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Listening to patient voices
New article offers insight into experiences with chronic spontaneous urticaria
To best address the unmet needs of individuals with chronic spontaneous urticaria (CSU), a form of chronic urticaria, we first need to hear from people about their experiences with CSU. A new article, "Urticaria Voices: Real-World Treatment Patterns and Outcomes in Chronic Spontaneous Urticaria," offers new insights from patients.
Co-authored by our very own We CU board member Tonya Winders, the article summarizes research that dives into the patient perspective of chronic spontaneous urticaria (CSU), shedding light on real-world treatment patterns, the true burden of the disease, and patient satisfaction and expectations.
Key findings in this global study of 582 people with CSU include:
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Most people in the study (84%) did not have good disease control. Many individuals affected by CSU face ongoing challenges in controlling their symptoms despite various treatment approaches, including trying different H1-antihistamines and doses. This highlights a critical need for additional effective treatment options to provide sustained relief for those living with CSU.
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The impact of CSU on emotional well-being was similar across people surveyed. Overall, 37% of respondents reported experiencing stress due to the unpredictable nature of the disease and 29% expressed a desperate need to achieve relief from CSU symptoms. People with inadequately controlled CSU frequently reported anxiety (31%), feeling moody (29%), and feeling unattractive (28%).
Check out the full article for additional insights.
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