The Waldenstrom's Weekly
September 2, 2022
Volume 2, Issue 33
Thanks to YOUR generosity, the IWMF can offer education, information & support programs to the WM community free of charge.
- The Walk for Waldenstrom's -
Walk for Waldenstrom’s 2022
Sunday, September 18th at 10:00am (ET).

Join us to raise awareness and support for the International Waldenstrom’s Macroglobulinemia Foundation (IWMF).
 
Walk for Waldenstrom’s is a 1-mile walk/run fundraising and awareness event for the IWMF and global WM community.
 
It’s FREE to register!

 
Join the Walk for Waldenstrom’s from anywhere in the world.
Walk in a park, on the beach, in your neighborhood (bring the dog and order them an IWMF bandana or T-shirt HERE ), from the comfort of your own home, or walk on the treadmill. 

Don’t want to walk? No problem! 
Pick an activity you enjoy… Pickleball, bridge, even reading a book. 
 
You can create your own fundraising page and reach out to your friends and family for support, or sponsor someone else that created a page for this event.
 
Need help creating your page?
Email Donna Cutillo at dcutillo@iwmf.com, and she will walk you through it.
 
Funds raised from the Walk for Waldenstrom’s make a big difference to the global WM community – these funds support vital WM research, and allow IWMF to continue offering free resources, education, and materials to everyone living with WM.
 
In appreciation of you joining the Walk for Waldenstrom’s
 
Raise $100 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
 
Raise $800 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum
 
Raise $2,000 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum
  • A redeemable $300 travel certificate for you or a friend to attend a future IWMF Educational Forum


Because WM is a rare and little-known disease, please spread the word by sharing YOUR story, explaining what WM is and, by asking everyone you know to support IWMF.
 
Thank you for being a part of Walk for Waldenstrom’s.
‌
- Education -
A BIG THANK YOU to the 1,228 community members from 33 countries who registered for the Ed Forum!

**We need YOUR help completing session surveys located in our event website HERE. Your voice counts and your comments will be shared with our presenters to help plan future programs.

How did we do? Please click HERE for the OVERALL Ed Forum survey. Thanks for your help so we can continue improving!

Please Note: You will need to register if you haven't already in order to view the presentations.
Leukemia & Lymphoma Society
National Blood Cancer Conference
A Free Virtual Educational Conference for Patients, Survivors,
Caregivers, and Healthcare Professionals

SATURDAY
SEPTEMBER 17, 2022
11:30AM - 3:30PM U.S. EDT

Breakout Session on WM:
For the full agenda and speakers, please click below!
For questions, please contact:
The Leukemia & Lymphoma Society
800.955.4572 or National.BCC@lls.org
- Support -
Leukemia & Lymphoma Society
Free One-on-One Nutrition Consultations
The Leukemia & Lymphoma Society’s (LLS’s)
PearlPoint Nutrition Services®
Patients and their caregivers may receive a free one-on-one phone consultation with one of LLS’s registered dietitians who have expertise in oncology nutrition.

Eating well helps people with cancer feel better, stay stronger, and better tolerate the side effects of treatment. Good nutrition also helps the body replace blood cells and healthy tissues that are damaged as a result of cancer treatment.

Or call 877-467-1936

Telephone consultations are available to patients and caregivers in the United States and Canada only. If you live outside the U.S. or Canada, email PearlPointNutrition@LLS.org to connect with a dietitian via email.
 
What to Expect from a Nutrition Consultation:
 
Consultations last approximately 30 minutes. By speaking to a registered dietitian, you can learn
  • Strategies to improve nutrition and side effects
  • Tips for meal planning and grocery shopping
  • How to care for a loved one during cancer treatment
  • Answers to your nutrition questions
  • Questions to ask your healthcare team
  • Additional nutrition resources online and in your area
 
The nutrition consultations are intended for general educational purposes. Due to the nature of the consults, these services are not available
  • Recommendations for dietary supplements and herbal preparations
  • Prescription diet orders or restrictive diets
  • Nutrition therapy by tube or IV
  • Free meal delivery
The Patient Access Network (PAN) Foundation:
WM Fund OPEN for Eligible U.S. Patients!
The PAN Foundation is helping patients afford their out-of-pocket costs with annual grants of $7,000.
 
We know it can be difficult to afford the out-of-pocket costs of treatment for WM. If you’re looking for more financial assistance resources to help with your out-of- pocket treatment costs, we encourage you to learn more about our friends at the PAN Foundation.
 
The Patient Access Network (PAN) Foundation is a national organization that helps underinsured patients with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs. You can find more information about their WM fund below.
 
About PAN’s WM fund
 
PAN’s WM patient assistance fund provides $7,000 per year in
financial assistance to pay for the deductibles, co-pays, and coinsurance costs associated with WM treatment. To qualify for funding, patients living with WM must meet the following eligibility
requirements:
 
  • Be getting treatment for WM.
  • Reside and receive treatment in the U.S. or U.S. territories
  • Be prescribed a medication or product that is listed on PAN’s list of covered medications
  • Have an income that falls at or below 500% of the Federal Poverty Level.
  • Have Medicare health insurance that covers the qualifying medication or product.
 
Review the full eligibility criteria HERE and check if you qualify.
 
How to apply
 
It’s easy to apply and you’ll learn if you’re approved for a grant immediately. Visit PAN’s online patient portal to get started and check out their portal how-to guides for step-by-step instructions on common tasks like creating an account and applying for assistance. You can also reach PAN by phone at 1-866-316-7263, Monday through Friday, 9 a.m. to 7 p.m. Eastern Time.
Have you ordered IWMF Swag? Click the photo below!
This is a paid clinical trial advertisement.  
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.  
IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email info@IWMF.com or visit www.IWMF.com