One Week Left. Let's Finish Strong.

With just one week left in Move for PSC, we’re in the final push to reach our goal—and we’re not slowing down now. Thanks to the incredible support of our community, we’ve raised more than $100,000 toward our $190,000 goal, but there’s still a meaningful gap to close.

Every mile logged, every fundraiser shared, and every donation made moves us closer to better treatments and, one day, a cure. And because 100% of every donation goes directly to PSC research, every gift has an immediate impact.

We’re in the final stretch and need your help to finish strong.

Donate today and help us close the gap before June 30.

See the Progress Your Support Made Possible

We're excited to share the PSC Partners 2025 Impact Reports, highlighting the progress made possible through your participation and support.

Read the Patient Registry Impact Report to see how more than 2,800 participants are advancing PSC research through shared data and patient-powered discoveries. You can also explore the Research Programs Impact Report to learn about the milestones, collaborations, and scientific progress driven by our research initiatives.

Our Founder Receives National Advocacy Award

We're proud to share that PSC Partners Founder and volunteer CEO Ricky Safer has been named the recipient of the 2026 AASLD Distinguished Advocacy Award. The honor recognizes her two decades of leadership in advancing PSC research, education, and patient advocacy, as well as the incredible progress made by our entire community.

Watch Brooke & Michelle's Living Donor Story

A chance meeting at a PSC Partners Conference brought Michelle Murphy and Brooke Babcock together, leading to a life-changing living donor liver transplant.

Through personal videos captured before, during, and after the transplant, their individual journeys are woven together by Living with PSC podcast host and transplant recipient Niall McKay. The result is an intimate look at connection, courage, and the lasting impact of living donation.

Watch their inspiring story and see how one unexpected connection changed both of their lives.

Our Next Connected-to-Care Summit Heads to Chicago

Thank you to everyone who joined us for the Connected-to-Care Summit in LA. We're now heading to Chicago! Join us on July 18 in person or virtually for a full day of expert presentations, practical education, and meaningful connections with others living with PSC.

Saturday, July 18

8 AM – 5 PM CT

University of Chicago (David Rubenstein Forum – 1201 East 60th Street)

➡️ Register to attend in person by July 10

➡️ Register to attend virtually by July 17

➡️ View Agenda

Whether you are newly diagnosed, supporting a loved one, or have been part of the PSC community for years, the Connected-to-Care Summits offer an opportunity to learn, ask questions, and connect with others who understand the PSC journey.

The Power of Self-Advocacy in PSC Care

When Jennifer Peck noticed that her annual magnetic resonance cholangiopancreatography (MRCP) test had been performed differently than in previous years, she asked questions. Her persistence led to an important conversation with her medical center and ultimately resulted in the reinstatement of the preferred imaging protocol for people with PSC.

Jennifer's story is a powerful reminder that asking questions and advocating for your care can make a difference, not only for yourself but for the entire PSC community.

First WIND-PSC Results Highlight the Burden of Fatigue

New findings from the WIND-PSC study were presented at EASL Congress 2026, one of the world's leading international liver meetings. Fatigue is the most common symptom in the WIND-PSC study cohort, affecting three out of four people with PSC. This challenging symptom is closely linked with symptoms like brain fog, insomnia, anxiety, and abdominal pain, and usually holds steady over six months of follow-up.

Explore the study's abstract and scientific poster to learn more about how WIND-PSC is advancing our understanding of symptom burden in PSC.

Zoom Room: PSC and Post-Transplant, Spouses and Caregivers, and Parents of Children with PSC

July 9

6 p.m. MT / 8 p.m. ET

Experience the power of shared understanding in virtual PSC Zoom Rooms - a space to connect, find support, and know you're not alone.

Register Today

Connected-to-Care Summit Chicago

July 18

9 a.m. – 5 p.m. CT
Join patients, caregivers, clinicians, researchers, and members of the PSC community for a day of education, connection, and support.

Register to join in person or virtually.

2026 Rare Artist Contest

Your creativity can help raise awareness for rare diseases. Rare Artist 2026 is now accepting submissions through July 20.

Learn More



Zoom Room: Teens with PSC or Post-Transplant (Ages 13-19)

July 21

6:30 p.m. MT / 8:30 p.m. ET

This moderated Zoom Room offers a supportive, judgment-free space for teens to hang out, share experiences, and be with others who get it.

Register Today

Zoom Room: Living with Loss & Carrying on the Spirit

August 4

6 p.m. MT / 8 p.m. ET

If you're grieving the loss of someone who had PSC, you're not alone. This virtual support room allows you to share, heal, and carry on the spirit together.

Register Today

Cholestasis and Biliary Tract Diseases: A Tribute to James L. Boyer

Hosted by the Yale Liver Center & Department of Internal Medicine

September 18

7:30 a.m. - 5:00 p.m. ET

Register to join in person or virtually

Stay Connected with PSC Partners

Sign up to receive the information that matters most to you—from research and volunteer openings to our three e-newsletters:

• The Beacon - Scientific research quarterly newsletter
• The Duct - The latest monthly PSC news, updates and events
• The Viaduct - Patient Registry quarterly newsletter