Volume IV |  January 2017
Bringing The Mental Health Conversation to Bergen County and Beyond
PEER WELLNESS CENTER REOPENS - NEW FIRST EPISODE PSYCHOSIS PROGRAM - QUICKLINKS TO NEWS- IFSS FAMILY EDUCATION PROGRAMS - UNDERSTANDING 262-HELP
Grand Opening of Bergen
County Wellness Center in Hackensack.
Volunteers Needed !
When you walk in at 177 Hudson Street, Hackensack; the new home of Collaborative Support Programs of NJ’s new "Bergen County Wellness Center", you can sense excitement in the air. Just 2 blocks from the bus terminal and close to the Courthouse, the brightly-lit, freshly-painted space is sparsely furnished now, but staff are buzzing with plans for an upgraded center that will actively embrace the community and invite them in to really get to know CSPNJ's clients; especially the youth population.

Originally known as ”On Our Own”, the Hackensack center for people with lived experience of mental illness and addiction was started in the 1980’s by SFZ Members, Judy Banes and Irene Sanborn. It is taking on a new name and adding value to the county by offering unique programs. The new location is clean and accessible, surrounded by parking spaces and thriving businesses, very safe and roomy, but it still needs some sprucing up.

They definitely need the community's help.

The Grand Opening is scheduled January 26 from 2 - 4 at 177 Hudson Street, Hackensack. The SFZ News encourages readers who have time, talent or services to volunteer to attend, meet the agency leaders and offer your help. Christie Moss, Center Manager, is eager to make new contacts and can be reached at 347-451-0735 or through email (at the link at the end of this article).

CSPNJ employs 200+ people statewide and are being guided in community integration by Temple University in Philadelphia. This means they aim to bring future supports to clients both inside and outside of the Hackensack Center hub.  (Read more about that in our Quicklinks to News section).

The Hackensack Center is 1 of 25 in NJ and 2 in Bergen County (the other is "For Us By Us" in Englewood) that CSPNJ operates, mostly on a peer-led basis. 60% of their employees are people in mental illness or addiction recovery.

Not a day program, or clinic, their fully- credentialed staff plan to bring the best in career and financial counseling, integrated health education, art/music therapy, counseling and social supports and programming to a diverse clientele. CSPNJ also provides safe and affordable housing for over 750 persons with mental illness or addiction across the state.

The Hackensack Center serves about 30 clients a day (and they aim to add more) from all backgrounds and income levels, ages 18 to late 50’s. Above all, their peer to peer mission is "to promote responsibility, recovery and wellness". “We also aim to reduce the isolation of living with a stigmatized condition” said Ms. Moss; a challenge many in the SFZ agree is a much too-common problem to overcome. 

Center Manager Christie Moss and Scott Long, the Director of CSPNJ’s Northern Region, are working with Elizabeth Brier, CSPNJ's Wellness Center Director to find the best combination of services for their clientele. They may combine the Bergen Centers, citing the financial impact of Fee for Service. “It’s really a positive thing for us”, said Brier, “hubs of service are now a trend and when day treatments get cut, clients tend to turn to peer services.” 

When asked about their wish list, Long mentioned that they have been forced to cut back from 5 days a week to 3. He wants to rebuild services, especially for young clients (who currently have so few supports available to them). “Young adults need something to do”, he stressed, citing that 70% of the Center’s clients are fighting co-occurring substance abuse issues. Providing music, speakers, gaming, and social activities through local community is key in preventing relapse.

Center Wellness Mentors, counselor John Fuchida and Paula Malone, MSW, told the SFZ News providing services that appeal to all ages is difficult, and the young adults in recovery for the first time don't always appreciate being advised by the older clients at the Center.

“We really need volunteers of all ages and with any skill set to offer their programs and interact with all of our clients”, Moss said.

Long has support groups, exercise, weight loss and yoga classes in mind, and hopes that the Bergen CHIP program will come to aid those struggling with weight gain from psychiatric medication. He wants the Center to be a “safe zone for friends; a sanctuary to meet like-minded people and a place to get education and coping skills.”

"It's a new beginning here for us, we will be offering a new level of services. We are looking forward to becoming an integral part of Bergen County", Long added.

