The Waldenstrom's Weekly
June 24, 2022
Volume 2, Issue 23
The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is dedicated to supporting and educating everyone affected by WM while advancing the search for a cure. The IWMF provides access to The Waldenstrom's Weekly as a free service to WM community members to share WM related news and events. Be sure to click on downloading the photos in our newsletters so you don't miss anything important. For more information, please contact or visit our website at
- Education-
Ed Forum Primer Series - Part III
Understanding Your Blood and
Bone Marrow Test Results:
Rebroadcast with NEW LIVE Q&A!

Wednesday, July 13th, 2022
1:30PM - 2:30PM U.S. Eastern Daylight Time


Rafat Abonour, MD

Professor of Medicine, Pathology, and Laboratory Medicine

Indiana University


Bonnie Beckett, Ph.D.

IWMF Public Policy Liaison
About the Program:
The third in our Ed Forum Primer Series, this rebroadcast from the 2021 “Understanding Your Blood and Bone Marrow Test Results” session will describe the blood and bone marrow tests used to help diagnose WM, as well as explain and interpret the typical tests used by healthcare providers to monitor the disease status of their WM patients.

After the broadcast, Dr. Abonour will answer questions from the chat box LIVE!
- Support-
Cardio Flow for WM
Friday, July 1st from 2:00-2:45PM U.S EDT
Cardio Flow - 45 minutes of Mindful Movement
Physical activity is the number one intervention for cancer-related fatigue. This medium-paced class will feature cardio, strength, and balance training to safely get the heart rate up for those managing WM. Come as you are and have a little fun while you’re at it!
  • Get your flow on with simple repetitive movements that strengthen the core and legs, work the upper body, and pump the lymph fluid for immune system support.
  • We will be both seated and standing for the class, using the chair for balance as needed. Take “breath breaks” throughout as needed and stick around for our optional community chat afterwards.
  • Please have a chair, yoga mat if possible, and a Thera-band for resistance exercises. Wear comfortable clothes and supportive shoes if needed. Talk with your doctor about any exercise restrictions you might have at this time.
  • If you can’t make the live class, a recording will be provided afterwards.

Ann MacMullan, E-RYT 500, is the WM Community Yoga Instructor. She enjoys uplifting the WM community through breath-connected movement, mindfulness, and by creating a supportive group environment on Zoom. Her father was diagnosed with WM in 2019.

To join the mailing list for this program, contact Michelle Postek at or contact the IWMF office at 941-927-4963.
WM Community Corner
Last week, Julie Richardson (Kentucky, US) participated in the Rare Cancer Updates conference. She had the opportunity to share her patient perspective, and then participated in a Q&A panel with Dr. Jeffrey Matous (Colorado Blood Cancer Institute), Dr. Shayna Sarosiek (Dana-Farber Cancer Institute), and Dr. Prashant Kapoor (Mayo Clinic). Thanks to Julie for representing the WM Community!
Patrice Ostermann of Waldenström France is visiting the Vichy Celestins Spa Hotel in Vichy, France.
This is a paid clinical trial advertisement.  
The information about this clinical trial is intended to be helpful and educational, but it does not constitute an endorsement by the IWMF and is not meant to be a substitute for professional medical advice. The IWMF strongly encourages discussions with their health care professionals about specific medical conditions, side effects, and treatments.  

- Thanks to You -
The IWMF is able to offer our education, information and support programs free of charge, thanks to the generosity of WM community members like you.

Please consider a gift of support by clicking below.