|
The Waldenstrom's Weekly
October 27, 2023
Volume 3, Issue 40
| |
The IWMF mission statement is to support and educate everyone affected by Waldenstrom’s macroglobulinemia (WM) to improve patient outcomes while advancing the search for a cure. | |
- European Patient Forum - | |
The IWMF wants to extend our sincere THANKS to the WMUK for their collaboration for our first-ever European Patient Ed Forum! We are also grateful for all of our International Affiliate Leaders, IWMF Board Members & Staff, and 233 attendees who made the event possible. We will be sure to share the recordings as soon as they are available, and you do not want to miss them! Please visit the IWMF social media channels to read more about the amazing presentations and to see photos from the event. | |
- Walk for Waldenstrom's - | |
|
From Annette Preston, IWMF Director, Donor Engagement:
YOU have helped raise over $189,000 for the Walk for WM so far, AMAZING! As our Walk for Waldenstrom's fundraising efforts will continue through December 31, 2023, we are confident that we can achieve a record breaking $200,000 this year! Please join us to help raise awareness and support of WM and the IWMF
throughout the rest of 2023! Please share our Mightycause page or even donate in honor or memory of a loved one. We are about $10,000 away from reaching $200,000!
We invite you to join us in celebrating this great event and if you are interested in hosting a Walk, there is still time. Please reach out to me at [email protected] for more information. In addition, If you set up your own fundraising page, you will be eligible to receive IWMF incentives below:
- Raise $100 and receive IWMF Walk for Waldenstrom’s T-Shirt
- Raise $800 and receive IWMF Walk for Waldenstrom’s T-Shirt and complimentary registration to a future IWMF Educational Forum
- Raise $2,000 and receive IWMF Walk for Waldenstrom’s T-Shirt, complimentary registration to a future IWMF Educational Forum, and a redeemable $300 travel certificate for you or a friend to attend a future IWMF Educational Forum
We have mailed out over 80 T-Shirts to folks who have raised over $100! Thank you to all who have participated, and for helping to make this event a huge success!
| |
|
IWMF Global Educational Webinar
Wednesday, November 8th at 2:00PM U.S. ET
| |
Bone Marrow Transplantation and Cellular Therapy – Past, Present, and Future for Blood Cancer and WM Patients | |
On November 8th at 2:00 PM U.S. Eastern Time, Join Peter DeNardis, IWMF Board Chair, for an hour discussion and Q&A with Dr. Fred Appelbaum. Dr. Appelbaum is the Executive Vice President and Clinical Research Professor at Fred Hutch Cancer Center (Seattle, WA) and author of “Living Medicine: Don Thomas, Marrow Transplantation, and the Cell Therapy Revolution” (2023). Dr. Appelbaum works with WM patients in the context of stem cell transplantation, and was involved with the very first clinical trials of anti-CD20 antibodies (rituximab) and their early application to WM. | |
*Please note that we are using a new platform called Zoom Sessions for this webinar, so please be advised that you will need to either a) register using a Zoom account, OR b) you will need to verify your email address with a numeric code upon registration. Contact the office for any questions at [email protected]. | |
|
From Patient Power:
Are you thinking ahead to the holidays this year? Patient Power is, especially as preparation can help people with cancer cope with the stress of the season.
Larysa Sanchez, MD, Icahn School of Medicine at Mount Sinai, and Christy Vaal, MSW, LCSW, will discuss how to navigate the upcoming holidays when you are also dealing with cancer. They will talk about the new COVID-19 vaccine and treatments, how to communicate special requests with family and friends, and strategies for safer traveling
| |
|
BeiGene Webinar on November 2nd at 2PM US ET
Support for Cancer Caregiver
The MVPs of the Cancer Treatment Team
| |
|
From BeiGene:
Caring for someone with cancer, while incredibly meaningful, can lead to significant emotional, physical and social distress. Please join us in learning about caregiver distress and the positive benefits that can emerge throughout the experience. We will explore communication and self-care tools that caregivers can use to navigate care, complex treatment decisions and day-to-day life challenges. Important legislation that could provide better education and support for all caregivers will also be discussed along with a call to action to better integrate caregiver support into quality cancer care.
| |
WMFC Virtual Ed Forum - NEXT WEEKEND! | |
|
Bing-Neel Syndrome Support Group
Registration Open
| |
|
Registration Open!
From Bing-Neel Group Co-Leader, Julie Davidson:
"We are going to try something a little different for the fall Bing- Neel Support Group meeting on Sunday, November 19 at 1 PM and 7 PM (EST-US). There will be a couple of our own members presenting their stories. Then there will be a fun participation presentation by Joseph Hawthorne ACSM-CPT, AKC, RBT, CSC, Owner of Block Fitness (blockfitco.com)."
| |
|
International Young WM Support Group Meeting
Monday, November 13th at 8:00PM US ET
| |
|
The International Young WM Support Group will be having a meeting in September for patients and caregivers under the age of 50. Attendees will join Co-Leaders Ryan, Deborah and Jason on Zoom for a caring and sharing session, which will last approximately one hour.
Monday, November 13th
8:00PM - 9:00PM U.S. ET
To join the mailing list for this group, contact Michelle: [email protected]
| |
Cathy Zimmerman crossed the finish line at the Chicago Marathon earlier this month with a time of 4:44:31! Cathy has raised $825 for the IWMF on her fundraising page, CONGRATS Cathy! | |
Pumpkin Muffin Recipe from Patient Resource | |
|
From Patient Resource:
Fall flavors center around pumpkin spice. For a healthy treat, try this simple recipe. Just mix all the ingredients together and bake in a muffin tin at 375 for about 25-30 minutes (until a toothpick comes out dry). Enjoy!
Preheat oven to 375
Spray pan with non-stick cooking spray
3/4 cup Non-Fat Plain Greek Yogurt
1 cup Flour
1 tsp Baking Powder
2/3 cup Pumpkin
½ cup Splenda Granules or Sugar
Add cinnamon to taste (about a tsp)
| |
Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com | |
IWMF, 6144 Clark Center Ave., Sarasota, FL 34238 | [email protected] | 1-941-927-4963 | | | | |