Moss spoke of some frustrations, in particular, having difficulty in getting on the radar of Bergen non-profits such as United Way and Easter Seals and a lack of follow-up from some Bergen agencies. “We haven’t struck upon all of the right contact people yet”, she stated, adding that other counties have provided CSP's clients much more individualized follow-through. 

Peer services are an invaluable resource, but cannot operate without community support. Most immediately, along with volunteers and financial support the Hackensack Center needs in-kind donations, including:

A full size refrigerator, microwave ovens, crockpots, a vacuum, computer lamps, desks and chairs, a long, rectangular dining table and chairs, bookcases, art work, lamps and décor, rugs and kitchen supplies (dishes, utensils, cleaning supplies) and art supplies.

Along with programming and donations, any company or individual volunteer who can help CSPNJ finish the kitchen and computer room, or set up technology (gaming and computers) or provide free, healthy snacks is also needed. 

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  See you all at the Grand Opening! Center Hours are
Thurs. & Fri. 1-6 and
Saturday 12-5.
Letter To The Editor

Dear SFZ News of NJ,

I went to the [CHCC] seminar with Teepa Snow last night on Dementia. She was amazing, engaging and full of wisdom. This delicate population needs caregivers to understand their unique mode of communication as they age and begin cognitive decline. Teepa has such a gift for explaining what the elder community experience and how we can better help them get their needs met in a safe and effective manner. I learned a lot for my patients and family members. Thanks for posting the event.

Lisa Lanzalotto, RN

Paramus, NJ 


CarePlus NJ First Episode Psychosis Grant:
Innovative Services Offer New Hope for Youth.
Imagine your 18 year old comes home from high school one afternoon in tears. When pressed, he tells you he had a bad day, the other students were laughing at him. He isn't quite sure, but he thinks a character in the movie shown in Spanish class was speaking directly to him and everyone knew. He cries, telling you how scared and confused he has been feeling for months now; describing paranoia, delusions and out-of-body experiences. He admits to doing drugs.

What do people do when mental illness appears in their children or a young adult family member?

Usually they panic. Sometimes, they deny symptoms or concentrate on real or perceived drug use. Any family experiencing the onset of psychosis (a break with reality) in a child will tell you they feel scared and alone. The age of onset of serious mental illness occurs at a time of life for building identity in young people. The cruelty of psychotic mental illness is how it traumatically it interferes with that crucial stage of development.

The average onset of serious mental illness is late teens to mid-twenties, with boys usually succumbing earlier than girls. Every year 100,000 young people in the US will experience their first psychotic episode or first "break". Psychosis can be caused by physical or mental illness, medications, or drug or alcohol abuse. 

In the past, it has not been uncommon for youth to experience 12-18 months of symptoms, or even more before receiving a diagnosis and/or treatment. Prescribers have been hesitant to put a serious illness label on a young person, and sometime self-esteem issues will not allow a client to accept such a serious diagnosis or they will try to hide it out of denial or fear of illness or fear of discrimination. Early intervention with a quick start on medication has been proven to greatly increase chances of long-term recovery and a return to school/meaningful work. Too often, delays lead to self-medicating with substances, brushes with the law or serious family dysfunction, along with a worsening of symptoms. The need to act quickly and decisively is real.


CarePlus NJ is the"Northern Provider" for 11 counties* for a new federal grant designed to treat FEP- First Episode Psychosis. Rutgers (Central) and Oaks Integrated Care (Southern) have been awarded the grant in other NJ regions.This new model of wraparound services is based on a successful pilot program called OnTrackNY and it will service 35 youth (ages 15-35, average age 21) within 2 years of their first break and hoping to return to school/work. The program gets up and running this winter under the leadership of CarePlus VP of Acute Care Services, Kris Pendy. 

Lorelle Holway, the Administrative Manager and Melissa Sampath, Clinical Manager, will provide care with a multi-disciplinary team including: a prescribing psychiatrist, a case manager and a fully-licensed "Recovery Coach" plus supported employment and rreferral specialists to guide clients through the first 2 years following their FEP. The team will also work to incorporate peer and group supports into services. "Our goal is to get them back to life, where they were before they began experiencing symptoms", explained Holloway, "This grant is helping young adults deal with a very serious health issue". A return to school, college or work is a desired outcome whenever the client shares that as a goal.

