for bills to be introduced (J.R. 61(a)(1), J.R. 54(a)).
Feb. 20
- Presidents' Day.
Mar. 31
- Cesar Chavez Day.
Apr. 6
- Spring Recess begins upon adjournment (J.R. 51(a)(2)).
Apr. 17
- Legislature reconvenes from Spring Recess (J.R. 51(a)(2)).
Apr. 28
- Last day for policy committees to hear and report to fiscal committees fiscal bills introduced in their house (J.R. 61(a)(2)).
May 12
- Last day for policy committees to hear and report to the Floor nonfiscal bills introduced in their house (J.R. 61(a)(3)).
May 19
-Last day for policy committees to meet prior to June 5 (J.R. 61(a)(4)).
May 26
-Last day for fiscal committees to hear and report bills to the Floor (J.R. 61(a)(5)). Last day for fiscal committees to meet prior to June 5 (J.R. 61(a)(6)).
May 29
-Memorial Day observed.
May 30-June 2
-Floor Session only. No committee may meet for any purpose except Rules Committee, bills referred pursuant to Assembly Rule 77.2, and Conference Committees (J.R. 61(a)(7)).
June 2
-Last day to pass bills out of house of origin (J.R. 61(a)(8)). Committee meetings may resume (J.R. 61(a)(9)).
June 15
-Budget Bill must be passed by midnight (Art. IV, Sec.12(c)(3)).
July 4
-Independence Day.
July 14
-Last day for policy committees to hear and report fiscal bills for referral to fiscal committees (J.R. 61(a)(10)).
July 21
-Last day for policy committees to hear and report bills (J.R. 61(a)(11)). Summer Recess begins upon adjournment, provided Budget Bill has been passed (J.R. 51(a)(3)).
Aug. 21
-Legislature reconvenes from Summer Recess (J.R. 51(a)(3)).
Sep. 1
Last day for fiscal committees to meet and report bills to the Floor (J.R. 61(a)(12)).
Sep. 4
-Labor Day.
Sep. 5-15
-Floor Session only. No committee may meet for any purpose except Rules Committee, bills referred pursuant to Assembly Rule 77.2, and Conference Committees (J.R. 61(a)(13)).
Sep. 8
-Last day to amend on the Floor (J.R. 61(a)(14)).
Sep. 15
-Last day for any bill to be passed J.R. 61(a)(15)). Interim Recess begins upon adjournment (J.R. 51(a)(4)).
Oct. 15
-Last day for Governor to sign or veto bills passed by the Legislature on or before Sept. 15 and in the Governor's possession after Sept. 15 (Art. IV, Sec.10(b)(1)).
(SOME DATES INCLUDED IN THIS CALENDAR ARE SUBJECT TO CHANGE)
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Greg deGiere |
Greg deGiere
Public Policy Director
The Arc and United Cerebral Palsy California Collaborative
1225 Eighth Street, Suite 350, Sacramento, CA 95814
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NATIONAL REQUEST from The Arc of the Unites States:
| Seeking input and participation from families or unrelated caregivers in I/DD Community! |
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Dear colleague,
We are writing to you as a follow up to an e-mail we sent to you on January 26 regarding the Family and Individual Needs for Disability Supports (FINDS) Survey. As mentioned in previous correspondence, we have officially launched the 2017 FINDS survey in both print and electronic formats. In our efforts to gather survey data which is insightful and reflective of the diversity of the United States, we are asking our colleagues to help us disseminate the survey to their respective audiences through email lists, newsletters and social media channels. We are hoping that you would join us in this outreach effort.
We are inviting family or unrelated caregivers aged 18 years or older who provide primary paid/unpaid and frequent support to a person with an intellectual or developmental disability (IDD) living in the United States and U.S. Territories to participate in the survey. We are not seeking respondents whose primary relationship with an individual with IDD is as a direct support professional or paid caregiver for that individual(s).
We are hoping that you could help us by either sending out the link to our survey to your organization's email contacts, posting the survey link on your social media channels, or forwarding this email to others that you think would want to participate. Promotional materials, including sample Twitter and Facebook posts, emails, newsletter blurbs, and paper-based surveys in English and in Spanish, are also available here.
We greatly appreciate your support in this endeavor. Please feel free to forward this email on to any interested parties. If you have any questions, please contact:
Amie Lulinski, PhD, Director of Research and Evaluation, The Arc of the United States.
We thank you in advance for your participation.
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Tell Us Your Medicaid Story!
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One in 5 Americans gets their health care through Medicaid, including children and adults with disabilities, working families, and seniors.
