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2024 Monthly Newsletter

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A Note From Debbie...

Photo of Debbie and Max in Washington DC

Happy New Year! I am so excited for 2024. DIG is going to be focusing on The Wallet Card Project, The Supper Social Club, and voting during this year. This week we celebrate Martin Luther King, Jr. I have included a picture of Max and me from 2013.


We went with Matt and the team from HOPE, Inc. to the 50th anniversary of the march in Washington, DC where Dr. King gave his "I Have a Dream" speech. We flew to Washington, woke up very early in the morning and then marched through the streets of Washington to the Lincoln Memorial, where we spent the day on the green listening to speeches and music. It was a day that I will never forget.


As we recognize MLK, Jr. Day this month, let’s not forget the original purpose of that march -- to issue an urgent call to action that included fair wages, economic justice, voting rights, education, an end to segregation, and civil rights protection. This message still resonates today, and we must continue to do everything we can fight for civil rights protection in our country. 

Featured Article

The View From Here

By: Justine Chichester

Black and White Photo of Justine

“The brave man is not he who does not feel afraid, but he who conquers that fear.”

-Nelson Mandela

 

When I was 10 years old, I took a trip to California with my family. We rented a station wagon and drove across the state, stopping at various cities and sightseeing spots on our vacation. One day, along this sightseeing tour, we stopped on the side of the road, where a bunch of people had climbed up the side of a tall hill, where there was a large patch of ice. My parents and my brothers and I got out of the station wagon and hiked up the hill to join the other tourists, for some fun and pictures with the family. You had the ability to walk out onto the ice, to a large rock, where most of the pictures were being taken. So, we had to join in! We walked out onto the ice, over to the large rock, had our picture taken and then my parents and my brothers began to head back to the car. Let me just say here, that I am extremely afraid of heights. I was born and raised in Miami, Florida, where we have no tall hills or mountains. Just very flat land all around. And there is definitely never any ice or snow in Miami. So, when I went to take a step to leave, onto the ice, on top of that tall hill, where I had just walked over to that rock without any hesitation or problems….I looked down and I completely froze. My body would not function. I couldn’t even take one step. This is my first memory of allowing fear to paralyze me.

 

I keep thinking about that moment in California, on that patch of ice, as I now work towards walking with just a cane, trying to get rid of my walker altogether. After my spinal cord injury in 2014, I began standing and taking a few steps from my wheelchair, after being told by neurosurgeons that I would never walk again. While the ability to stand and walk was returning to my body, it was often fear that would keep me from moving forward in my mobility journey. I was not only paralyzed from my injury, but I also allowed fear to paralyze me, as well, to the point where I would get so frightened while standing, that I couldn’t move. It took years and years of work for me to gain the confidence to overcome that fear of falling, that fear of failing, that fear of hurting myself. Just the fear of the unknown became crippling. Little by little, just working on standing. Little by little, just working on one step and then two steps. Pushing through that fear. Day by day, I was building the strength and the confidence in myself that I could do all of it, even though “they” said I wouldn’t. Even though “they” said I couldn’t any longer. I didn’t realize it at the time, but I was overcoming the fear of failure as I was working towards my goal of walking once again, after paralysis.

 

There is a quote I love, that says, “If you can’t beat fear, do it scared.” So, now that I have been using a walker for a couple of years, I’ve been working with my physical therapist to transfer to using just a cane and getting rid of the walker. It takes so much work and dedication and practice every day. After a ton of hard work, I’ve now started using the cane in physical therapy, and I have used it, on occasion, while going out with family or friends, but I haven’t been able to break through and use the cane on a full-time basis. I have the ability, but it’s fear that keeps me from moving forward and progressing past using that walker.

 

One afternoon recently, I took a bunch of steps using the cane out in front of my house, by myself, without anyone around. Proudly, I turned around to come back to my house, but I was suddenly hit with that same feeling as when I was on that tall hill in California as a young girl, trying to walk back over the ice to my family. My legs froze, my body would not respond. The fear crept back in. No matter how many pep talks I had given myself, no matter how many tremendous obstacles I had overcome to get here, no matter how much work I’d done, the fear found its way back in.

