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2024 Monthly Newsletter

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A Note From Debbie...

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Springtime is here. Matt and I spent a week in Georgia, and I loved seeing all of the blooming flowers. The tulips and daffodils were my favorite.


We have a guest author this month, Michelle Ramirez-Patricios. Michelle and I have known each other for a long time and her article this month is so important. Please take the time to read it and listen to her message about getting screened.  

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Featured Article

BOTTOMS UP!

By: Michelle Ramirez-Patricios

Headshot Photo of Michelle in a Pink Blouse

I turned “fabulous fifty” in September of 2019. For whatever reason, I postponed my annual check up until March of 2020. I felt good, and all my bloodwork was perfect. Due to COVID, however, very few facilities were doing elective procedures in 2020. By the time I had my first colonoscopy, it was two years later. At 52, I was diagnosed with Stage 3 colorectal cancer. 

 

When I was a teenager my mother would always tell me “nothing good happens after midnight.” Well, I am here to tell you absolutely nothing good comes from postponing recommended medical procedures. Never put off your annual physicals, your mammograms, screenings, or bloodwork. So often we ignore obvious signs that our body tries to give us. We think it cannot happen to us. It can. People with no family history or symptoms, like myself, are getting diagnosed earlier and earlier, and with late stage disease. 

 

Yes, colonoscopy prep is inconvenient, but a cancer diagnosis is life altering. Chemo kills the cancer, but it also poisons the body. There was neuropathy, sensitivity to cold, fatigue, nausea, and constant diarrhea for six months. I also had the unfortunate luck of being the only person I know who gained weight on chemo! The physical part was easier than the mental. Somehow I did it, because what other choice did I have? 

 

Colorectal cancer is a cancer that starts in the colon or the rectum. 1 in 5 colorectal patients are 20-54 years old. Fifty-one percent of people 50-54 have not been screened. Unlike other cancers, colorectal cancer is often preventable with screening and highly treatable when detected early.

 

The recommended age for colorectal cancer screening is now 45. If you are over the age of 45, or have any unusual symptoms such as abdominal pain, change in bowel habits, decreased appetite, anemia, weight loss, or rectal bleeding, get a colonoscopy right away. Do not wait. Do not let the doctor blame it on hemorrhoids or stress. Advocate for yourself. The importance of early detection cannot be overstated. Six more months, and my outcome may not have been a positive one.

 

After six months from diagnosis, two hospitalizations, surgery, and chemo, I was cancer free. After tears of fear, there were tears of joy, and a deep appreciation for a tremendous support system of family and friends who sustained me through this unwelcome journey. For that I am eternally grateful. I am still in the middle of it; scans and blood work will continue for at least three more years. And there is always an overarching and ever-present deep uncertainty that I must navigate, sometimes daily. I try to breathe more deeply, love more profoundly, and enjoy the simple moments. I have the privilege to keep on living and loving those close to me, to give to those fighting their own struggles, and to create awareness that will hopefully save someone their life. 

 

March is Colorectal Cancer Awareness Month. For more information, visit OurColonis45.org

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Trailblazers

Notable Women With Disabilities Who Made History

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Judy Heumann


Judith Heumann contracted polio in 1949, and dedicated her life to advancing the inclusion of individuals with disabilities. Known as the "Mother of the Disability Rights Movement," Judy was recognized internationally as a leader in the disability community. Judy Heumann was a lifelong civil rights advocate for people with disabilities. She worked in the Clinton and Obama Administrations and was an advisor at the World Bank and the Ford Foundation. Her story is featured in the Oscar-nominated film Crip Camp: A Disability Revolution.


“Disability only becomes a tragedy when society fails to provide the things we need to lead our lives — job opportunities or barrier-free buildings…It is not a tragedy to me that I'm living in a wheelchair”



For More Information:

judithheumann.com

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Barbara Jordan


Barbara Jordan was the first African-American woman to serve in the Texas Senate in 1967, first African-American woman to serve the Texas State Legislator, the first African-American from the South to serve in the United States Congress in 1971, the first black woman at a Democratic National Convention to give a keynote address. Her advancements to equality in the U.S. is exemplified by her successful campaign to include Hispanics in the 1975 Voting Rights Acts. Barbara Jordan was awarded the Presidential Medal of Freedom in 1994 by Bill Clinton. In 1973, she was diagnosed with Multiple Sclerosis and was a chair user by the 1990's.


“If the society today allows wrongs to go unchallenged, the impression is created that those wrongs have the approval of the majority.”


For More Information:

womenshistory.org

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Tammy Duckworth


Serving as the junior U.S. Senator from Illinois since 2017, Tammy Duckworth has made a name for herself with a number of firsts. She was the first female helicopter pilot to lead a combat mission, the first double amputee of the Iraq war and the first Thai-American woman and the first woman with a disability elected to Congress and the first senator to give birth while in office. Unafraid to trailblaze, Duckworth has made strides in her political career introducing a number of bills in favor of making life easier for veterans and for parents


“Healing is always possible and that the lowest moments can lead to the greatest heights.”