For most people with intellectual and developmental disabilities (I/DD), Medicaid is not only their primary health insurance - it also provides the only source of funds for them to live and work in the community with friends and families and avoid harmful, costly and segregated nursing homes or institutions.
Unfortunately, some in Congress and the President are talking about cutting Medicaid. Now is the time to share your story to let them know why Medicaid is vital to you, and what would happen if your Medicaid services were cut.
Medicaid has different names in different states, because it is it a partnership between the federal government and the states.
- You are getting Medicaid if you get "waiver" services.
- Not sure if you get Medicaid? Look up your state's Medicaid program name(s).
Do you or a loved one benefit from Medicaid? Then share your Medicaid story!
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The ACA made significant progress in expanding access to health care for individuals with I/DD. The ACA allowed states to extend their Medicaid programs to childless adults earning up to 138% of the federal poverty level. This change has provided coverage to individuals with I/DD and other disabilities and chronic health conditions who were not otherwise eligible for Medicaid, were in the waiting period for Medicare, or did not have access to employer sponsored health insurance because they were not working or working in low wage jobs without benefits.
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The ACA provided federal money to support Medicaid expansion. The additional federal contribution to expanding Medicaid has helped many people with disabilities access health care. It has also enabled states to continue and expand programs that provide supports and services to people with I/DD.
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Several provisions of the ACA were designed to assist states to rebalance their long term supports systems, allowing more people with I/DD to receive the services and supports they need while living in the community instead of costly and outdated institutions. These include the Community First Choice Option (CFC) and the State Plan Home and Community-Based Services Option (also known as 1915(k) and 1915(i).
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The ACA reversed years of discrimination against people with disabilities and chronic health conditions through its insurance reforms. Prior to the ACA, when people with disabilities or chronic health conditions tried to purchase health insurance in the individual market they often could not obtain coverage at all because of their pre-existing conditions; others faced sky high premiums, or were only granted very limited coverage.
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Project Updates
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Tim Hornbecker, Director of Advocacy and Community Organizing |
Advocacy and Community Organizing Report
Nothing About Me Without Me!
That was People First of California's (PFCA) message delivered by self-advocate Joe Meadours to legislative representatives at the Capitol Briefing Day. Joe is an Advocacy Trainer/Consultant, Past President of People First and former Board Member for The Arc California and The Arc of the United States. He has been telling his story with the People First movement for over 20 years! "We train, and support all people with developmental disabilities to find their voice so that they can speak up for themselves and know their rights and the responsibilities that come with these rights!" Joe continued to explain that together as a group, People First members support each other to solve their problems. They speak for themselves because if you haven't walked in their shoes, you don't know how it feels."We are a diverse group with different abilities," said Meadours. PFCA needs funding this year if they are to continue having a voice at the table. Joe concluded with tenets of People First:
People First Feels
- If you see us as equal, but different, and do not include us in the decisions that affect our lives, you will see us as your disabled client.
People First Believes
- If you get out of our way and we have the opportunity to gather power and knowledge over OUR own lives, we will become strong and successful.
If you would like to get in touch with Joe Meadours, please contact me.
Tim Hornbecker, Director of Community Organizing and Advocacy
President of the National Conference of Executives of The Arc
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| Teresa Anderson, Prevention Coordinator |
HEALTH & WELLNESS ACTIVITIES
Single Most Common Cause of I/DD
Fetal Alcohol Spectrum Disorder, or FASD, is the single most common cause of intellectual/developmental disabilities that is 100% preventable. The Arc of the US, FASD Prevention Project goal is to increase health care provider knowledge of the risks alcohol can pose to a fetus and encourage the use of FASD prevention strategies and provide educational opportunities to health care providers, specifically family practitioners, internists, pediatricians, obstetrician/gynecologists, physician assistants, midwives, nurse practitioners, registered/licensed practical nurses, mental health therapists, substance use therapists, and community health representatives.
The Arc US partner, the Association of Reproductive Health Professionals (ARHP), developed a one hour internet-based activity to educate women's health and primary care professionals and providers on preventing Fetal Alcohol Spectrum Disorders. The course has been extended until October 2017, take this
free course
and earn continuing education credit.
