The Waldenstrom's Weekly
October 28, 2022
Volume 2, Issue 41
Your generous contributions allow the IWMF to provide information, education and support programs free of charge to all WM community members. 
- Special Announcement -
IWMF at IWWM-11 in Madrid, Spain
IWMF staff and Board Trustees are currently attending the 11th International Workshop for Waldenstrom's Macroglobulinemia (IWWM) in Madrid, Spain.

The Workshop’s mission is to further the understanding, diagnosis, treatment, and prevention of disorders affecting the blood, bone marrow, and the immunologic system, by promoting targeted research, clinical care methods, education, training, and advocacy for Waldenstrom’s macroglobulinemia. Click here for abstracts that are being presented throughout the workshop.

Left to right:
Dr. Stephen Ansell, IWMF Board Trustee, Mayo Clinic
Newton Guerin, IWMF President & CEO
Sara McKinnie, IWMF Manager, Meetings & Partner Engagement
Chris Patterson, IWWM-11 Secretariat/Organizer, Bing Center for WM- Dana-Farber Cancer Institute
Dr. Tom Hoffmann, IWMF Vice-Chair, Research
Dr. Glenn Cantor, IWMF Board Trustee
- Education -
Recording Available! LLS Research Now:
New Research on COVID and Blood Cancer
From Dr. Gwen Nichols of the Leukemia & Lymphoma Society:

During our recent LLS Research Now call, expert panelists shared new insights and updates regarding COVID-19 and vaccine response in blood cancer patients and survivors. Dr. Larry Saltzman highlighted new data from the LLS National Patient Registry on how blood cancer patients respond to COVID-19 vaccines. You can read the latest publication from the Registry here, and access a host of additional COVID publications and resources on the LLS website here.

The full recording of the LLS Research Now recording is available for you HERE.

During the call, more than 180 questions were submitted. We are working to address them—please keep checking the resources page linked above for the latest information.

If you have more questions, I encourage you to take advantage of our Information Resource Center (1.800.955.4572), which is staffed by specialists who can answer your blood cancer and treatment-related questions. If you have questions about the Registry, you can email them at [email protected].
This Weekend!
Lymphoma Research Foundation (LRF)
North American Educational Forum on Lymphoma
October 28th - 30th, 2022
The North American Educational Forum on Lymphoma is an annual 2 ½ day program providing presentations from expert speaking faculty, disease and treatment specific information, information on clinical trials, the latest advances in lymphoma research, and networking opportunities for members of the lymphoma community.

Click the button below for details on the 2022 Educational Forum on Lymphoma.
GRYT Health Global Virtual Cancer Conference
November 2nd - 5th, 2022
Don't Forget to Register!
WMUK Patient-Doctor Summit
From WMUK Patient Support Manager, Bob Perry:

"This Summit is an amazing opportunity to get the most up to date information on WM and to learn how to best live well with WM, or if you are a Carer/Partner how to live their condition with them. We particularly welcome any newly diagnosed people out there. By attending in person you will get an opportunity to talk to some of our top Clinicians and Nurses as well as fellow patients. Also if you register for this hybrid event, which will recorded, you will have access to those recordings for the following 12 months. So please, come along and meet us, or join us remotely, but please register here and I look forward to meeting you there!!"
FreeWill webinar: How Stock Giving Benefits You
In this session, you’ll learn more about the many benefits — both to you, and to IWMF of donating appreciated securities to charity. This year in particular, philanthropic people like you are looking for ways to make a difference without opening their wallets. Through our partnership with FreeWill, IWMF has made it easier than ever to give the gift of stocks or mutual funds. This easy and tax-advantageous way of giving may allow you to give even more than you think possible. Learn more on Dec. 6, 2022 at 5:30pm ET by joining a free session on “How Stock Giving Benefits You.” 
- Support -
WM Community Corner
Ron Ternoway (Nova Scotia, Canada) was interviewed on a podcast for the Leukemia & Lymphoma Society of Canada about his WM experience. Check it out HERE!
New Discussion Group: WM Vietnam Veterans
November 30th from 2:00PM - 3:00PM U.S. ET

For the first time in its history, the IWMF is proud to be hosting a special discussion group for WM community members who served in the Vietnam war. 

On November 30th from 2-3 pm ET, topics for discussion will include: sharing experiences with Agent Orange; navigating the Veterans Administration and more.

The meeting will be moderated by Ray Vance, IWMF Lifeline Volunteer and Vietnam Veteran.

For any questions, please contact Michelle Postek at [email protected].

Please register at the button below for the meeting. Once you register, you will receive a confirmation email in your inbox with the Zoom link.
Leukemia & Lymphoma Society Webinar
Caregiving over Coffee: Caring & Coping
Recording Available
Sound Meditation for WM
Relax to the sound of Ann MacMullan's authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. According to sound healing traditions that have been passed down through both lineage and training, these bowls introduce a healing harmonic sound wave that helps dislodge stagnation on the cellular level, bringing the mind and body into perfect tune. 

Some comments about the sound meditations for WM:
  • That was pure bliss
  • So wonderful…I felt I left my body and floated away
  • This was one big love lullaby in a shared embrace

Check it out below!
The holidays are coming! You can purchase an IWMF ornament if you click below!
IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit