The Waldenstrom's Weekly
August 26, 2022
Volume 2, Issue 32
Thanks to YOUR generosity, the IWMF can offer education, information & support programs to the WM community free of charge.
- Education -
It's not too late to register!
You Don't Want to Miss this Opportunity!
Check out our All-Star lineup of speakers here . We hope you take advantage of the opportunity to have a front row seat learning from WM experts at the forefront of treatment and research. Live, Learn, & Thrive with WM!

For community members who have already registered- Did you see your reminder email yesterday that today is a virtual platform preview day? Log in with the link in your reminder email and explore the environment in preparation for the big event- we are excited to share what we have been working on with you!
- The Walk for Waldenstrom's -
SAVE THE DATE!!!
 Walk for Waldenstrom’s 2022
Sunday, September 18th at 10:00am (ET).

Join us to raise awareness and support for the International Waldenstrom’s Macroglobulinemia Foundation (IWMF).
 
Walk for Waldenstrom’s is a 1-mile walk/run fundraising and awareness event for the IWMF and global WM community.
 
It’s FREE to register!

 
Join the Walk for Waldenstrom’s from anywhere in the world.
Walk in a park, on the beach, in your neighborhood (bring the dog), from the comfort of your own home, or walk on the treadmill. 

Don’t want to walk? No problem! 
Pick an activity you enjoy… Pickleball, bridge, even reading a book. 
 
You can create your own fundraising page and reach out to your friends and family for support, or sponsor someone else that created a page for this event.
 
Need help creating your page?
Email Donna Cutillo at dcutillo@iwmf.com, and she will walk you through it.
 
Funds raised from the Walk for Waldenstrom’s make a big difference to the global WM community – these funds support vital WM research, and allow IWMF to continue offering free resources, education, and materials to everyone living with WM.
 
In appreciation of you joining the Walk for Waldenstrom’s
 
Raise $100 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
 
Raise $800 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum
 
Raise $2,000 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum
  • A redeemable $300 travel certificate for you or a friend to attend a future IWMF Educational Forum


Because WM is a rare and little-known disease, please spread the word by sharing YOUR story, explaining what WM is and, by asking everyone you know to support IWMF.
 
Thank you for being a part of Walk for Waldenstrom’s.
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- Special Announcement -
U.S. Community Members:
August is National Make-A-Will Month

Sometimes we need a little incentive to put things into place that we should all have, but don’t necessarily like to talk about.
 
This event campaign ending in August protects what is most important. The IWMF makes it easy for you and your loved ones to start your plans by using this FREE online tool.
 
Make-A-Will Month is a call to action to make your mark—for yourself, your loved ones, and patients diagnosed with Waldenstrom’s macroglobulinemia (WM).
 
Here’s all that your mark can include:

More security as you look to the future
Agency over the critical choices you make in life
Readiness to support your loved ones and pets, no matter what
Kindness for the causes that you value
 
Your mark will build a legacy that supports and educates everyone affected by WM through a gift in your will that costs nothing today. 
Thank you for including the IWMF when creating your plans. We can’t do what we do without people like YOU.
 
 Sincerely,
 
The IWMF team
- Support -
Recording Available! Sound Meditation for WM
From Michelle Postek, IWMF Manager of Information & Support

Thank you to the nearly THIRTY WM community members who joined us for our first Sound Meditation for WM session with Ann MacMullan. It was a moving experience, and we received a lot of great feedback. Stay tuned for more of these offerings in the future!

Curious to check it out? Listen to the recording HERE.
Cardio Flow for WM
TODAY at 2:00PM U.S. EDT
Cardio Flow - 45 minutes of Mindful Movement
Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!
 
  • Get your flow on with simple repetitive movements that strengthen the core and legs, work the upper body, and pump the lymph fluid for immune system support.
  • We will be both seated and standing for the class, using the chair for balance as needed. Take “breath breaks” throughout as needed and stick around for our optional community chat afterwards.
  • Please have a chair and yoga mat if possible. Wear comfortable clothes and supportive shoes if needed. Talk with your doctor about any exercise restrictions you might have at this time.
  • If you can’t make the live class, a recording will be provided afterwards.

Ann MacMullan, E-RYT 500, is the WM Community Yoga Instructor. She enjoys uplifting the WM community through breath-connected movement, mindfulness, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019.

To join the mailing list for this program, contact Michelle Postek at mpostek@iwmf.com or contact the IWMF office at 941-927-4963.
Have you ordered IWMF Swag? Click the photo below!
This is a paid clinical trial advertisement.  
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.  
IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email info@IWMF.com or visit www.IWMF.com