The Waldenstrom's Weekly
July 22, 2022
Volume 2, Issue 27
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IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com
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YOU don’t want to miss this!
Join us for the IWMF 2022 Virtual Educational Forum
August 27th and 28th
Register by August 1st to be included in a raffle to win a complimentary registration to a future in-person IWMF Educational Forum. We will conduct a drawing to determine 5 lucky winners! Register NOW by clicking HERE!
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LAST CALL to Contribute to
IWWM-11 with YOUR Patient Data!
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One final reminder to please help WhiMSICAL investigators present on YOUR WM Patient-Entered Data to WM Experts at the biggest gathering of international WM clinicians and researchers, the IWWM-11 conference!
Please add your voice to the WhiMSICAL registry by joining and completing, or updating, the questionnaire, especially your treatment (question 9) and quality of life (questions 20 and 21) data. To be able to have your anonymous data included at the IWWM-11 conference, please enter your data by Monday July 25th, 2022.
If you are not yet enrolled, logon to the IWMF WhiMSICAL Registry by registering at CART-Wheel.org HERE and welcome aboard!
If you have enrolled already in the IWMF WhiMSICAL Registry, logon to CART-Wheel HERE. Even just one entry will provide an important update, so we especially urge those of you who have not visited WhiMSICAL for a while to sign in.
For Frequently Asked Questions, click HERE.
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Leukemia & Lymphoma Society:
Interactive 3D Model Library
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The Leukemia & Lymphoma Society (LLS), powered by BioDigital, is utilizing 3D technology to help patients and caregivers better understand diagnosis, treatment, procedures, and more.
The LLS offers a library of 19 interactive 3D models (including bone marrow biopsy and aspiration) to help you to visualize and better understand each of the topics.
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On July 10th, WMUK community members were accompanied by the medical team from University College Hospital (UCLH), including Dr Shirley D'Sa, for a walk around London parks to raise funds and awareness for WM. The participants even made an appearance outside of Buckingham Palace (in picture above) and have raised over $1,000! The money raised will help fund a dedicated WM Clinical Support line for WMUK.
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The Patient Access Network (PAN) Foundation:
WM Fund OPEN for Eligible U.S. Patients!
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The PAN Foundation is helping patients afford their out-of-pocket costs with annual grants of $7,000.
We know it can be difficult to afford the out-of-pocket costs of treatment for WM. If you’re looking for more financial assistance resources to help with your out-of- pocket treatment costs, we encourage you to learn more about our friends at the PAN Foundation.
The Patient Access Network (PAN) Foundation is a national organization that helps underinsured patients with life-threatening, chronic, and rare diseases get the medications and treatments they need by assisting with their out-of-pocket costs. You can find more information about their WM fund below.
About PAN’s WM fund
financial assistance to pay for the deductibles, co-pays, and coinsurance costs associated with WM treatment. To qualify for funding, patients living with WM must meet the following eligibility
requirements:
- Be getting treatment for WM.
- Reside and receive treatment in the U.S. or U.S. territories
- Be prescribed a medication or product that is listed on PAN’s list of covered medications
- Have an income that falls at or below 500% of the Federal Poverty Level.
- Have Medicare health insurance that covers the qualifying medication or product.
Review the full eligibility criteria HERE and check if you qualify.
How to apply
It’s easy to apply and you’ll learn if you’re approved for a grant immediately. Visit PAN’s online patient portal to get started and check out their portal how-to guides for step-by-step instructions on common tasks like creating an account and applying for assistance. You can also reach PAN by phone at 1-866-316-7263, Monday through Friday, 9 a.m. to 7 p.m. Eastern Time.
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CancerCare Program for U.S. Patients:
Pet Assistance & Wellness (PAW) Program
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We know the love and support that a pet brings into the lives of people with cancer and their loved ones. Caring for your pet when you have cancer can be challenging, and CancerCare is here to help. The Pet Assistance & Wellness Program (PAW) assists people undergoing cancer treatment with the challenges of keeping their cat or dog at home.
Key features of the PAW Program:
- Education focused on caring for your pets throughout your cancer journey.
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CancerCare’s case management, counseling and support groups, all free-of-charge.
- Limited financial assistance to qualified individuals who are in active cancer treatment and share their home with a cat or a dog. This financial assistance will offset some of the expenses associated with pets including pet food; pet walking / sitting and other pet caregiving services; pet boarding fees; veterinarian expenses including vaccinations and appointment fees; flea, tick and heartworm prevention medications; and lab fees.
For more information on CancerCare’s Pet Assistance & Wellness Program, call our toll-free Hopeline 800-813-HOPE (4673), staffed Monday through Thursday from 10 a.m. to 6 p.m. ET, and Friday from 10 a.m. to 5 p.m. ET.
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Don't forget to send pictures of you in your IWMF Swag to Michelle Postek to be featured in an upcoming newsletter! [email protected]
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This is a paid clinical trial advertisement.
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.
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The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.
Please consider a gift of support by clicking below.
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