The Waldenstrom's Weekly
July 29, 2022
Volume 2, Issue 28
IWMF is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. Waldenstrom's Weekly is a free service to WM community members to share WM related news and events. Click on downloading photos at the top to view all content. For more information, email [email protected] or visit www.IWMF.com

The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.

Please consider a gift of support by clicking below.
- Education -
YOU don’t want to miss this!
Join us for the IWMF 2022 Virtual Educational Forum
 August 27th and 28th

Register by August 1st to be included in a raffle to win a complimentary registration to a future in-person IWMF Educational Forum. We will conduct a drawing to determine 5 lucky winners to be announced during the Ed Forum!

Below is a message from Alix Redmonde,
IWMF Director of Development and Communications:
Register NOW by clicking HERE!
- Research -
WhiMSICAL Patient Registry Update for IWWM-11
A BIG THANK YOU to everyone who helped enter their data into the WhiMSICAL patient registry, and a special thanks to the 25 new participants who brought this global registry up to 642! YOUR important data will now be analyzed by WhiMSICAL investigators and presented at the biggest gathering of international WM clinicians and researchers!

If you are not yet enrolled, logon to the IWMF WhiMSICAL Registry by registering at CART-Wheel.org HERE and welcome aboard!

Click HERE For Frequently Asked Questions, and for assistance, email [email protected] .

Together, we can help create a world without WM!
- Support -
WM Community Corner
SWAG ALERT: Andrea Horton (Ontario, Canada) wore her IWMF swag to her final chemotherapy treatment last week!

Where has your IWMF swag taken you? Send your photo to [email protected]
WM Yoga & WM Cardio Flow Class Updates
Contact Michelle Postek to be added to any of the mailing lists at [email protected]
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- The Walk for Waldenstrom's -
Join us for the Walk for Waldenstrom’s 2022, Sunday, September 18th at 10:00am (ET).
 
This is YOUR opportunity to raise awareness and support for the International Waldenstrom’s Macroglobulinemia Foundation (IWMF).
 
What is the Walk for Waldenstrom’s?
Walk for Waldenstrom’s is a 1-mile walk/run fundraising and awareness event for the IWMF and global WM community of care partners, friends, and family.
 
There’s no registration fee or charge!
 
 
Join the Walk for Waldenstrom’s from anywhere in the world.
We make it easy… Walk in a park, on the beach, in your neighborhood (bring the dog), from the comfort of your own home, or walk on the treadmill. 
 
Don’t want to walk? No problem! 
Pick any activity you enjoy… Pickleball, bridge, even reading a book. 
You will be further participating by asking your friends and family to join in the Walk for Waldenstrom’s.
 
Because WM is a rare and little-known disease, please spread the word by sharing YOUR story, explaining what WM is and, by asking everyone you know to support IWMF.
 
To get started, create your very own fundraising page, and reach out to your friends and family for support.
Don’t know how to create your page… We can help!
Just email Donna Cutillo at [email protected], she will walk you through it.
 
Funds raised from the Walk for Waldenstrom’s will make a very real difference to the WM community around the globe – these funds support vital WM research, the creation of IWMF publications and literature, and allow IWMF to continue offering free resources, education, and materials to everyone living with WM.
 
In appreciation of you joining the Walk for Waldenstrom’s to raise funds and increase awareness about WM, we offer the following incentives toward sending you or someone you care about to a future IWMF Educational Forum:

Raise $100 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt

Raise $800 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum

Raise $2,000 and receive:
  • IWMF Walk for Waldenstrom’s T-Shirt
  • Complimentary registration to a future IWMF Educational Forum
  • A redeemable $300 travel certificate for you or a friend to attend a future IWMF Educational Forum
This is a paid clinical trial advertisement.  
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.