The Waldenstrom's Weekly
November 23, 2022
Volume 2, Issue 45
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"I want to thank all of you at the IWMF office for all you do for us patients and supporters. Your efforts are appreciated and your work is very helpful and not taken for granted. Thankful to have you on my (our) team!"
-Stephen B
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GivingTuesday is Next Tuesday!
November 29, 2022
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GivingTuesday is a yearly worldwide movement encouraging radical generosity. This year the IWMF aims to provide more RESEARCH, EDUCATION, & SUPPORT activities for the global WM community. |
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The countdown is on… GivingTuesday is on November 29th.
On this day our end of year fundraising season begins. Please join us by giving to the IWMF so that we can provide Support and Hope to everyone around the world affected by WM.
Together, we can achieve our vision of “A World without Waldenstrom macroglobulinemia.”
The IWMF Team
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IWMF Board of Trustees Meet to Discuss 2023 |
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On November 13th, twenty-one members of the IWMF Board of Trustees and Home Office Staff met in person and over Zoom on behalf of the WM community. Throughout the day, the group shared plans for how best to accomplish the mission of the IWMF in 2023. Stay tuned for many exciting things to come!
Thank you to our volunteer IWMF Board of Trustees. We are grateful for ALL you do to help the WM community around the world!
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IWMF Welcomes Two New Board Members |
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The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is excited to announce the addition of two new members to the Board of Trustees – David Kahn and Julie Richardson.
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David Kahn worked in the insurance and Risk Management industry for over 40 years. He began his career as an Underwriter and Manager for National Insurance companies, and was a Principal and Chief Operating Office for Roblin Insurance in Needham, MA. He retired from working for HUB International in various roles, including Carolinas Chief Sales Officer and SVP, Business Excellence. David lives in Ponte Vedra, Florida.
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Julie Richardson is the author of Available Hope: Parenting, Faith and a Terrifying World, and the co-editor of It’s Not All About You (part of the Where’s the Faith? series). She blogs HERE, and currently serves as VP of Development for Pension Fund of the Christian Church. She transitioned into development and fundraising work about 8 years ago after 15 years of middle and high school youth ministry. Julie was diagnosed with WM in March 2020 at 44 years old. She calls Louisville, Ky., home, with her daughter, Madeleine, and her rescue dogs, Dolly and Skye.
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Please join us in welcoming David and Julie to the IWMF Board of Trustees! |
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Want to Learn How to Participate in
IWMF Patient Discussion Groups?
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Feeling unsure about how to join the IWMF CONNECT or Facebook patient discussion groups? We are here to help. We are looking for 10 people to work with Shelly to get connected to the platform(s) of your choosing in December. Contact [email protected] to sign up or for more information.
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Recording Available from GRYT Health:
Checkbooks and Balances: How Advocacy Can Support Both Physical and Financial Health
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From GRYT Health Advocacy Exchange:
For many people, living with disease is more than managing physical health. Everyday expenses and the ability to afford quality medical care, even with insurance, can be overwhelming. Socioeconomic challenges, depleted personal finances and understanding changing policies are just a couple of the challenges that people face in pursuit of care. The good news? Patient advocacy organizations often have resources that can help ease the financial burden. Join us for this session, where we’ll talk openly about balancing physical and financial health and how patient advocacy is leading the way to support people in these areas.
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Relax to the sound of Ann Grace's authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. According to sound healing traditions that have been passed down through both lineage and training, these bowls introduce a healing harmonic sound wave that helps dislodge stagnation on the cellular level, bringing the mind and body into perfect tune. Check out the recording HERE!
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Friday Offering : Cardio Flow with Ann
2:00PM - 2:45PM Eastern Time
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Cardio Flow - 45 minutes of Mindful Movement
Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!
Ann MacMullan, E-RYT 500, is the WM Community Yoga Instructor. She enjoys uplifting the WM community through breath-connected movement, mindfulness, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019.
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WM Community Corner
IWMF Swag Alert!
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Lavonne Pinkston from Oklahoma (US) is showing us her new IWMF ornament. Click HERE to purchase one for yourself or for those you love to show your support in time for the holidays!
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Robin Tucker, IWMF Finance Manager, is sporting her new IWMF beanie hat to keep warm in Colorado (US)! Click HERE to purchase one and represent the IWMF while you are out and about!
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Support the IWMF through Amazon Smile |
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We are entering shopping season, and now you can make a difference for people living with Waldenstrom’s macroglobulinemia with the click of a mouse.
When you sign up for Amazon Smile and choose The International Waldenstrom's Macroglobulinemia Foundation Inc, a percentage of your eligible purchase goes to IWMF at no extra cost to you.
Here’s how to sign up… It’s quick, easy, and free!!!
Sign in with the same account you use for Amazon.com.
Select The International Waldenstrom's Macroglobulinemia Foundation Inc
Happy shopping and thank YOU!
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IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com
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