The Waldenstrom's Weekly
March 10, 2023
Volume 3, Issue 9
With the IWMF, you are never alone.
- IWMF Educational Forum -
Join 132 In-Person Registrants at our Ed Forum!
The 28th Annual IWMF Educational Forum will be a unique experience to learn from medical experts and WM community members around the world. We have over 40 support group and International Affiliate leaders registered!
Although you can attend virtually, the Ed Forum is a unique opportunity to meet, IN PERSON, world-renowned WM clinicians and researchers and spend time with fellow patients and caregivers who are also experiencing the WM journey.

For those attending in-person, be sure to peruse the fabulous St. Louis Gateway Guide, which was created by our incredible Ed Forum Committee volunteers!

Please Note: Advance verification of COVID-19 vaccination will be required for all in-person attendees for their own safety, as well as the safety of others. In-person registered attendees will receive additional details on Ed Forum health and safety protocols. Be sure to consult with your healthcare team when deciding to attend physically. Your health is our priority. Masking is strongly recommended (but not required) for in-person attendees.

Meet us in St. Louis!
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- Research -
Visual Abstract Published on the Lymphoma Hub in Collaboration with IWMF and SES
The Lymphoma Hub is happy to present a visual abstract representing key data from the phase I/II BRUIN trial (NCT03740529) evaluating the safety and efficacy of pirtobrutinib, a reversible (non-covalent) Bruton’s tyrosine kinase inhibitor, in heavily pretreated patients with relapsed/refractory Waldenstrom’s macroglobulinemia, as presented at the 64th American Society of Hematology Annual Meeting and Exposition. In June 2021, the Lymphoma Hub reported preliminary results of the trial. For the full report, click HERE.
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- Education -
IWMF and Patient Access Network (PAN) Webinar
March 28th, from 4:00PM - 5:00PM U.S. ET
Medicare Reforms Passed Through the
Inflation Reduction Act


Speaker:

Amy Niles
Chief Advocacy and Engagement Officer

PAN Foundation
Join our webinar on March 28th to learn about the Medicare reforms that were passed in August 2022 as part of the Inflation Reduction Act. These reforms have the potential to significantly lower out-of-pocket costs for prescription medications for individuals on Medicare. 

Bonnie Beckett, IWMF Public Policy Liaison, will help to get YOUR questions answered during the Q&A portion of the program. Please submit your questions in advance when you register below.
Leukemia & Lymphoma Society Webinar
Clinical Trials & Blood Cancers:
Searching for Cures
Thursday, March 16th, from 12:00pm - 1:15pm U.S. ET
 
The LLS invites you to learn more about:
  • The purpose of blood cancer clinical trials
  • How clinical trials work
  • Safety and clinical trials
  • When a clinical trial may be right for you
  • Resources to assist you in finding a clinical trial
Lymphoma Research Foundation Webinar
Ask the Doctor About Lymphoma: Information for Newly Diagnosed 

- Support -
Financial Assistance for Calquence (acalabrutinib) from AstraZeneca Pharmaceuticals
For WM Patients taking Calquence (acalabrutinib), financial assistance may be available. Check AstraZeneca's financial support section of their website, which is organized by insurance type and also features access coverage by zipcode.

Check out the website HERE and see if you may qualify.
International Young WM Support Group Meeting
Next Monday, March 13th, at 7:30PM U.S ET
The International Young WM Support Group will be having a meeting for patients and caregivers under the age of 50. Attendees will join Co-Leaders Ryan and Deborah on Zoom for a caring and sharing session, which will last approximately one hour.
Monday, March 13th, 2023
7:30PM - 8:30PM U.S. ET

To join the mailing list for this group, contact Michelle:  [email protected]
WM Veteran Support Group
Next Thursday, March 16th at 2:00PM U.S. ET
The IWMF is proud to be hosting a special discussion group for WM community members who are Veterans. 
 
Next Thursday on March 16th from 2-3 pm ET, topics for discussion will include: sharing experiences; navigating the Veterans Administration and more.
 
The meeting will be hosted by Ray Vance, IWMF Lifeline Volunteer and Vietnam Veteran.
 
For any questions, please contact Michelle Postek at [email protected].
 
Please register at the button below for the meeting. Once you register, you will receive a confirmation email in your inbox with the Zoom link.
To sign up for classes, contact Shelly at [email protected]
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.  
IWMF is dedicated to supporting and educating everyone affected by WM to improve patient outcomes while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com