The Waldenstrom's Weekly
January 13, 2023
Volume 3, Issue 2
Your generous contributions allow the IWMF to provide information, education and support programs to all WM community members. 
- Education -
REGISTRATION OPENS NEXT WEEK!
The 2023 IWMF Ed Forum will be held in St. Louis with a virtual option. Check out this year’s program HERE, and stay tuned for more information. We hope you can join us!
Join Us for our First 2023 Event!
IWMF Global Educational Webinar
January 19th, 2023 from 2:00PM-3:00PM U.S. ET
Treatments, Trials, and Hope –
for ALL Stages of Disease

Presenter:

Dr. Jorge Castillo
Dana-Farber Cancer Institute
Boston, MA
Join IWMF on ZOOM for this very important topic that affects everyone with a WM diagnosis!

Dr. Jorge Castillo is a GLOBAL SPECIALIST in Waldenstrom's Macroglobulinemia (WM) AND Clinical Director of the Bing Center Clinic (for WM) at Dana-Farber Cancer Institute.

The 45-minute presentation will be followed by a 15-minute Q & A.

This is YOUR opportunity to start the New Year by having YOUR questions answered.
This Program is Sponsored by:

- Support -
International Young WM Support Group Meeting
Monday, January 16th at 7:30PM U.S. Eastern Time
The International Young WM Support Group will be having a meeting next week for patients and caregivers under the age of 50. Attendees will join Co-Leaders Ryan and Deborah on Zoom for a caring and sharing session, which will last approximately one hour.
Monday, January 16th, 2023
7:30PM - 8:30PM U.S. ET

To join the mailing list for this group, contact Michelle:  Mpostek@iwmf.com
Worried About Cancer Costs?
 Free Resource for Financial Navigation & Support
Cancer-related costs weigh heavy on patients and families. Financial Navigators from Cancer Support Community (CSC) can help. The Helpline offers free navigation for patients and their loved ones by phone at 888-793-9355 and online via live chat service. CSC also provides translation services in nearly 200 languages.

Learn more here.
From the National Organization for Rare Disorders (NORD):

On Jan. 4, the rare disease community celebrated the 40th anniversary of the Orphan Drug Act (ODA) — legislation that incentivized drug companies to put more resources toward the research, development, and distribution of therapeutics for people with rare diseases, who until then had been ‘orphaned’ by the medical and scientific community. 

Read the full article here.
IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email info@IWMF.com or visit www.IWMF.com