 

So, I took a deep breath. Reminded myself that I could, actually, “Do it scared,” and I forced myself through the fear. While as a young girl on that hill years ago, I needed someone to help me get through that fear and walk back to my family, the years since and the trauma I’ve endured from my SCI have helped me now have the tools to work through the crippling fear on my own. I remembered all of the work I’d done, remembered that I actually now had the ability, and that I couldn’t let this fear keep me from moving forward. I pushed through, and I walked back to my house, by myself, using only the cane. Despite the fear trying its best to keep me from getting there.

 

So, now almost daily, I try to remind myself that F.E.A.R. can have two meanings, Forget Everything and Run OR Face Everything and Rise. The choice is yours. I’ve chosen to face the fear head on…and rise.

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DIG's Projects In The Community

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The Wallet Card Project


Helping People with Disabilities Communicate with First Responders.


Please click the link below to learn more about this important project, and to order your own customized wallet card or caregiver card.


Order a Wallet Card

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Supper Social Club


Our DIG Supper Social Club is a monthly, neuro-diverse dining experience.


More Info About Our Supper Social Club

Photo Collage of the DIG Holiday Karaoke Party

Check out the information, below, on our next Supper Social Club!

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Benefits Information

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How SSA- Work Incentives Planning and Assistance WIPA Can Support SSA Beneficiaries?

By: Lesly Quintanilla Lopez


Community Based program from SSA to provide work incentives information and planning services to SSI and SSDI beneficiaries pursuing employment; ages 14 to 65. WIPAs provide assistance in the following areas:



–    Orientation to understand SSI and SSDI benefits

–    Orientation to understand Medicare and Medicaid

–    Orientation about SSA work incentives

–    Help to understand how employment will impact your benefits

–    Ensure Informed Choices

–    Get rid of fear in pursuing employment

–    Individualized benefits verification & analysis

–    Prevent and/or resolve benefits issues

–    Help identify needs & make referrals

  • Exploring employment options
  • Identifying local service providers
  • Accessing community resources

–    Assets building

–    Follow-up services

 

Early intervention and education about benefits and work incentives helps prevent future problems (overpayment, unplanned or unexpected loss of benefits, financial hardships, etc.) Failure to educate on benefits is a missed opportunity which may cause harm.

 

WHO SHOULD I CONTACT?

If you would like more specific information about work incentives, are currently receiving WIPA services or have been previously served by a WIPA project, our Certified Work Incentives Coordinators are here to help at: office (305) 453 3491. Serving South Florida: West Palm Beach, Broward, Miami-Dade, and Monroe Counties.

 

Ticket to Work Helpline

For general questions about work incentives call the Ticket to Work Helpline at 1-886-833-2987 or TTY 1-866-833-2967 Monday-Friday 8:00AM-8:00PM.

Accessible Majorette Dance Flyer on Black Background with White and Purple Text and a Photo of a Dancer Next to the Text

Dancer-Artist, Double Amputee & Survivor


Hector Machado is conducting a dance-research project with support from Pioneer Winter Collective's Creative Connections program.


Seeking: differently-abled bodies to join for three consecutive workshop dates: February 10, April 13, June 8, 10am-2pm. Prior dance training not necessary. If you're willing and eager to move and shake, please email hector.machado@gmail.com with photo and resume. Payment provided.

Important Resources

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Voting Resources


We have created a page on our website that lists all of the current voting resources for the 2024 election cycle.


Resources

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The Miami Inclusion Alliance


This project looks at the Domestic Violence and Sexual Assault system of care through the lens of victims with disabilities to identify organizational barriers.


Resources

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988 Lifeline


988 has been designated as the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline (now known as the 988 Suicide & Crisis Lifeline) and is now active across the United States.


Learn More

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Be Sure to Check out the Latest on Our DIG Blog Page

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for the Most Updated Information

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The City of Coral Gables Events

Email the City at PlayForAll@coralgables.com with any questions.

The cover of the book Your Upward Journey by Patricia Bochi

Your Upward Journey – by Patricia Perisse

A three-part project that includes a book, self-help seminars and merchandise.

Do you have suggestions for future content or articles for our DIG newsletter? If so, email your ideas and suggestions to our newsletter editor, Justine Chichester: justine@justdigit.org

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