The Waldenstrom's Weekly

August 4, 2023

Volume 3, Issue 28

The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure.

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-Special Announcements -

Register Today!

Join the IWMF and WMUK for the First Ever European Patient Forum on Saturday, October 21st

Hear from experts, meet patients and families and talk to healthcare professionals at the FIRST EVER European Patient Forum co-hosted by IWMF and WMUK!


We’ll be live in Birmingham (United Kingdom) and Amsterdam (The Netherlands) covering everything you want to know about living with WM.


Our joint sessions will be streamed between our two locations, and will conclude with an ‘Ask the Healthcare Professional’ panel where you may ask your questions LIVE to a panel of nurses, doctors and allied healthcare professionals from across Europe.


The event is an exciting first-of-its-kind for both our organisations, combining our resources to provide even MORE expert advice and personal support for people affected by WM across Europe.


Click HERE for more information, agenda & registration.

We hope you can join us!

WALK FOR WALDENSTROM’S SPOTLIGHT:

Sarasota, Florida

The IWMF Sarasota Florida Support Group & Home Office will be hosting a Walk for Waldenstrom's on Saturday, September 16th at 8:30AM. The walk will take place on the Legacy Trail in Sarasota. Details forthcoming to Sarasota area community members. We are securing a discount at a local hotel for anyone who wants to make a weekend trip to join us for a mile walk, with snacks and drinks provided. We look forward to gathering together to get some exercise, while raising funds and WM awareness! For questions, please contact [email protected].

Continuing Medical Education Program Completed

The IWMF partnered with The Leukemia & Lymphoma Society and Medical Learning Institute on August 2nd to offer a continuing medical education (CME) program on treating indolent lymphoma that featured WM; over 200 healthcare professionals registered to participate.  


- Education -

Virtual Ask the Doctor About Lymphoma: Information for Relapsed/Refractory Patients

Topic

This program is for lymphoma/CLL patients whose disease has returned or is no longer responding to treatment.


Program Overview

  • Lymphoma Overview
  • Who Might Experience Relapse?
  • Treatment Options Available to Relapsed/Refractory Patients
  • Questions to Ask Your Health Care Team
  • Relapsed/Refractory Lymphoma and CLL Resources
  • Question and Answer Session
Register Here

The Leukemia & Lymphoma Society is having their Virtual National Blood Cancer Conference on Saturday, September 9th. Dr. Sikander Ailawadhi (Mayo Clinic) will be the breakout session speaker for WM. You can check out the agenda and register to attend HERE.

- Support -

The Patient Access Network (PAN) Foundation:

WM Fund OPEN for Eligible U.S. Patients!

The PAN Foundation is helping patients afford their out-of-pocket costs with annual grants of $7,000.

 

We know it can be difficult to afford the out-of-pocket costs of treatment for WM. If you’re looking for more financial assistance resources to help with your out-of- pocket treatment costs, we encourage you to learn more about our friends at the PAN Foundation.

 

The Patient Access Network (PAN) Foundation is a national organization that helps underinsured patients with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs. You can find more information about their WM fund below.

 

About PAN’s WM fund

 

PAN’s WM patient assistance fund provides $7,000 per year in

financial assistance to pay for the deductibles, co-pays, and coinsurance costs associated with WM treatment. To qualify for funding, patients living with WM must meet the following eligibility

requirements:

 

  • Be getting treatment for WM.
  • Reside and receive treatment in the U.S. or U.S. territories
  • Be prescribed a medication or product that is listed on PAN’s list of covered medications
  • Have an income that falls at or below 500% of the Federal Poverty Level.
  • Have Medicare health insurance that covers the qualifying medication or product.

 

Review the full eligibility criteria HERE and check if you qualify.

 

How to apply

 

It’s easy to apply and you’ll learn if you’re approved for a grant immediately. Visit PAN’s online patient portal to get started and check out their portal how-to guides for step-by-step instructions on common tasks like creating an account and applying for assistance. You can also reach PAN by phone at 1-866-316-7263, Monday through Friday, 9 a.m. to 7 p.m. Eastern Time.

The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.  

Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com

IWMF, 6144 Clark Center Ave., Sarasota, FL 34238 | [email protected] | 1-941-927-4963
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