For More Information:

duckworth.senate.gov

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Claudia Gordon


Claudia Gordon is the first deaf Black female attorney in the United States and the first deaf graduate of American University's law school. She currently works as a Senior Accessibility Strategy Partner at T-Mobile within its Diversity, Equity and Inclusion team. Prior to joining the telecom industry, Gordon held various roles in the public sector from 2002 to 2017—most notably as the Associate Director in the White House Office of Public Engagement, where she advised White House offices and senior officials, including former President Barack Obama, on disability issues. This political appointment made Gordon the first deaf person to work at the White House in a detailee capacity.


I am motivated by knowing that although progress is being made towards inclusion and access, there is still a great deal more work to be done.”


For More Information:

ncd.gov

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DIG's Projects In The Community

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The Wallet Card Project


Helping People with Disabilities Communicate with First Responders.


Please click the link below to learn more about this important project, and to order your own customized wallet card or caregiver card.


Order a Wallet Card

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Supper Social Club


Our DIG Supper Social Club is a monthly, neuro-diverse dining experience.


More Info About Our Supper Social Club

Check out the information our next Supper Social Club!


Be Sure To Register to Attend...

We Can't Wait to See you There!

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Supper Social Raffle Prizes


We are looking for donations for Raffle Prizes for our Supper Social Club! Specifically, we are looking for gift cards to fun places or restaurants. The purpose of the gift cards is to give our participants a reason to try something new, or to go out in the community and be involved.


Examples are: Agift card to any restaurant, or a movie theatre or another entertainment place. Or a gift card for a cup of coffee or any drink at Starbucks.


We want our group to be out in the community having fun, socializing, and living a fabulous life!


You can bring the raffle prizes to our next Supper Social Club dinner, or you can mail them to us at:

Disability Independence Group

P.O. Box 140850

Coral Gables, FL 33114-0850


Do you have other ideas for our Supper Social Raffle Prizes?

Please send them via email to Debbie Dietz

Benefits Information

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What is Substantial Gainful Activity or SGA according to The Social Security Administration?

By: Lesly Quintanilla Lopez


To be eligible for disability benefits, a person must be unable to engage in substantial gainful activity (SGA). A person who is earning more than a certain monthly amount (net of impairment related work expenses) is ordinarily considered to be engaging in SGA. The amount of monthly earnings considered as SGA depends on the nature of a person's disability. The Social Security Act specifies a higher SGA amount for statutorily blind individuals; Federal regulations specify a lower SGA amount for non-blind individuals. Both SGA amounts generally change with changes in the national average wage index.


Substantial Gainful Amounts for 2024 are:


For statutorily BLIND individuals for 2024 is $2,590.

For Non-blind individuals, the monthly SGA amount for 2024 is $1,550.   


What is Substantial Gainful Activity anyway?


Social Security Definition of Disability: To meet our definition of disability, you must not be able to engage in any substantial gainful activity (SGA) because of a medically-determinable physical or mental impairment(s):


That is expected to result in death, or that has lasted or is expected to last for a continuous period of at least 12 months.


We use the term “substantial gainful activity” to describe a level of work activity and earnings. Work is “substantial” if it involves doing significant physical or mental activities or a combination of both. For work activity to be substantial, it does not need to be performed on a full-time basis. Work activity performed on a part-time basis may also be SGA. “Gainful” work activity is:


Work performed for pay or profit; or Work of a nature generally performed for pay or profit; or Work intended for profit, whether or not a profit is realized.


We use SGA as one of the factors to decide if you are eligible for disability benefits. If you receive Social Security Disability Insurance (SSDI) benefits, we use SGA to decide if your eligibility for benefits continues after you return to work and complete your Trial Work Period. 


References:


-Substantial Gainful Activity (Social Security Administration) Cost-of-Living Adjustment (COLA) Information | SSA


-Social Security Administration Red Book: How we define disability? Social Security Online - The Red Book - A Guide to Work Incentives (ssa.gov)


If you have additional questions, call your local WIPA community project from SSA at 305-453-3491. Serving South Florida, Miami, Broward, Monroe, and West Palm Beach.

Important Resources

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Be Election Ready in 2024


We have made blog posts with links and tips on how to be election ready in 2024. You can read our blog posts below to get all of the information you need for the 2024 election cycle:


Presidential Preference Primary in Florida


Why Voting Matters


Vote the Way That Works for You


Update Your Signature


Register to Vote

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General Voting Resources


We have created a page on our website that lists all of the current voting resources for the 2024 election cycle.


Resources

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The Miami Inclusion Alliance


This project looks at the Domestic Violence and Sexual Assault system of care through the lens of victims with disabilities to identify organizational barriers.


Resources

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988 Lifeline


988 has been designated as the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline (now known as the 988 Suicide & Crisis Lifeline) and is now active across the United States.


Learn More

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Subscribe to the Florida Access Coalition's Mailing List

for the Most Updated Information

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Be Sure to Check out the Latest on our DIG Blog Page

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The City of Coral Gables Events

Email the City at PlayForAll@coralgables.com with any questions.

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Your Upward Journey – by Patricia Perisse

A three-part project that includes a book, self-help seminars and merchandise.

Do you have suggestions for future content or articles for our DIG newsletter? If so, email your ideas and suggestions to our newsletter editor, Justine Chichester: justine@justdigit.org

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