The NFF is reaching out to organizations nationwide and asking them to share an important survey with the families they serve. This critical family feedback will help shape future clinical trials for children and adolescents.
There are far too many events for us to capture in the newsletter each month. We have highlighted a few below and we encourage you to visit our webinars and events page for a more complete listing. We welcome submissions from our network of affiliates and other organizations. Please include a weblink and contact person with any submissions.