July 24, 2026 - Volume 6, Issue 14 | | Welcome to the WM Digest: a place where you can find vital information and education about Waldenstrom macroglobulinemia (WM), hear the latest WM research updates, meet WM community members who share their stories, and get diverse support for managing WM. | | | | IWMF's mission is to support and educate everyone affected by Waldenstrom macroglobulinemia (WM) and to improve patient outcomes while advancing the search for a cure. | | | Special News | | WM Research | | Summer Video Series | | Events/Webinars | | WM Community | | Support | | Living Well | | | Join patients, caregivers, and leading WM experts for a rare look inside IWWM-13’s most important discoveries. | For the first time ever: this free Patient Highlights Session will recap key scientific updates from the 13th International Workshop on Waldenstrom’s Macroglobulinemia (IWWM) into practical takeaways for the WM community. Get a front-row look at the research shaping the future of treatment and care. Learn more here. | | |
Prof. Christian Buske highlighted several encouraging advances in Waldenstrom macroglobulinemia research presented at the 2026 European Hematology Association (EHA) Congress.
The studies focused on promising new therapies, better ways to identify patients at higher risk of relapse, and continued improvements in long-term survival, offering new hope through emerging therapies, more personalized treatment strategies, and continued improvements in patient outcomes.
Watch the video here.
| | Prof. Christian Buske of University Hospital of Ulm in Southern Germany | |
Video also available in German.
See more EHA 2026 Videos.
| | Miss the Ed Forum Sessions? | | Explore more videos from our signature educational events. This group of videos highlights the current momentum in Waldenstrom macroglobulinemia research, education, and artificial intelligence in the healthcare journey. | |
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Mission in Motion: The Impact of IWMF w/Panel - Watch Here.
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IWMF-Funded Research: Robert Kyle Awards moderated by Dr. Zachary Hunter - Watch Here.
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Empowered by AI: Navigating Blood Cancer Care through Technology with Lisa Porat and Anand Redi - Watch Here.
| | Navigating Clinical Trials | | Powerful takeaway from a recent support group meeting: start a conversation with a Clinical Trial Nurse Navigator earlier in the process! Even if you are not currently seeking a new treatment option, you can prepare for future decisions. | | IWMF’s DC/Maryland/N. Virginia Support Group hosted Meghan McGrath, NP, of Blood Cancer United, for a helpful overview of clinical trials and the Clinical Trial Support Center. Watch above. | |
Overcoming Insurance Barriers | | |
NORD Webinar Series: Overcoming Insurance Barriers
July 30 at 3pm ET - Register Here
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If you are impacted by a rare disease, you are likely spending countless hours navigating health insurance.
In this webinar from the National Organization for Rare Diseases (NORD), we will discuss common insurance barriers faced by patients and caregivers living with a rare disease, and tips to overcome them.
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Sharon Piotrowski, one of IWMF's most active volunteers and a cherished fitness instructor with IWMF's Wellness Program, has announced that she will be officially retiring from her 18-year career as a Personal Trainer this month.
We have been so blessed to have had access to her expertise and personal journey through her generous donations of time over the years.
Register here for Sharon's last IWMF Fitness class on July 30 at 1pm ET.
Hear her Farewell Video Here.
| | Sharon will continue volunteering for IWMF by leading the Sarasota support group, providing tips for our wellness community, and more. | | Scroll down for more IWMF Wellness. | | | | |
Blood Cancer United just released a series of Caregiver Workbooks - a set of guides to use throughout your time as caregiver to a person with blood cancer.
"Caregivers are the silent glue that can hold everything together." - Linda Trytek, co-leader of IWMF's WM Caregivers Support Group.
Scroll down to join the WM Caregivers Support Group.
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Young WM (pre-retirement age) Affinity Group - July 25 at 12pm ET. Email office@iwmf.com to be added to the mailing list.
WM Caregivers - August 6 at 2pm ET. This meeting is open to all those supporting others with WM, as well as those living with WM themselves who are caregivers. Meets on the first Thursday of each month. Sign up here.
WM People of Color Affinity Group - August 7 at 1pm ET. For the Zoom link, contact Paula.
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(UK) Bournemouth & District WM Support Group - August 8 at 12pm BST.
Join Bob Perry for a special, in person event (in a forest!) with guest speaker, Dr. Helen McCarthy. Register here.
Join the WM Community at Wild Reset Woodlands in New Forest, England.
Slow down and connect in the woodland.
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Funds Open for U.S. Patients | | |
Need help covering the costs of WM treatment? The patient advocacy organizations listed below offer financial assistance programs to help with copays, premiums, and other out-of-pocket expenses:
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Did you know that mindfulness meditation may help ease pain?
Meta-analyses indicate that Mindfulness-Based Interventions (MBIs) are a highly effective non-pharmacological approach, resulting in significant reductions in both pain severity and the distress associated with chronic pain.
Try our recent Meditation to Manage Pain and let us know if it helps. Note: this is a complementary intervention that can be practiced alongside, not instead of, standard medical care.
| | Sign up for live Mindfulness Meditations with the WM Community. | | |
"No matter what diagnosis you carry, committing to a healthy lifestyle is one of the most powerful tools you have to navigate life's challenges.The Wellness Program is here to give you those exact tools. Please keep using them."
-Sharon Piotrowski, IWMF Volunteer
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Receive IWMF's monthly Integrative Wellness Newsletter.
Reach out with any wellness-related questions.
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This e-newsletter is a free service to WM community members to share WM related news and events.
Scam / Phishing Alert: Be skeptical of unexpected emails, texts, or phone calls—even if they appear to come from a trusted organization.
Remember: IWMF will never ask for your password, banking information, or payment through unsolicited emails or text messages. If you receive a suspicious message claiming to be from the IWMF, contact us directly before taking any action.
For more information, email info@IWMF.com or visit www.IWMF.com
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Please note our new mailing address:
IWMF, 1449 S Michigan Ave STE 13329 Chicago, IL 60605
info@iwmf.com | 1-941-927-4963 | | | | |
