) is an inborn error of metabolism that results in decreased metabolism of the amino acid phenylalanine. Untreated,
can lead to intellectual disability, seizures, behavioral problems, and mental disorders.
With the changes happening for the orphanages, one of the orphanages most in need of help (3-4 kids per bed) were told by their Civil Affairs Department that they COULD NOT accept help from outside organizations- even local NGO’s.
We really wanted to help them during this very difficult time but every proposal was turned down. The middle of June we presented another proposal to help their children with PKU. This can be a very debilitating disease if not treated properly. The end of June we received the news that YES, we could help 4 of their younger children with PKU. We are excited that getting the children the proper care and on the correct diet will change the course of their life.
We will provide all the formula and special rice and flour needed for their special diets. We will also train their staff on the special diet they need and will facilitate weekly blood tests to measure the levels of phenylalanine in their blood.