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Caregiver Corner - Multiple Sclerosis
Are you caring for someone newly diagnosed with Multiple Sclerosis (MS)? It is important to learn about the illness so you can prepare yourself for the journey you and your loved one will undertake.
What is MS? MS is an auto-immune disease that causes lesions in the brain and spinal cord. It occurs when the immune system attacks nerve fibers and protective fatty covering of our nerves, causing inflammation. The resulting scar tissue blocks electrical signals to the brain disrupting normal body movement and function. Some of the common symptoms are vision loss, pain, fatigue, and trouble with coordination and movement. The symptoms may change over time and are different for different people.
Most people who have MS have intermittent symptoms. They may be severe for a period of time and then almost seem to disappear for long periods. Over time, however, it is very common that the symptoms progress in respect to severity and frequency. MS isn’t a terminal diagnosis but, at this time there is no cure. Many people live long and productive lives despite their diagnosis.
Types of treatment and lifestyle can make a difference in the course of the disease.
As a caregiver for someone with MS, it may be helpful for you to become informed about the disease. The National MS Society is a reliable source of current information on MS.
Call 1-800-344-4867 or email contactusnmss@nmss.org. It will be important for you to have a healthcare team to discuss concerns about the disease progression and things you can do to minimize disability related to MS. Your team should include your loved one’s primary care provider, a neurologist, a physical therapist, a social worker, and a dietitian. Each of these specialists has information that can help you and your loved one live with MS and have a good quality of life.
Lastly, as a caregiver you would be wise to become involved in a caregiver support group for families living with MS. The life experience of other families travelling on the same journey as you can be helpful as you start down this path.
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