For more resources and information of FASD please visit the following:
National Organization on Fetal Alcohol Syndrome - Northern California and UCSF Benioff Children's Hospital Oakland - 2-day intensive training for understanding FASD March 23
rd and 24
th, 2017
The Arc Us FASD Prevention Project
Fetal Alcohol Spectrum Disorders Center for Excellence
Families Moving Forward
Teresa Anderson, MPH
The Arc California
Prevention Coordinator
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UPCOMING EVENTS
STATE OF THE SCIENCE CONFERENCE
Free registration
for the 2017 State of the Science Conference is now open! The conference will be held on February 13, 2017, at the National Academy of Sciences Building in Washington, DC. It is being hosted by the Rehabilitation Research and Training Center on Disability Statistics and Demographics (StatsRRTC). The conference's theme is Disability Statistics: Lessons in Data Collection and Application to Policy and Practice. It is meant to bring together scientists, administrators, and staff from disability programs, and leaders from the disability policy and advocacy communities to discuss the state of disability statistics and how to move the field forward.
February 15, 2017 12:00 PM
Is the Central Valley Finally Embracing Its Urban Future?
A Zoclo/The California Wellness Foundation EVent
Capitol Event Center, 1020 11th Street, Sacramento, CA 95814
Moderated by Dan Morain, Editorial Page Editor, The Sacramento Bee
February 27-28, 2017
March 3-4, 2017
Cal-TASH Conference in San Diego
Inclusion Through the Lifespan: This is What Inclusion Looks Like. Embracing the Intent of Home and Community-Based Services: Living Enviable Lives from Birth Through End of Life.
www.caltash.org/contact/
carlos
March 20 - 22, 2017
The national Disability Policy Seminar will be at the Renaissance Hotel, Washington, DC. Every year we attend the conference to learn about current national IDD public policy and visit our members of Congress following the conference. To view last year's conference information
click here
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March 23-24, 2017
NOFAS Northern California - A Silent Epidemic: Fetal Alcohol Spectrum Disorder at UCSF Benioff Children's Hospital, Oakland, CA
[email protected]
March 26, 27, 28, 2017
The 10th Annual Developmental Disabilities Public Policy Conference, Hosted by The Arc and UCP California Collaboration at the Holiday Inn Capitol Plaza Hotel, 300 J Street, Sacramento, CA 95814. Every year we sponsor this IDD Public Policy conference to learn about current state policies impacting our community and advocates visit their representatives in the California Assembly and Senate. To watch last year's conference
click here
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RECENTLY RELEASED REPORTS, STUDIES, ETC.
Journal of Social Service Research
Publication details, including instructions for authors and subscription information:
Advocacy by parents of Young Children with Special Needs: Activities, Processes, and Perceived Effectiveness
Amy Conley Wright & Sarah Taylor
To cite this article : Amy Conley Wright & Sarah Taylor (2014) Advocacy by Parents of Young Children With Special Needs: Activities, Processes, and Perceived Effectiveness, Journal of Social Service Research, 40:5, 591-605, DOI:10.1080/01488376.2014.896850
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FUNDING OPPORTUNITIES
The following grant opportunity postings were made on the Grants.gov Find Opportunities service:
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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
Jobs Page Links:
Click Here
Description The Arc seeks a Director of Advocacy and Mobilization to harness the power of and expand The Arc's nationwide advocacy network of people with intellectual and developmental disabilities (I/DD), their families, and our 650+ chapters in support of our federal public policy agenda. This new position offers an opportunity to join a deeply committed, high-impact, collaborative policy team at The Arc working to advance the civil rights and full inclusion of people with I/DD. In 2017, The Arc plans both to quickly ramp up engagement of our chapters and activists on key issues during what we expect to be a fast-paced, high-demand year, and also to lay the groundwork to continue to build our movement over the long term. This position will lead The Arc's work to strengthen our current chapter and activist advocacy engagement capacity, including online engagement and story sharing. This position will also work closely with The Arc's policy, communications, online communications, and marketing teams on mid-range and long-range planning initiatives already underway.
The North Los Angeles County Regional Center (NLACRC) Deputy Director shall be responsible for the leadership, planning, organization, development and direction of the Consumer and Clinical Services of the Regional Center ("Center") in accordance with the Center's contract with the State of California's Department of Developmental Services ("DDS") and the policies established by the Board of Trustees ("Board"). The Deputy Director assists and supports the Executive Director in the overall management of the Center. S/he advises the Executive Director and the Board on policy matters that would further the mission of the organization and ensures compliance with various contractual, regulatory, legal and other requirements. The Deputy Director shall serve as a staff liaison to the committees of the Board, as appropriate. Upon direction, represent the Center at community, local, state and national meetings. The Deputy Director will serve as the Executive Director upon his/her absence.
More generally, the Assistant Directors serve to assist the Agency Director and Chief Operations Officer in the overall leadership activities of the Agency, and to provide oversight and management to an assigned branch: Social Services, Behavioral Health, Public Health, or Administration. The Assistant Directors oversee the development and implementation of policies and procedures for branch programs in accordance with state and federal regulations; delegate responsibilities, monitor assignments, ensure staff accountability and compliance, and oversee information/communication functions; direct the supervision of other positions as assigned and encourage a supportive work environment with open, honest, direct and respectful communication; provide timely information to the Director and Chief Operations Officer in anticipation of changing service delivery needs and the needs of staff; and provide timely information to staff regarding decisions and plans within the Agency. When assigned, acts as representative of the Agency to other community groups or agencies.
The Legislative Director position is based in Sacramento and is part of the team responsible for DRC's legislative activities in California. The position reports to the Advocacy Director. The Legislative Director provides overall direction to DRC's public policy activities with the goal of increasing DRC's legislative presence. The position supervises legislative advocates.
Under administrative direction, serves to assist the Agency Director and Chief Operations Officer in the overall leadership activities of the Agency, and to provide oversight and management to an assigned branch: Social Services, Behavioral Health, Public Health, or Administration. The Assistant Directors oversee the development and implementation of policies and procedures for branch programs in accordance with state and federal regulations. Assistant Directors delegate responsibilities, monitor assignments, ensure staff accountability and compliance, and oversee information/communication functions. Assistant Directors direct the supervision of other positions as assigned and encourage a supportive work environment with open, honest, direct and respectful communication. In the absence of the Agency Director, may assume responsibility for the budget process, and the allocation of infrastructure, information technology, and fiscal resources throughout the Agency. Acts on behalf of the Agency Director or Chief Operations Office in their absence as delegated.
The ideal candidate will have a strong history of leadership in complex behavioral health systems, quality assurance, budgetary and financial management, grants administration, regulatory compliance, and working in a collaborative labor-management setting. The candidate will have a demonstrated track record of successful, strengths-based management, possess excellent analytical and oral presentation skills, and the ability to successfully communicate with a broad variety of stakeholders. A demonstrated aptitude for data-driven quality management is critical to success in this executive position.
The Arc Maryland is seeking a new dynamic Executive Director to lead this statewide organization, which is one of the largest grassroots disability advocacy organizations in Maryland. The Arc structure consists of ten local chapters located throughout Maryland providing both direct services and advocacy and is affiliated with the national organization. The Arc Maryland has been awarded Standard of Excellence certification from the Maryland Nonprofits Association.
Working closely with the Director of Individual Philanthropy, the Manager is accountable for planning and implementing sustainable fundraising strategies and tactics for the individual giving program in conjunction with The Arc's overall organizational objectives. S/he will identify, cultivate, and solicit donors through a variety of philanthropic channels including direct mail, online, acquisition, major donor and federated giving. This position will require the ability to analyze data to define program success and inform future strategy. She/he oversees the implementation of a donor database for data entry and gift processing. This position will communicate regularly with key donors, including managing a portfolio of major gift prospects. S/he plays a key role in the message creation and dissemination of all fundraising materials. This position must be able to work in a collaborative team environment as well as autonomously to meet fundraising goals.
This position will share responsibility for reinvigorating and growing The Arc's major gift and planned giving program with the Director, Individual Philanthropy. The officer must have experience with cultivation and closing planned and major gifts. S/he is responsible for identifying, and managing relationships with planned giving and high-capacity potential donors across the country. In addition, the officer will be responsible for a portfolio of planned and major gift donors. S/he possesses exceptional interpersonal skills with the ability to interact effectively with donors and prospective donors. The officer will have excellent organizational skills with particular attention to systems, processes, and details, and possess the capacity to multi-task. S/he will play a key role in the message creation and dissemination of all planned giving materials. The officer must be able to work in a collaborative team environment as well as autonomously to meet fundraising goals. S/he will be required to travel throughout the United States to meet with donors and prospective donors. This position is based in Washington, DC and reports to the Director, Individual Philanthropy.
The Executive Director, as the Chief Executive Officer, is responsible for the management and operation of all programs and services provided by Contra Costa ARC, for implementing all policy decisions of the governing Board, and for employing and supervising a staff whose dedication and high morale creates a healthy working environment and produces quality of service more than adequate to achieve Board objectives. S/he oversees the administrative and fiduciary functions of the agency. S/he represents the agency to the community, and builds strong relationships with key stakeholders, agency staff, and the Board. S/he partners with the Board in fundraising to support Contra Costa ARC programs. . .
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