The SFZ News asked Ms. Sampath about the unfortunate practice some programs have of automatically excluding families due to HIPAA laws, and we pointed out many young adults may need the support of parents. She talked about the importance of including families on the treatment team. "This is part of the Careplus philosophy", she said. "Using shared decision making to educate clients so their families and supports can be engaged...in a meaningful and helpful way". She added " Most FEP families need education about [mental illness] and treatment options, and most need help managing their fear...associated with a diagnosis. This new service will support not only the client but their families".

Referrals for the program are coming in from ERs, hospitals, colleges and programs that work with young adults. Initially, CarePlus will accept adolescents and young adults on a first-come, first-served basis.They will build an individualized plan of treatment for every participant.

A lack of peer support and social programs for young adults and adolescents in Bergen County and NJ overall remains an issue. "There's a need for peer support whether it's treatment, support for school/work goals or just someplace to send young people to give them structure to their day", lamented Sampath. Holway added that the median age of persons in mental health day treatment trends older so the lack of social services exclusively for the young experiencing FEP is a real problem. 

"Our grant is a first step", she said, "Federal funding may increase if programs like ours succeed". Success is likely, as the program model already has shown itself to be very successful in other states. Both CarePlus practitioners hope to see more youth-based supports created for this age demographic in Bergen County and across the state.

When it comes to helping NJ youth recover from serious mental illness and thrive in all aspects of life, the SFZ News is sensing a theme. Providing great healthcare is an important foundation, but our youth need more services to help them on to a full recovery.

*CarePlus is taking referrals for FEP from Bergen, Essex, Hudson, Hunterdon, Morris, Passaic, Somerset, Sussex, Union and Warren Counties.
WRITE TO CONGRESS TODAY REGARDING POTENTIAL REPEAL OF AFFORDABLE CARE ACT-DON'T WAIT!

CUT & PASTE SAMPLE LETTER:

Dear Congressman,

I write as a concerned constituent who wants to make sure that new provisions in mental healthcare added under the ACA are not repealed without a planned commensurate and appropriate replacement.

1 in 5 Americans experience a mental health condition in any given year, and half of all Americans will have a mental health condition in their lifetime. On average, people in our state go 10 years without treatment for mental health conditions! The longer we wait to help those struggling with mental illness, the more America suffers and spends. 

When we think about diseases like cancer, or diabetes, we don't wait years to treat them. We start way before Stage 4; the most critical point in the disease process, and we need to do the same for mental health. Early identification and intervention can ensure that our friends and families get the help they need right away.

Health care reform made several changes to federal laws which have especially benefited people with mental health and addiction needs. These changes include:

1. Made mental health and addiction treatment a benefit that all insurance plans must fully cover
2. Required insurance companies to cover people with pre-existing conditions
3. Allowed young people to stay on their parents' family insurance plan until 26 years old
4. Increased access to individuals who previously were not able to access coverage, through the exchange, Medicaid
5. Improved coordination of mental, behavioral, and physical medical care for people

These changes improved the lives of millions living with mental health and substance use disorders, including me or the people I care about. We don't want to lose coverage, so I am asking that you do not repeal the Affordable Care Act without a replacement, and that the replacement maintains my coverage.

Sincerely,

Your Name
 
  Congratulations to SFZ Supporter and Bergen County Freeholder Maura DeNicola for winning the Byron Bauer Award on
December 19, 2016.
The SFZ appreciates your service.
Oradell SFZ Offers Anxiety Program at Library 

"Peaceful Minds in Anxious Times" will be offered at the Oradell Public Library,   375 Kinderkamack Road, Oradell on January 26, 2017. Featured speaker is             Jill A. Pantaleo, LCSW and associates, along with Bergen County Therapy. Jill will provide an overview of anxiety disorders affecting all ages, reviewing symptoms and causes. Lifestyle changes and treatment recommendations will be discussed. For ages 12-Adult, event runs 7:00-8:30 p.m. and is sponsored by the Oradell Stigma Free Zone.  No preregistration is required.
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