The Waldenstrom's Weekly

May 5, 2023

Volume 3, Issue 15

"I'll keep right on keeping up with WM and its treatments...it's all very exciting to see what's in the pipeline."

May is National Cancer Research Month

The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) invites you to join us in support of this global awareness campaign highlighting the importance of cancer research. Research is crucial for identifying effective treatments and potential cures for Waldenstrom’s Macroglobulinemia (WM). The IWMF has invested over $24 million in research since 1999 and we are currently funding 14 research projects. In April 2023, eight more projects were approved. All our support for research projects has been made possible because of our donors, we can’t do this without you!

During the month of May, please join us as we raise awareness about the important and incredible impact research has on treating and one day curing those diagnosed with WM. We invite you to make a donation to the IWMF to show your support for National Cancer Research Month.

If you have any questions, please reach out to Annette Preston at apreston@iwmf.com or 317-919-8238.

- Research -

Brukinsa Update for WM Patients in Korea

From Korea Biomedical Review

Beigene Korea said Monday that its Brukinsa Capsule 80mg (zanubrutinib) began to receive insurance benefits to treat Waldenstrom Macroglobulinemia (WM) starting this month.

The new reimbursement standard applies to Brukinsa’s monotherapy in adult WM patients who have received one or more treatments. Read the full article here.

출처 : KBR(https://www.koreabiomed.com)

2 Year Anniversary of WM Community Yoga &

Cardio Flow- TODAY at 2PM U.S. ET with Ann

Celebrating 2 YEARS of Healthy Exercise with Ann MacMullan!

We are thrilled to share that it is our TWO year anniversary since launching our "Get Moving in May" pilot yoga program, which has since grown to FOUR FREE different offerings to WM community members! Chair Yoga, Yoga Nidra, Cardio Flow, and Sound Meditation are offered throughout each month, so check out the wellness calendar below! Contact Shelly at mpostek@iwmf.com if you wish to be added to group mailing lists, and recordings of classes are emailed if you cannot attend live.

A HUGE thanks to Ann for continuing to educate and inspire our WM community members!

TODAY at 2PM Eastern Time!

Cardio Flow - 45 minutes of Mindful Movement

Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!

To join the mailing list for this program, contact Shelly at mpostek@iwmf.com 

IWMF Second Opinion Financial Assistance Program in Partnership with NORD

The IWMF is currently offering our first financial assistance program in partnership with The National Organization for Rare Disorders (NORD).



The IWMF Travel & Lodging (T&L) Assistance Program provides individuals diagnosed with WM, or those being evaluated for the disease, with financial assistance related to second opinion or diagnosis confirmation appointments up to the program's established financial limit. With WM being a rare disease, having a second opinion with a WM specialist can be critical to confirm diagnosis and course of treatment. Community members inside AND outside of the U.S. may qualify.

CLICK HERE for the NORD flyer!

For further information or to apply for this new program, contact NORD M-F between 8:30am - 6:00PM EDT:

203.308.5902

IWMFTravel@rarediseases.org

Please note that funding is limited. If you would like to contribute to the IWMF and our T&L Fund, please contact Annette Preston, IWMF Director of Donor Engagement, at apreston@iwmf.com.

This is a special opportunity to help other WM patients!

- Education -

Webinar from Lymphoma Research Foundation:

Information for Relapsed/Refractory Lymphoma Patients

May 17, 2023

1:00PM - 3:00PM ET

Program Overview:

• Lymphoma Overview
• Who Might Experience Relapse?
• Treatment Options Available to Relapsed/Refractory Patients
• Questions to Ask Your Healthcare Team
• Relapsed/Refractory Lymphoma and CLL Resources
• Question and Answer Session



Speaker: