The Waldenstrom's Weekly
October 14, 2022
Volume 2, Issue 39
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Your generous contributions allow the IWMF to provide information, education and support programs free of charge to all WM community members. |
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Martin Vanderlaan: Celebrating 5-Years
Post Stem Cell Transplant with a Wedding!
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"At some future point I may need additional treatments, but fortunately progress has been made developing new therapies for WM. " |
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National Estate Planning Week! October 17th - 23rd
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From Alix Redmonde, IWMF Director of Development & Communications
This is a call to action with some FREE simple things you can do to make sure your wishes are met in the future.
Check out this great little kit on making a future gift from AARP. It gives great tips and helps you keep records easily.
When you create your FREE will on IWMF.com and include IWMF, you are recognized as a member of the honorable Ben Rude Heritage Society in our annual report and our quarterly magazine, the IWMF Torch.
The opportunity to plan for the future is now and we do hope that you include IWMF when planning a future gift.
Thank you,
Alix
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NEXT week, October 20th!
Leukemia & Lymphoma Society (LLS) Webinar:
NEW Research on COVID and Blood Cancer
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From the LLS:
COVID-19 continues to put blood cancer patients at risk, especially as the CDC eases mask and reporting recommendations for the general public. Even with vaccination, breakthrough infections and emerging variants require blood cancer patients and their families to remain vigilant.
LLS continues its work to track the impact of the virus and protect blood cancer patients. Join us as we bring together a panel of experts for an update on what we are learning, including data on infections and reinfections across blood cancer types, the effectiveness of Evusheld in blood cancer patients and the impact of COVID infection in blood cancer patients. You will also hear an update on the latest knowledge emerging from LLS’s analysis of data being gathered in the National Patient Registry.
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Lymphoma Research Foundation (LRF)
North American Educational Forum on Lymphoma
October 28th - 30th, 2022
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The North American Educational Forum on Lymphoma is an annual 2 ½ day program providing presentations from expert speaking faculty, disease and treatment specific information, information on clinical trials, the latest advances in lymphoma research, and networking opportunities for members of the lymphoma community.
Click the button below for details on the 2022 Educational Forum on Lymphoma.
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Hot Off the Press Recording Available! |
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Peripheral Neuropathy Support Session from October 12th, 2022
Featuring:
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Dr. Michelle Mauermann
Mayo Clinic
Presentation Title:
Peripheral Neuropathy Diagnosis and Evaluation
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Dr. Narayan Kissoon
Mayo Clinic
Presentation Title:
Neuropathic Pain Management
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TODAY! Cardio Flow for WM with Ann MacMullan
2:00PM U.S. ET (UTC-4)
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Cardio Flow - 45 minutes of Mindful Movement
If you are in need of an exercise break later today, come join us!
Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!
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Total Body Workout with Alix Redmonde
NEXT Tuesday, Oct. 18th at 1:00PM U.S. ET (UTC-4)
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Join IWMF’s Alix Redmonde as she ditches her 6 inch heels and puts on her sneakers to teach Total Body Workout (TBW) designed especially for our WM community members.
Everyone is welcome, TBW is appropriate for all abilities whether you are sitting or standing there are modifications for all.
Total Body Workout starts with flowing movement to warm up in preparation of stretch, the stretch is followed by cardiovascular moves and a cool down. The strength portion can be performed with or without weights. And if you want to lift but don’t have access to free weights, then a couple of cans of soup, water, or shampoo bottles will do!
Bring a bottle of water, a towel and make sure the area is clear of rugs or anything you can trip on.
Most importantly… bring your smiles and the expectation of a good time! Contact [email protected] for the Zoom link!
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Next Friday!
Sound Meditation for WM
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Relax to the sound of Ann MacMullan's authentic Himalayan Singing bowls, with gentle verbal guidance to further calm the nervous system. According to sound healing traditions that have been passed down through both lineage and training, these bowls introduce a healing harmonic sound wave that helps dislodge stagnation on the cellular level, bringing the mind and body into perfect tune.
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Extramedullary WM Discussion Group
October 23rd, from 1:00 - 3:00PM U.S ET (UTC-4)
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How rare is Extramedullary WM? We’ve heard from WM expert docs that it is so rare that many WM doctors have never seen a case, yet apparently there are a number of us who certainly know that we exist. We (The IWMF) would like to try and connect folks who have been diagnosed with any type of WM/LPL lesions/tumors outside of the “normal” regions of bone marrow, lymph nodes and spleen. In addition to being able to meet one another and share stories, we would love to be able to collect enough information to be useful for WM researchers and to raise awareness in the WM community.
We will meet via Zoom on Sunday afternoon, October 23 from 1-3 pm US ET (UTC-4) . You will need to pre register for this meeting HERE.
If this time doesn't work for you, but you’d like to be included in our information gathering/sharing effort, please contact either
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October Yoga Nidra Recording Available! |
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Ann is inviting those affected by WM to her 30 minute guided relaxation practice. Yoga Nidra can reduce stress levels, help you sleep better, and elevate your well-being. Give yourself permission to relax and rest, while setting intentions for personal growth and exploring the deeper self. Check it out HERE!
Yoga Nidra meets live on Zoom the second Sunday of each month at 4:00pm U.S. ET (UTC-4). To sign up for the mailing list, RSVP to Ann directly at: [email protected]
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Recording & Transcript Available
Addressing the Financial Impact of Cancer
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The Leukemia & Lymphoma Society is pleased to offer you the video replay, resource guide and written transcript from:
PROGRAM TITLE
ADDRESSING THE FINANCIAL IMPACT OF CANCER
Topics covered:
- How cancer impacts your finances
- Health insurance coverage
- Employment during and after cancer
- Financial budgeting and resources
To obtain a copy of the written transcript, call an LLS Information Specialist at (800) 955-4572.
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A Smile Goes a Long Way to Making a Difference |
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We are entering shopping season, and now you can make a difference for people living with Waldenstrom’s macroglobulinemia with the click of a mouse.
When you sign up for Amazon Smile and choose The International Waldenstroms Macroglobulinemia Foundation Inc, a percentage of your eligible purchase goes to IWMF at no extra cost to you.
Here’s how to sign up… It’s quick, easy, and free!!!
Sign in with the same account you use for Amazon.com.
Select The International Waldenstroms Macroglobulinemia Foundation Inc
Happy shopping and thank YOU!
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Click below to get your IWMF Swag, and be sure to send a picture to [email protected] to be featured in the WM Weekly !
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IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com
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