The Waldenstrom's Weekly
August 19, 2022
Volume 2, Issue 31
IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.

Please donate by clicking below.
- Education -
You Don't Want to Miss this Opportunity!
Check out our All-Star lineup of speakers here.
- Special Announcement -
U.S. Community Members:
Don't Forget to Make your Mark this Month
Do you have a plan for the future? This August you still have time to plan by starting your estate plan with a free resource from FreeWill.
You may have seen our note about National Make-A-Will Month, but we wanted to share again why estate planning is important before the month ends. This month-long event is about empowering you to protect what is most important. The IWMF makes it easy for you and your loved ones to start your plans thanks to this free online tool.
As a reminder, Make-A-Will Month serves as a powerful time of year to make your mark—on yourself, your loved ones, and patients diagnosed with Waldenstrom’s macroglobulinemia (WM). Here’s all that your mark can include:
More security as you look to the future
Agency over the critical choices you make in life
Readiness to support your loved ones and pets, no matter what
Kindness for the causes that you value
Your mark can build a legacy that supports and educates everyone affected by Waldenstrom’s macroglobulinemia (WM) through a gift in your will that costs nothing today. 
We hope this month-long event is an opportunity for you and your loved ones to create your plans and get peace of mind for the future. 

The IWMF team
- Support -
WM Community Corner
From Lisa J. Wise, IWMF Chair of Information & Support

Dear Waldenfriends: 

We’re all on this WM journey together. Thank you, from the bottom of my heart, for allowing me to benefit from your wisdom, inspiration and strength. 

What an extraordinary IWMF community we share, filled with patients, caregivers and medical rockstars who care so deeply about one another -- like family.

I hope that ideas conveyed in this essay may resonate with some of you, make you feel a little less alone, or, at the very least, start a really interesting conversation!

Sending each one of you all my warmest wishes for well-being as you find your WM way --

Young WM International Support Group
Monday, August 22nd at 7:30PM U.S. ET
WM patients and caregivers under the age of 50:

Join the Young WM International Support Group for a sharing session on Monday, August 22nd from 7:30PM - 8:30PM U.S. Eastern Time.

To get the Zoom link and join the mailing list, contact Michelle at [email protected].
Recording Available: Yoga Nidra with Ann
Join Ann MacMullan for this month's Yoga Nidra recording. This practice can reduce stress levels, help you sleep better, and elevate your well-being. Give yourself permission to relax and rest, while setting intentions for personal growth and exploring the deeper self.
The next Yoga Nidra session will be on Sunday, September 18th at 4:00PM U.S. ET. Contact Ann directly to join her list for this offering at [email protected].
- The Walk for Waldenstrom's -
Join us for the Walk for Waldenstrom’s 2022, Sunday, September 18th at 10:00am (ET).
This is YOUR opportunity to raise awareness and support for the International Waldenstrom’s Macroglobulinemia Foundation (IWMF).
What is the Walk for Waldenstrom’s?
Walk for Waldenstrom’s is a 1-mile walk/run fundraising and awareness event for the IWMF and global WM community of care partners, friends, and family.
There’s no registration fee or charge!
Join the Walk for Waldenstrom’s from anywhere in the world.
We make it easy… Walk in a park, on the beach, in your neighborhood (bring the dog), from the comfort of your own home, or walk on the treadmill. 
Don’t want to walk? No problem! 
Pick any activity you enjoy… Pickleball, bridge, even reading a book. 
You will be further participating by asking your friends and family to join in the Walk for Waldenstrom’s.
Because WM is a rare and little-known disease, please spread the word by sharing YOUR story, explaining what WM is and, by asking everyone you know to support IWMF.
To get started, create your very own fundraising page, and reach out to your friends and family for support.
Don’t know how to create your page… We can help!
Just email Donna Cutillo at [email protected], she will walk you through it.
Funds raised from the Walk for Waldenstrom’s will make a very real difference to the WM community around the globe – these funds support vital WM research, the creation of IWMF publications and literature, and allow IWMF to continue offering free resources, education, and materials to everyone living with WM.
In appreciation of you joining the Walk for Waldenstrom’s to raise funds and increase awareness about WM, we offer the following incentives toward sending you or someone you care about to a future IWMF Educational Forum:

Raise $100 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt

Raise $800 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum

Raise $2,000 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum
  • A redeemable $300 travel certificate for you or a friend to attend a future IWMF Educational Forum
Have you ordered IWMF Swag? Click the photo below!
This is a paid clinical trial advertisement.  
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.