The Waldenstrom's Weekly
September 30, 2022
Volume 2, Issue 37
Because of YOU, the IWMF can provide FREE programming including support, education, and information for all WM community members.
- Special Announcements -
TODAY is Rare Cancer Day!
TODAY is Rare Cancer Day ! It is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by the NORD Rare Cancer Coalition®, which is composed of 27 rare cancer-specific member organizations, Rare Cancer Day is observed on September 30 to highlight the challenges patients face and to unify individuals living with rare cancers such as WM for awareness and early diagnosis.

Here is an example of a Facebook post that you can share today:

Did you know that approximately 1 in 5 individuals living with cancer in the US is diagnosed with a rare cancer? You may be rare, but you are not alone! Learn more about rare cancer and how you can help @NationalOrganizationforRareDisorders and the Rare Cancer Coalition raise awareness for #RareCancerDay today!
IWMF Home Office Team Safe from Hurricane Ian!
The IWMF Home Office team is grateful to all be safe from Hurricane Ian after a very frightening week. The IWMF's thoughts are with our community members who were more directly impacted by the storm's wrath, and who may still be impacted up north. We hope you are staying healthy, safe, and Waldenstrong!
Amazon Smile Benefits IWMF When you Shop!
A great way to give to IWMF without costing you a penny!

Whether you already shop on Amazon or are just signing up, AmazonSmile will donate 0.5% of the purchase price from your eligible purchases to the International Waldenstrom’s Macroglobulinemia Foundation simply by choosing us.

If you’re already registered for Amazon, simply click here and start shopping 😊

If you are joining for the first time, just follow these easy steps.
  1. Create a new account HERE
  2. Type in International Waldenstrom’s Macroglobulinemia Foundation in the search tab
  3. Start shopping!

Amazon Prime members will get great deals on “Prime Early Access Sale” on October 11th -12th for 48-hours.
Deals from the sale are available in 15-countries including the U.S., the U.K., China, France and more.

Happy shopping and thank you!
- Support -
Recordings Available!
Sound Meditation for WM & Yoga Nidra
Relax to the sound of Ann Grace's authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. According to sound healing traditions that have been passed down through both lineage and training, these bowls introduce a healing harmonic sound wave that helps dislodge stagnation on the cellular level, bringing the mind and body into perfect tune. 

Listen to the recording HERE and enjoy!
BONUS Recording! Join Ann MacMullan for a guided Yoga Nidra meditation. No movement required! Sit or lie down comfortably and enjoy 30 minutes of conscious relaxation.

Yoga Nidra can reduce stress levels, help you sleep better, and elevate your well-being. Give yourself permission to relax and rest, while setting intentions for personal growth and exploring the deeper self.

Check it out HERE!
Contact Michelle Postek to be added to the mailing lists for these offerings at [email protected].
IWMF Bing-Neel Support Group Meeting
October 9th, 2022
Please join us as we gather online, via Zoom, to interact with each other and to listen to a wonderful video presentation by Dr. Monique Minnema on Bing Neel Syndrome.

You may have seen Dr. Minnema in the “Ask the Doctors” panel at the recent Ed Forum. Monique Minnema was trained as both an internist and a hematologist at the Academic Medical Center, Amsterdam and the University Medical Center, Utrecht. She started working as a hematologist in 2005 at the department of Hematology, UMC Utrecht. She specialized in the diagnosis and treatment of B cell malignancies, especially plasma cell disorders, such as Multiple Myeloma, AL amyloidosis, and Waldenström’s Macroglobulinemia. Prof. Dr. Minnema initiated and currently supervises the hematology clinical research team, which coordinates and supports all clinical studies at the department of Hematology. Her main focus of clinical research is the development of novel therapies (both cellular and drug) for plasma cell disorders and lymphoma. 
Date: October 9, 2022
Times: 2:00 PM (U.S. Eastern Time)
7:00 PM (U.S. Eastern Time)
This meeting is for all those who have Bing-Neel, care for someone with BN or are interested in finding out more about the syndrome.
Please register below. You must register to receive the link to attend the meeting. For registration or other questions, please email [email protected] or [email protected] 
We can’t wait to see you there!
Julie Davidson
Peter Freese
Stuart Quick
Bing Neel IWMF Lifeline Volunteers
Eileen Sullivan, Meeting Co-coordinator
IWMF Volunteer Support Group Leader, Massachusetts, USA
WM People of Color Discussion Group
Next Friday, October 7th, at 1:00PM U.S. ET
Dr. Sikander Ailawadhi of Mayo Clinic (Jacksonville, FL) will be meeting with the WM People of Color group on Friday, October 7th for an informal discussion and Q&A. To be added to the mailing list, contact Michelle Postek at [email protected]
Click below to get your IWMF Swag, and be sure to send a picture to [email protected] to be featured in the WM Weekly !
IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit