The Waldenstrom's Weekly

July 28, 2023

Volume 3, Issue 27

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

-Special Announcements -

Starting in September: Discover and experience holistic tools to support your journey towards better health alongside wellness experts, while connecting and sharing with others managing Waldenstrom's on Zoom. Stay tuned!

Register Today!

Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st

Hear from experts, meet patients and families and talk to healthcare professionals at the FIRST EVER European Patient Forum co-hosted by IWMF and WMUK!

We’ll be live in Birmingham (United Kingdom) and Amsterdam (The Netherlands) covering everything you want to know about living with WM.

Our joint sessions will be streamed between our two locations, and will conclude with an ‘Ask the Healthcare Professional’ panel where you may ask your questions LIVE to a panel of nurses, doctors and allied healthcare professionals from across Europe.

The event is an exciting first-of-its-kind for both our organisations, combining our resources to provide even MORE expert advice and personal support for people affected by WM across Europe.

Click HERE for more information, agenda & registration.

We hope you can join us!

WALK FOR WALDENSTROM’S SPOTLIGHT:

Mission Viejo, California

The Orange & San Diego Counties, CA IWMF Support Group led by Dr. Julianne Flora-Tostado is hosting their 2023 Walk for Waldenstrom’s on Sunday, September 10 at 8:30 am in Mission Viejo, CA. Julianne stated “We will greet, chat and have a bite of breakfast starting at 8am. This is so we can enjoy introductions and still get going ahead of the heat. Meet us at the Heart of Mission Viejo sculpture (across from the flagpole) at Murray Community and Senior Center in Mission Viejo at 8am.”

If you would like to join Julianne and the Orange & San Diego Counties Group in Mission Viejo, or if you are interested in hosting a walk in your city, please reach out to Annette Preston, Director, Donor Engagement at [email protected] or 317-919-8238.

August is National Make-A-Will Month 

With a legal will, you can approach the future with peace of mind by having a plan that communicates your wishes, provides for your loved ones, and sustains the causes you believe in. We’ve partnered with FreeWill to make it easier than ever to start your will and make your most important plan for the future. More to come in August!

The IWMF is proud to have a volunteer-based telephone and e-mail LIFELINE intended to address specific WM questions from our community members. The LIFELINE is staffed by WM patients and caregivers who are willing to share their experiences in specialized areas. These volunteers do not give medical advice or treatment recommendations. However, LIFELINE volunteers have personal, and often extensive, experience on the topic(s) which they support, and they may be able to assist you in accessing better information or to refer you to experts in specific areas.

Check out the LIFELINE directory HERE.

Are you interested in being a LIFELINE volunteer? Contact [email protected].

Leukemia & Lymphoma Society

Co-Pay Assistance Fund OPEN for U.S. Patients

Great News! The Leukemia & Lymphoma Society WM Co-Pay Assistance Program is currently OPEN for U.S. Patients!  Funds will not last long, so apply ASAP!

Recording Available! Sound Meditation for WM

Contact Shelly to be added to the mailing list for future monthly sessions at [email protected].

WM People of Color Support Group

Next Friday at 1:00PM U.S. ET

The WM People of Color Group will be having their next meeting for patients and caregivers next Friday. Attendees will join leader Paula on Zoom for a sharing session, which will last approximately one hour.

Friday, August 4th, 2023

1:00PM - 2:00PM U.S. ET

To join the mailing list for this group, contact [email protected]

WM Community Corner

The IWMF Eastern Massachusetts Support Group met in-person on July 11th. They enjoyed each other’s company while enjoying food on the patio at Papa Razzi in Wellesley, MA.

Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com