The Waldenstrom's Weekly
November 11, 2022
Volume 2, Issue 43
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"I was overwhelmed after my diagnosis...
Thanks IWMF for being my lifeline!" Susanna B.
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***SAVE THE DATE!***
GivingTuesday is on November 29th
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GivingTuesday is a world movement that proves the power of generosity.
People living with WM and supporters like you donate gifts of every size to help fund research aimed at achieving our mission of “A world without WM.”
As the world’s largest nonprofit funder of Waldenstrom’s research, The International Waldenstrom’s Macroglobulinemia Foundation’s goal is to raise more than ever this GivingTuesday 2022.
Your efforts will also help provide more support and education for everyone affected by WM including friends, family and care partners.
This is YOUR opportunity to make the biggest impact ever for all people living with WM. Click HERE to learn more about GivingTuesday.
We thank you for your support.
The IWMF Team
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From CancerCare:
Shared Decision-Making Series:
Patients and Caregivers
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Description
Shared decision making (SDM) provides a patient-centered approach to care. Health care providers work together with the patient to make health care decisions, focusing on what is best for the patient. This approach has been shown to improve patient communication and satisfaction while also reducing health inequalities among underserved populations. This two-part workshop series will discuss both the patient and the caregiver role in the shared decision-making process.
Tuesday, November 15, 2022
1 - 2:30 p.m Eastern Time.
Part one of this workshop will focus on the patient perspective of shared decision-making. Participants will learn about the shared decision-making health care model and how this patient-centered approach not only improves the patient-provider relationship but also focuses on the needs, values and preferences of the person with cancer. There will be time at the end dedicated to discussion and Q&A.
Thursday, November 17, 2022
1 - 2:30 p.m Eastern Time.
Part two of this workshop will focus on the caregiver perspective of shared decision-making. Participants will learn about the shared decision-making health care model and how caregivers have a unique experience in supporting their loved ones. Although each experience is unique, many caregivers face similar challenges during the decision-making process. There will be time at the end dedicated to discussion and Q&A.
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Next Weekend!
WMUK Patient Doctor Summit
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From the WMUK:
We are absolutely thrilled to be launching this year’s Patient-Doctor Summit on Saturday 19 November at Austin Court, Birmingham and we'd love you to join us.
This is our first fully hybrid event, so you have the choice to attend in person or virtually, and we’re really looking forward to welcoming you in person after so long.
In what promises to be a fantastic event, we’ll be bringing you the latest from the world of WM, giving you direct, exclusive access to WM experts and the ideal opportunity to connect with other WM patients.
Tickets are £20 for attending in person, and £5 for those attending virtually. If you can donate more then all the better, but equally, let us know if the cost will prevent you from coming. We want everyone to have the opportunity to attend and know many of you are concerned about the current cost of living crisis.
We will also be making sure masks and sanitiser are both available to help you feel at ease.
We can't wait to see you.
WMUK
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Leukemia & Lymphoma Society
Co-Pay Assistance Available for U.S. Patients!
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Great News! The Leukemia & Lymphoma Society WM Co-Pay Assistance Program is currently OPEN for U.S. Patients. Funds will not last long, so apply ASAP!
Instant Decision
No more waiting! Patients get a decision in real time and have immediate access to funds.
Quick Search Tool
Access current status of applications, award coverage period, award balances, claim submissions, and payment details without logging into the portal. Questions? Click here.
Increased household income threshold
Household incomes that are at or below 600% of the U.S. federal poverty guidelines as adjusted by the Cost of Living Index (COLI) may be eligible for assistance.
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The Leukemia & Lymphoma Society (LLS) is concerned with the wellbeing of blood cancer patients impacted by Hurricanes Fiona and Ian, and has launched the LLS Financial Relief Fund to support patients and their families.
The LLS Financial Relief Fund provides a $250 pre-paid VISA card to eligible blood cancer patients to assist with non-medical expenses including food, housing, utilities, and other essentials. Patients must reside in areas declared for individual assistance by FEMA. Please visit the website for a list of eligible zip codes.
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THIS SUNDAY at 4:00PM U.S. ET
Yoga Nidra with Ann
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Join this special monthly offering with Ann MacMullan this weekend!
Ann is inviting those affected by WM to her free 30 minute guided relaxation practice. Yoga Nidra meets live on Zoom this Sunday at 4:00pm U.S. ET. Yoga Nidra can reduce stress levels, help you sleep better, and elevate your well-being. Give yourself permission to relax and rest, while setting intentions for personal growth and exploring the deeper self.
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WMUK Patient Support Manager, Bob Perry and a group of friends, WMers, nurses and consultants will be taking on the mighty Fan Dance in a few weeks where they'll be hiking Pen Y Fan to raise funds for WMUK.
From Bob:
41 years ago I passed selection to join the Special Air Service. Part of that Selection was the infamous Fan Dance in the Brecon Beacons, a 22 km march up to Pen Y Fan and down twice. Since then, for the past 7 years I have lived with WM. Now 68 yrs old, I want to take a team of WM Patients, Consultant Haematologists and Clinical Nursing Staff on The Fan Dance, not only as a show of Positivity and teamwork, but also on behalf of the many people living with WM who sadly will not be physically robust enough to take part because of this condition. Thankfully this time I won't have to do it within 4 hours with a rifle and pack, but it is going to be a tough ask of the guys doing it with me. Please help us raise some funds to continue to support our patients.
Good luck to Bob and the crew, and if you want to offer your support click here!
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Support the IWMF through Amazon Smile |
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We are entering shopping season, and now you can make a difference for people living with Waldenstrom’s macroglobulinemia with the click of a mouse.
When you sign up for Amazon Smile and choose The International Waldenstrom's Macroglobulinemia Foundation Inc, a percentage of your eligible purchase goes to IWMF at no extra cost to you.
Here’s how to sign up… It’s quick, easy, and free!!!
Sign in with the same account you use for Amazon.com.
Select The International Waldenstrom's Macroglobulinemia Foundation Inc
Happy shopping and thank YOU!
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The holidays are coming! You can purchase an IWMF ornament if you click below! |
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IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email info@IWMF.com or visit www.IWMF.com
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IWMF, 6144 Clark Center Ave., Sarasota, FL 34238 | info@iwmf.com |
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