The Waldenstrom's Weekly

May 19, 2023

Volume 3, Issue 17

"We so appreciate the information it provides (the WM Weekly) and how we feel more connected to others." -J.L  

- Special Announcements -

NEW Fact Sheet from the IWMF

Laboratory Diagnosis and Monitoring of WM

Announcing a NEW Fact Sheet from the IWMF!

The Laboratory Diagnosis and Monitoring of Waldenstrom Macroglobulinemia Fact Sheet is for patients and caregivers who have a basic knowledge of biology. It is a companion publication to A Basic Guide to Understanding Your Bone Marrow and Waldenstrom's Macroglobulinemia. It is subdivided into three parts. The first part briefly introduces what the medical profession knows about the causes of WM. This will help to form the foundation for the second and third parts, which cover diagnosis and monitoring of Waldenstrom macroglobulinemia (WM) through the use of laboratory testing. Check it out HERE (scroll down on the page to the Fact Sheet section on the IWMF website). A special thank you to Dr. Janis Atkinson and the IWMF Publications Committee.

New Translated Publication Available!

The IWMF has a newly translated publication available titled Essential Information: A Patient’s Guide. The guide has been translated into ten languages. You may find it along with our other helpful publications here.

- Education -

On-Demand Video Available:

NORD WM Education Session

The National Organization for Rare Disorders (NORD) is offering an on-demand WM education session until June 1, 2023. The session is called "Systemic Therapy for Symptomatic Patients with Waldenström’s Macroglobulinemia" with speakers Dr. Jorge Castillo and Dr. Adam Olszewski. You may access the session here.

TODAY! Cardio Flow for WM at 2:00PM U.S. ET

Cardio Flow - 45 minutes of Mindful Movement

Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!

Contact [email protected] for the Zoom link!

Recordings Available!

Sound Meditation & Yoga Nidra

Relax to the sound of Ann's authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. According to sound healing traditions that have been passed down through both lineage and training, these bowls introduce a healing harmonic sound wave that helps dislodge stagnation on the cellular level, bringing the mind and body into perfect tune. 

Check out the recording here, and contact [email protected] to be added to the list for future sessions!

Yoga Nidra

The May Yoga Nidra recording is available! Join Ann for a 30 minute guided relaxation practice. Yoga Nidra can reduce stress levels, help you sleep better, and elevate your well-being. Check it out here!

WM People of Color Support Group

Friday, June 2nd at 1:00PM U.S. ET

The WM People of Color Group will be having their next meeting for patients and caregivers in June. Attendees will join leader Paula on Zoom for a sharing session, which will last approximately one hour.

Friday, June 2nd, 2023

1:00PM - 2:00PM U.S. ET

To join the mailing list for this group, contact [email protected]

Save The Date: WM Veterans Discussion Group

The IWMF will be hosting another sharing session for WM community members who are Veterans on June 7, 2023 at 2:00pm U.S. eastern time. 

The meeting will be moderated by Ray Vance, IWMF Lifeline Volunteer and Vietnam Veteran.

For any questions, please contact Michelle Postek at [email protected].

Please register at the button below for the meeting. Once you register, you will receive a confirmation email in your inbox with the Zoom link.

WM Community Corner

Lawrence Foxman is sporting his IWMF Swag in Westville, New Jersey (US). Where is your IWMF swag taking you? Be sure to share at [email protected].