The Waldenstrom's Weekly
September 16, 2022
Volume 2, Issue 35
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Because of YOU, the IWMF can provide FREE programming including support, education, and information for all WM community members. |
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- The Walk for Waldenstrom's -
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CALL TO ACTION:
Walk for Waldenstrom’s 2022
Sunday, September 18th at 10:00am (ET).
Join us to raise awareness and support for the International Waldenstrom’s Macroglobulinemia Foundation (IWMF).
Walk for Waldenstrom’s is a 1-mile virtual walk/run fundraising and awareness event for the IWMF and global WM community.
It’s FREE to register!
Join from anywhere in the world.
Your home, a park, the beach, your neighborhood and bring the dog. You can order an IWMF bandana or T-shirt HERE, see Jazz below sporting IWMF swag!).
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You can create your own fundraising page and reach out to your friends and family for support, or click join a team.
Need help creating your page?
Email Donna Cutillo at [email protected], and she will walk you through it-no pun intended!
Funds raised from this event make a big difference to the global WM community – these funds support vital WM research, and allow IWMF to continue offering free resources, education, and materials to everyone living with WM.
Below are some perks for your fundraising efforts
$100 and receive:
· IWMF Walk for Waldenstrom’s T-Shirt
Raise $800 and receive:
· IWMF Walk for Waldenstrom’s T-Shirt
· Complimentary registration to a future IWMF Educational Forum
Raise $2,000 and receive:
· IWMF Walk for Waldenstrom’s T-Shirt
· Complimentary registration to a future IWMF Educational Forum
· A redeemable $300 travel certificate for you or a friend to attend a future IWMF Educational Forum
Because WM is a rare and little-known disease, please spread the word by sharing YOUR story, explaining what WM is and, by asking everyone you know to support IWMF.
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SAVE THE DATE
Peripheral Neuropathy Support Group Meeting
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Join the International PN Support Group for a presentation and Q&A session with Dr. Michelle Mauermann!
Wednesday, October 12th, 2022
2:15PM - 3:45PM U.S. ET
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Dr. Michelle Mauermann
Mayo Clinic
Michelle L. Mauermann, M.D., studies disorders that damage the peripheral nerve system through neoplastic (hematologic), inflammatory or genetic mechanisms. She uses human clinical trials in her research. The long-term goals of Dr. Mauermann's research are to elucidate the mechanisms of neuropathies in plasma cell disorders and to improve treatment of hereditary amyloidosis, plasma cell disorders and inflammatory neuropathies.
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Contact Michelle Postek at [email protected] if you are interested in attending and not currently on the PN mailing list.
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TODAY- Cardio Flow for WM at 2:00PM U.S. ET |
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Cardio Flow - 45 minutes of Mindful Movement
Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!
- Get your flow on with simple repetitive movements that strengthen the core and legs, work the upper body, and pump the lymph fluid for immune system support.
- We will be both seated and standing for the class, using the chair for balance as needed. Take “breath breaks” throughout as needed and stick around for our optional community chat afterwards.
- Please have a chair, yoga mat if possible, and wear comfortable clothes and supportive shoes if needed. Talk with your doctor about any exercise restrictions you might have at this time.
- If you can’t make the live class, a recording will be provided afterwards.
Ann MacMullan, E-RYT 500, is the WM Community Yoga Instructor. She enjoys uplifting the WM community through breath-connected movement, mindfulness, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019.
To join the mailing list for this program, contact Michelle Postek at [email protected] or contact the IWMF office at 941-927-4963.
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Eunice Quast, IWMF Support Group Co-Leader for MN & WI, is ready to rock the Walk for WM this Sunday! Are YOU ready? |
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A Free Virtual Educational Conference for Patients, Survivors,
Caregivers, and Healthcare Professionals
TOMORROW
SEPTEMBER 17, 2022
11:30AM - 3:30PM U.S. EDT
Breakout Session on WM:
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For the full agenda and speakers, please click below!
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For questions, please contact:
The Leukemia & Lymphoma Society
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Robin Tucker, IWMF Finance Manager, is sporting her new IWMF sweatshirt in preparation for the Walk for WM! Click below to get yours, and be sure to send a picture to [email protected] !
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IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com
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