The Waldenstrom's Weekly

April 14, 2023

Volume 3, Issue 13

We are lucky to have an organization that offers so many educational opportunities! I cannot wait to meet other WM patients next weekend! -E.C.

Donate Today

Today marks the occasion of the 100th Issue of the WM Weekly Newsletter! To celebrate this milestone, the 100th person to open this newsletter will win IWMF swag of their choosing!

- IWMF Educational Forum -

ONE WEEK AWAY! REGISTER TODAY

FREE Virtual Programming ALL next weekend!

We are ONE WEEK away from our Educational Forum! Be sure to book your virtual OR in-person front row seat HERE!



We are so excited for next week, and we hope you will join us along with members of the WM community worldwide. Whether you plan to attend in-person in St. Louis OR virtually, the Ed Forum is a unique opportunity to learn from world-renowned WM clinicians and researchers, and spend time with fellow patients and supporters who are also experiencing the WM journey.


For everyone joining us in-person, we look forward to meeting you in St. Louis!

Learn More and Register Here!
- Education -

Webinar from Rare Disease Legislative Advocates:

The COVID-19 Public Health Emergency Unwinding

April 20th, 2023

9:00AM PT/12:00PM ET


During this free webinar, attendees will learn more about the COVID-19 Public Health Emergency ending and the implications for the rare disease community. You can register HERE.


- Support -

TODAY AT 2:00 PM U.S. ET! Sound Meditation for WM

TODAY at 2:00PM U.S. ET!

Relax to the sound of Ann Grace's authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. According to sound healing traditions that have been passed down through both lineage and training, these bowls introduce a healing harmonic sound wave that helps dislodge stagnation on the cellular level, bringing the mind and body into perfect tune. 


Contact Shelly for the Zoom link at mpostek@iwmf.com

WM Community Corner

Eunice Quast, IWMF Support Group Leader for MN/WI, is sporting the IWMF hoodie she won from the Ed Forum Facebook Live Raffle! If you want to sport your own piece of swag, click here.

Veteran Dental Assistance for U.S. Patients

The Leukemia & Lymphoma Society (LLS) is pleased to announce a partnership with NYU Dentistry’s Veterans Oral Care Access Resource (VOCARE) to help Veterans with blood cancer gain access to dental care.


Any Veteran, regardless of dental benefit class, who requires dental procedures to begin lifesaving therapy for a blood cancer or as a consequence of therapy for a blood cancer, will be eligible for financial assistance to cover the costs of dental services. 


Care will be provided at the NYU Dentistry Oral Health Center for People with Disabilities. Although treatment takes place in New York City, the program is available to all Veterans as long at they reside in the U.S. or a U.S. territory, and can travel to New York City. 


All expenses for the required dental care will be covered, as long as funding is available. Veterans can receive services more than once. Covered expenses include, but are not limited to, extractions, root canals, jaw surgery, dentures, cavity fillings, and gum disease.

Click Here for More Information

To sign up for classes, contact Shelly at mpostek@iwmf.com and please specify which class(es) you would like to be added to.
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.  
IWMF is dedicated to supporting and educating everyone affected by WM to improve patient outcomes while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email info@IWMF.com or visit www.IWMF.com
IWMF, 6144 Clark Center Ave., Sarasota, FL 34238 | info@iwmf.com | 1-941-927-4963
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